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Type: Posts; User: Spiersey

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    Sling types for mobile hoist

    Good evening friends,

    So it feels like everyday presents a new challenge that we meet with the aggression it presents and generally find a way round often with the help of our fabulous community...
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    Hi Ellie, Thanks for your reply, I love the...

    Hi Ellie,

    Thanks for your reply, I love the term cushions, I will be adopting that loving term for my own extra carriage :D

    My husband has lost between 2 - 2.5 stone since diagnosis in December...
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    Hi Jimbo, What’s the criteria for the PEG? My...

    Hi Jimbo,

    What’s the criteria for the PEG? My husband doesn’t not have difficulties swallowing but his appetite has lessened since he cannot feed himself due to muscle weakness in his upper body,...
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    Thanks Ellie that’s all really helpful. I will...

    Thanks Ellie that’s all really helpful. I will chase tomorrow xx
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    We last saw the consultant on 11th April and he...

    We last saw the consultant on 11th April and he wanted the referral to be urgent however we are still waiting to hear from Papworth re an appointment however they are in the middle of a massive move...
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    Thanks Ellie

    Thank you Ellie, your post offered me much reassurance. In fact everything you said made sense and it seems that he does indeed panic when his breathing is compromised. He is waiting for his...
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    Connections between Anxiety attacks and MND

    Hi All,

    My Hubby was diagnosed in Dec and his progression has been aggressive to say the least, he now cannot do anything for himself at all.

    I have given up work to care for him and over the...
  8. I couldnít ask for more love and support

    Thanks Debbie,

    I am blessed with family and friends who want to help and support x

    Thank you for your kind reply xx
    Claire x
  9. Hi Kayleigh, Thanks for all your advice I will...

    Hi Kayleigh,

    Thanks for all your advice I will contact the MNDA advice line to see if they have any further suggestions.
    Will wheelchair services opt for an electric chair straight away in your...
  10. Thank you Helen, much appreciated x

    Thank you Helen, much appreciated x
  11. Thank you Music Mans Wife

    Thank you for such great advice, we have the OT coming out next week to assess the house and hopefully write a report which we can add to our housing application so fingers crossed this may help...
  12. Changing Housing needs and donít know what our options are??

    My husband was diagnosed in December 2018 aged 48, at which point he walked into the clinic. Just a few months later and his mobility needs are significantly impaired. He has completely lost the use...
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    Wow such wonderful response, thank you all for...

    Wow such wonderful response, thank you all for the very useful information I am indeed as Terry suggested slowly digesting and researching it further, I am a little overwhelmed by how much there is...
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    Thanks

    Thanks Hardcastle, we too are under the care of Dr Allen and the team at addenbrookes/Arthur rank and agree that so far they have been brilliant. Unfortunately I have been aware of the work they do...
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    Hi Lynne many thanks for your reply. Can he get...

    Hi Lynne many thanks for your reply. Can he get PIP even though he still working? I always hear stories of how difficult it is to get PIP awarded even for those in great need? We have an OT visit g...
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    Thank you Barry that is very informative ��

    Thank you Barry that is very informative ��
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    My husband was diagnosed on 4th Dec ☹️

    Hello all, from reading your posts I think we have been lucky (you know what I mean) to have been given a very quick diagnosis, hubby first saw GP in August and received diagnosis of Spinal Onset MND...
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