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  1. Thread: Baclofen

    by TIANDB
    Replies
    24
    Views
    20,220

    Hi Boiler68. Baclofen is used for muscle...

    Hi Boiler68.
    Baclofen is used for muscle troubles with ALS, more in the USA than Europe it seems from looking at evaluations on PLM.
    I have got my Doctor to prescribe here in the UK. I take 10mg...
  2. Replies
    366
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    165,425

    Hi cc. I was interested in US politics after Mr T...

    Hi cc. I was interested in US politics after Mr T was elected against all odds. Due to my ALS I have had time to analyze well and the negativity and bitterness expressed by Democrats with loosing...
  3. Thread: Rch4

    by TIANDB
    Replies
    400
    Views
    122,298

    Closed: I will post here my latest evaluation on PLM, I...

    I will post here my latest evaluation on PLM, I post not to boast or to crow. I wish everyone could get a chance to try this helping hand.

    Hi All. Still feeling positive. Now today 44 +100. My...
  4. Replies
    35
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    18,576

    Most welcome. I have an e-mail contact with my...

    Most welcome. I have an e-mail contact with my Doctors due to my voice issues and confined in my first floor apartment. I seem to get quicker service that way although the only medication I am on...
  5. Replies
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    Hi Fru. If it was your MND consultant that...

    Hi Fru.
    If it was your MND consultant that refused try your Doctor or vice versa. I had to talk my Doctor into it well slurr him into it ha.
    It is not an expensive drug and you start on a really...
  6. Thread: How long

    by TIANDB
    Replies
    26
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    7,841

    Hi David so sorry about your poor wife and her...

    Hi David so sorry about your poor wife and her fast progression. I had symptoms from November 2017 and knew by January in my mind what it was as my father had passed at a similar age from MND 26...
  7. Replies
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    Hi DS. My Doctor looked the drug up when I...

    Hi DS.
    My Doctor looked the drug up when I suggested a trial. I have fast onset legs, arms and bulbar. After seeing it on this and other forums and after some research I thought it might help and as...
  8. Replies
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    18,576

    I have had Ropinirole recently prescribed by my...

    I have had Ropinirole recently prescribed by my Doctor. Small 0.25mg to start, I intend to maybe go up to 2mg in a few weeks if well tolerated ? My legs are very weak and interfere with my beauty...
  9. Thread: Flu Jab 2016

    by TIANDB
    Replies
    43
    Views
    35,914

    I have a nurse coming to do mine today I will...

    I have a nurse coming to do mine today I will report if any adverse reactions, Flu and Pneumonia I hope, A 9 -5 Window which could have been smaller although I haven't any plans for outings Ha ....
  10. Replies
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    1,999

    Hi LauraS. I think it is roughly 50/50 whether...

    Hi LauraS. I think it is roughly 50/50 whether you will have the gene Defect if your father was Familial ? Was he gene tested ?
    If he did not have a Familial gene defect and so sporadic MND you...
  11. Replies
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    19,376

    Hi jamesob I will try whatever to arrest my TO...

    Hi jamesob
    I will try whatever to arrest my TO slippery slope and give me some hope otherwise I could have been gone by now.
    Do you get your CBD in the uk ? Or are you in a legalized county ?...
  12. Replies
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    19,376

    An interesting ALSuntagled video on the benefits...

    An interesting ALSuntagled video on the benefits maybe of Curcumin ?
    https://www.neals.org/for-people-with-als-caregivers/educational-webinars/cured-by-curcumin-untangling-another-als-x-file
  13. Thread: Supplements

    by TIANDB
    Replies
    21
    Views
    6,317

    A bump for this thread also as useful information...

    A bump for this thread also as useful information for new arrivals and others.

    Add. An interesting Alsuntangled video report on the maybe ? Benefits of Curcumin....
  14. Replies
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    19,376

    A Bump for this Thread as interesting for...

    A Bump for this Thread as interesting for newcomers ..
  15. Thread: Rch4

    by TIANDB
    Replies
    400
    Views
    122,298

    Closed: Hi Terry and Sportingmac I agree with you both....

    Hi Terry and Sportingmac I agree with you both. My comments were in reference to some now closed threads on other forums.
    I have changed slightly my to harsh words. Take care Peace. TIANDB
  16. Thread: Supplements

    by TIANDB
    Replies
    21
    Views
    6,317

    Hi Marigold I will add my post from a similar...

    Hi Marigold I will add my post from a similar thread.. Take care.
    http://forum.mndassociation.org/showthread.php?7826-Supplements-what-are-you-taking

    TIANDB long List.
    Hi Guys I will throw in my...
  17. Thread: Rch4

    by TIANDB
    Replies
    400
    Views
    122,298

    Closed: Hi Maverick the Contact link has been taken down ...

    Hi Maverick the Contact link has been taken down due to some posting and poking negatively on there. Maybe it will come back in the future ? It is worth if you have not already trawling the 4 main...
  18. Replies
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    TIANDB long List.

    Hi Guys I will throw in my TIANDB long List and you will have to google or web search for clues. I actually got most of other MND sites it is a long list but I have been slipping down this slope...
  19. Thread: Rch4

    by TIANDB
    Replies
    400
    Views
    122,298

    Closed: Common decency and I would have had a reply by...

    Common decency and I would have had a reply by now. It seems to be part of the trial for me though. My Doctor when he first made contact after numerous messages and me telling him my of my Familial...
  20. Thread: Rch4

    by TIANDB
    Replies
    400
    Views
    122,298

    Closed: Hi jay. Awaiting news from my professor...

    Hi jay. Awaiting news from my professor Consultant, He I hope has read my e-Mail pleas and with all his intelligence ? I am sure he can produce a sentence or two for my life benefit ? I will update...
  21. Thread: Rch4

    by TIANDB
    Replies
    400
    Views
    122,298

    Closed: Hi Chrisp.. Worth to view all News on RCH4 on all...

    Hi Chrisp.. Worth to view all News on RCH4 on all the forums including older locked threads. They would like to increase patients with Some honest funding I presume ? Take Care: " Secrets and Lies...
  22. Thread: Rch4

    by TIANDB
    Replies
    400
    Views
    122,298

    Closed: I will take the risk although the 19 Folks on...

    I will take the risk although the 19 Folks on patients L M have found no bad reactions only good.
  23. Thread: Rch4

    by TIANDB
    Replies
    400
    Views
    122,298

    Closed: A 2nd to this. It is hard enough on folks with...

    A 2nd to this. It is hard enough on folks with such conditions without bitterness spoiling the chance for a little extra time with loved family members. The biggest percentage of MND sufferers do not...
  24. Thread: Rch4

    by TIANDB
    Replies
    400
    Views
    122,298

    Closed: Worth to look at Gerti's words towards the bottom...

    Worth to look at Gerti's words towards the bottom of the page on this link. It seems like RCH4 has helped her some..

    ...
  25. Thread: Rch4

    by TIANDB
    Replies
    400
    Views
    122,298

    Closed: Well they have my details, I have to try to...

    Well they have my details, I have to try to arrest my slippery slope.
    Will await reply and hope I will be acceptable.
    Had my Doctor visit today and showed him my email reply, He cannot endorse...
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