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I was only in hospital for just over half a day for my RIG.

I haven't experienced pain but I have loss of control in my arms and legs.

Look for fasiculations, skin fluttering usually on your arms or legs. That is a fairly good indicator of MND

That's sorted out peeling. What about pooping?

I suffer a very runny nose when I first get up in the morning.

If I go and lie down on the bed for an hour it dries up and doesn't seem to bother me until bedtime. When I go to bed for the night,...

After talking with Kim Archer (MNDA ModelTalker guru) I downloaded Predictable. Now I'm learning my way around it.

Cost was £129.99on Google Play Store, but you can apply for reimbursement from...

I just found out that the same company provides equipment for hotel stays and holiday rentals.

If you want to go on a cruise http://www.mobilityatsea.co.uk/ will deliver a wide range of specialist equipment directly to your cabin and take it away afterwards.

I'm using ModelTalker2 at the moment but my speech therapist suggested that I looked at Predictable.

I did a quick look on the website but I couldn't find a price for Predictable.

I finally got my synthetic voice. It takes a bit of getting used to but it is definitely ME.

My first noticeable symptom was slurred speech and it was about 5 months from onset to diagnosis.

How long does ModelTalker take to produce your synthetic voice once you've completed the 1600 sentences?

Not sure yet but investigating this:

https://www.tobiidynavox.com/en-GB/devices/Eye-Gaze-Devices/pceye-plus-access-windows-control/

Yay! I just completed my 1600 ModelTalker sentence recordings. I found it best to move on after two or three attempts at difficult sentences the go back to all the 'yellows' at the end. The last 30...

I think the charge ($100 = £80) only applies when you want to download your finished voice. You click on the 'Voices' tab then on 'Make Payment'.

I was wondering if any special hardware was...

I am now making reasonable progress with MTVR (ModelTalker Voice Recorder) and I have recorded 400 of the 1600 sentences required. For forward planning purposes, can anyone tell me what happens when...

I had all sorts of problems with the web-based version of the recorder, but when I switched to the stand-alone version MTVR I managed a lot better. There is a link to download MTVR on the ModelTalker...

I have been keeping a journal since I had a stroke 20 years ago. I find it very therapeutic in helping to organize my thoughts.

I have also written two novels.

I have been receiving the lower rate of AA for a couple of years because of a stroke. Being a pensioner, it certainly helps and it doesn't count against Pension Credit, unlike Carers Allowance. Now...

I think my voice has deteriorated to the point where I will need to use an actor's voice. These are available at http://www.modeltalker.org/demo

I completed my ten test sentences on ModelTalker today. I had a few greens and a lot of yellows but no reds.

Does anybody know how long it takes for ModelTalker to respond?

I just started working with ModelTalker today, mainly getting things set up. In the next few days I will try recording and submitting my 10 model sentences.

The Southampton MND team is world class. After a preliminary diagnosis in Portsmouth, I was sent to Southampton because they could do all the tests much quicker as an in-store.

Hayling Island is a...

Thank you all for your warm welcome and kind words.

I'm actually fairly relaxed about the diagnosis. After all there is not much I could have done to prevent it and nothing I can do about it so I think staying positive is the best approach.

I live...