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  1. Replies
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    Doug, itís an amazing programme, itís so less...

    Doug, itís an amazing programme, itís so less daunting than modal talker and so much easier to use, I was going great guns until I got a dreaded cold and it damaged my voice so much so I canít...
  2. Thread: So so tired

    by Hayls
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    Oh, never thought of that, Iíll see how I am...

    Oh, never thought of that, Iíll see how I am tomorrow, thank you ;)
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    Being a community carer before all this I can...

    Being a community carer before all this I can advise that a care plan review can be reviewed when there is a change of someoneís condition or circumstances to ensure someoneís care needs are being...
  4. Thread: So so tired

    by Hayls
    Replies
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    6,736

    Thank you Kayleigh and Ellie for your support,...

    Thank you Kayleigh and Ellie for your support, itís just been a sudden change and got me worried, Iíve found I canít fall asleep during day but my body feels tired, Iím keeping my fingers crossed for...
  5. Thread: So so tired

    by Hayls
    Replies
    45
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    6,736

    Thank you for commenting on this thread, Iíve...

    Thank you for commenting on this thread, Iíve read over time that tiredness can affect us all differently but Iíve been very lucky in that I find as the day goes on the tiredness increases however I...
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    My good news well, I think itís hilarious but I...

    My good news well, I think itís hilarious but I think itís my EL as it is still causing havoc, Iím finding new things I CANíT do everyday but the best one yet is Eye Spy ;)) I get so overwhelmed when...
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    Oh Wow Pam Ayers, sheís a legend in my household,...

    Oh Wow Pam Ayers, sheís a legend in my household, bravo Kayleigh, nothing like a good belly laugh on a Saturday morning, youíve worked your magic again ;)
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    Kayleigh, that was very good Ďreceptioní pmsl ...

    Kayleigh, that was very good Ďreceptioní pmsl
    Deb, we sure did ;)
    Lynne awww thank you, things are on the up ;)
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    Dina, That is freaking awesome news, wohoo,...

    Dina,

    That is freaking awesome news, wohoo, yippee, absolutely fantastic :))
    You are my something good today ;)
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    Hello Andy, I am very lucky to have people...

    Hello Andy,

    I am very lucky to have people both personally and professionally who are incredible supportive and as my speech was the first to be affected Iím sure the majority of my EL is pure...
  11. Ouch, a fall of any kind can have a huge impact...

    Ouch, a fall of any kind can have a huge impact in not only physically but emotionally, so glad you and your hero of a wife dusted yourself off and I certainly hope your both taking things easy to...
  12. Hello Sarah, thank you for starting this thread,...

    Hello Sarah, thank you for starting this thread, Iíve been diagnosed for 3 months and Iím feeling so drained and itís shocked me just how physically challenging everyday things are but after reading...
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    Thanks Rachel, Ellie, Shrew and Sheila, thank you...

    Thanks Rachel, Ellie, Shrew and Sheila, thank you all, you all make me see sense, having been a carer for 20+ years Iíve seen my fair share of side effects of coming off antidepressants and or...
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    The big day came and went, I blubbered the moment...

    The big day came and went, I blubbered the moment I started walking down the isle and saw everyoneís faces, I managed to not howl and lots of hankies were offered, the registrar was extremely...
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    Hello Lynne ;) I would agree that you need to...

    Hello Lynne ;) I would agree that you need to ensure he knows your thoughts and feelings too, not all good intentions are good, try to be honest with him. My Fiancť lives in a very small rural...
  16. Thread: Ventilation

    by Hayls
    Replies
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    18,763

    Dina, you are an inspirational person, I’ve just...

    Dina, you are an inspirational person, I’ve just managed to catch up with your thread, what a rollercoaster you’ve been on but so glad your resilience and determination has kept you going, so glad...
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    Thank you Deb, my mum was horrified at first at...

    Thank you Deb, my mum was horrified at first at the thought of that song for our walking out song but luckily she’s warmed to it ;)
    I had a surprise Hen Party last night and I ended up crying...
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    Andy and Ellie, you all have shown just how...

    Andy and Ellie, you all have shown just how determined we all are and I will certainly share any news good or bad in the hope that I can pass on anything I learn that would support anyone in...
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    I know this is an old post but I thought I’d...

    I know this is an old post but I thought I’d comment as my Dad was diagnosed in 2014 with FTD and he passed away August 2018 and I started having symptoms in September 2018 and diagnosed with MND...
  20. Thread: Peg consultation

    by Hayls
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    Awww thank you Ellie, your so right, heís always...

    Awww thank you Ellie, your so right, heís always checking Iím OK and every slight cough I have, heís a rabbit in headlights, heís worrying about me and Iím worrying about him worrying too much lol,...
  21. Thread: Peg consultation

    by Hayls
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    4,207

    Hello Cat, Yep, I live in Bournemouth but my...

    Hello Cat,
    Yep, I live in Bournemouth but my Fiancť lives west Dorset so Iím half and half, what part of the neck of the woods are you;)
  22. Thread: Peg consultation

    by Hayls
    Replies
    34
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    4,207

    My MND started with swallowing and voice and has...

    My MND started with swallowing and voice and has started to go to my limbs, luckily my breathing is still unaffected, my consultant has referred me to have one fitted ASAP as Iím struggling to drink...
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    Miranda and Terry, awww thank you both for...

    Miranda and Terry, awww thank you both for sharing your hints and tips, I think my Maid of Honour will have her hands full with my soggy tissues and my Mums lol My husband to be said that heíll...
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    Thank you Ellie, Lynne and Kayleigh for being so...

    Thank you Ellie, Lynne and Kayleigh for being so supportive, I think Iím still learning to try and understand and cope with these challenges, thank you all for helping me realise that family and...
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    Thank you Dina, Barry and Rachel for your support...

    Thank you Dina, Barry and Rachel for your support and advice, Iím sending out my wedding invitations this week, as Iíve not seen many people since my diagnosis and thinking how much Iíve changed Iím...
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