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Type: Posts; User: Hayls

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  1. Replies
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    Hello Andy, I am very lucky to have people...

    Hello Andy,

    I am very lucky to have people both personally and professionally who are incredible supportive and as my speech was the first to be affected Iím sure the majority of my EL is pure...
  2. Ouch, a fall of any kind can have a huge impact...

    Ouch, a fall of any kind can have a huge impact in not only physically but emotionally, so glad you and your hero of a wife dusted yourself off and I certainly hope your both taking things easy to...
  3. Hello Sarah, thank you for starting this thread,...

    Hello Sarah, thank you for starting this thread, Iíve been diagnosed for 3 months and Iím feeling so drained and itís shocked me just how physically challenging everyday things are but after reading...
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    Thanks Rachel, Ellie, Shrew and Sheila, thank you...

    Thanks Rachel, Ellie, Shrew and Sheila, thank you all, you all make me see sense, having been a carer for 20+ years Iíve seen my fair share of side effects of coming off antidepressants and or...
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    The big day came and went, I blubbered the moment...

    The big day came and went, I blubbered the moment I started walking down the isle and saw everyoneís faces, I managed to not howl and lots of hankies were offered, the registrar was extremely...
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    Hello Lynne ;) I would agree that you need to...

    Hello Lynne ;) I would agree that you need to ensure he knows your thoughts and feelings too, not all good intentions are good, try to be honest with him. My Fiancť lives in a very small rural...
  7. Thread: Ventilation

    by Hayls
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    Dina, you are an inspirational person, I’ve just...

    Dina, you are an inspirational person, I’ve just managed to catch up with your thread, what a rollercoaster you’ve been on but so glad your resilience and determination has kept you going, so glad...
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    Thank you Deb, my mum was horrified at first at...

    Thank you Deb, my mum was horrified at first at the thought of that song for our walking out song but luckily she’s warmed to it ;)
    I had a surprise Hen Party last night and I ended up crying...
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    Andy and Ellie, you all have shown just how...

    Andy and Ellie, you all have shown just how determined we all are and I will certainly share any news good or bad in the hope that I can pass on anything I learn that would support anyone in...
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    I know this is an old post but I thought I’d...

    I know this is an old post but I thought I’d comment as my Dad was diagnosed in 2014 with FTD and he passed away August 2018 and I started having symptoms in September 2018 and diagnosed with MND...
  11. Thread: Peg consultation

    by Hayls
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    Awww thank you Ellie, your so right, heís always...

    Awww thank you Ellie, your so right, heís always checking Iím OK and every slight cough I have, heís a rabbit in headlights, heís worrying about me and Iím worrying about him worrying too much lol,...
  12. Thread: Peg consultation

    by Hayls
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    3,660

    Hello Cat, Yep, I live in Bournemouth but my...

    Hello Cat,
    Yep, I live in Bournemouth but my Fiancť lives west Dorset so Iím half and half, what part of the neck of the woods are you;)
  13. Thread: Peg consultation

    by Hayls
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    3,660

    My MND started with swallowing and voice and has...

    My MND started with swallowing and voice and has started to go to my limbs, luckily my breathing is still unaffected, my consultant has referred me to have one fitted ASAP as Iím struggling to drink...
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    Miranda and Terry, awww thank you both for...

    Miranda and Terry, awww thank you both for sharing your hints and tips, I think my Maid of Honour will have her hands full with my soggy tissues and my Mums lol My husband to be said that heíll...
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    Thank you Ellie, Lynne and Kayleigh for being so...

    Thank you Ellie, Lynne and Kayleigh for being so supportive, I think Iím still learning to try and understand and cope with these challenges, thank you all for helping me realise that family and...
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    Thank you Dina, Barry and Rachel for your support...

    Thank you Dina, Barry and Rachel for your support and advice, Iím sending out my wedding invitations this week, as Iíve not seen many people since my diagnosis and thinking how much Iíve changed Iím...
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    Emotional liability

    Since Iíve been diagnosed, itís almost like my symptoms have accelerated, Iíve started all the medications that are hoped to slow the symptoms onset and increased my sertraline Iím hoping I see an...
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    Hello Anjum Youíve listed all my fears, Iím...

    Hello Anjum
    Youíve listed all my fears, Iím terrified of putting all the people I care about through all the heartache of seeing me deteriorate :í0(
    Itís suspected that Iíve developed this...
  19. Thread: Taste

    by Hayls
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    I’ve experienced something similar but usually...

    I’ve experienced something similar but usually only when I’ve been active and think it’s linked to how I’m breathing and swallowing, I call it cotton mouth, it’s very unpleasant �� the only change in...
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    Awww 🥰 thank you everyone

    Awww 🥰 thank you everyone
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    Iím 37 and I started having a weakness in my...

    Iím 37 and I started having a weakness in my voice and then the Emotional Liability started, any laughing or crying is out of proportion, Iíve been diagnosed with ALS as of yesterday and Iím relieved...
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