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Type: Posts; User: Shaun

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  1. Replies
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    Hi, Hayles post is also worth remembering about,...

    Hi, Hayles post is also worth remembering about, I have both Android and iPad , the android is a bit more temperamental
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    490

    Hmmmmm ,scratching my head, sorry I don't have...

    Hmmmmm ,scratching my head, sorry I don't have any other ideas
    You are showing basic profile details , interests, diagnosis location etc,,
    Has anyone else out got a suggestion?
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    Beemer It's to do with number of posts as you...

    Beemer
    It's to do with number of posts as you have gone past 5 today you should now have access
    Shaun
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    765

    Hello DB Sorry you've had to join us, but...

    Hello DB
    Sorry you've had to join us, but hopefully knowing that others have gone through the same rollercoaster of thoughts and worries, you know you are not alone. Acceptance is hard but try to...
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    Hello Lee , thanks for the 'The Gift' of your...

    Hello Lee , thanks for the 'The Gift' of your blog, just to keep the Paul Weller theme going,
    Just to ,'start' it's good that you have 'All mod cons' that keep you 'Mr Clean'
    'that's...
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    Hi on a slightly positive note, My local council...

    Hi on a slightly positive note, My local council are building 14,yes14 bungalows, specially adapted for disabled, wide door ways, open plan, wet room etc, however they are 50k more than a standard...
  7. Thread: Water Cooler

    by Shaun
    Replies
    4
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    1,027

    Hi DD Have you thought about a sensor tap, have...

    Hi DD
    Have you thought about a sensor tap, have a look at
    http://www.uktap.co.uk/led-spout-taps/297-sensor-tap-automatic-touchless-chrome-led-kitchen-tap.html, (others are available)
    It's just...
  8. Thread: Flail arm

    by Shaun
    Replies
    31
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    8,580

    Hello Barry I'm not sure how I'm going to fair...

    Hello Barry
    I'm not sure how I'm going to fair this season as my shoulder is playing up but determined to try, can always rely on ibuprofen and codeine to numb the pain, it worked last year.
    Whilst...
  9. Thread: Flail arm

    by Shaun
    Replies
    31
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    8,580

    Hello DD, Thanks for letting me, so hopefully...

    Hello DD,
    Thanks for letting me, so hopefully I've got a couple of years of golf left, have just enough grip on right hand,
    Never got faciclations in my arms but they have started in my legs over...
  10. Thread: New to site

    by Shaun
    Replies
    6
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    1,008

    Hello Jerry Sorry you've had to join but I have...

    Hello Jerry
    Sorry you've had to join but I have found lots of help and hints and tips on this forum from people who know what you are going through
    S
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    Hello Arta I was diagnosed 4month's ago and it's...

    Hello Arta
    I was diagnosed 4month's ago and it's information overload ,I spent all of December planning everything from pet insurance plans to funeral plans and it was getting me down, so I...
  12. Thread: New Guy :)

    by Shaun
    Replies
    11
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    2,601

    Hello Beemer the dreaded buttons, have you spoke...

    Hello Beemer
    the dreaded buttons, have you spoke with your MNDA visitor, they may be contact with a local tailor/seamstress that can make alterations, or they may be able to supply you or recommend...
  13. Thread: TV programme

    by Shaun
    Replies
    4
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    939

    Hello Barry , don't think it's just NE, there...

    Hello Barry ,
    don't think it's just NE, there will be little pockets all over the country, I live in the West, a unitary authority area with it's own CHC and I will potentially have to rely on MNDA...
  14. Thread: Flail arm

    by Shaun
    Replies
    31
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    8,580

    Hello HC & DD Flail limb diagnosed in November,...

    Hello HC & DD
    Flail limb diagnosed in November, had two years of hand and shoulder issues before getting it looked at.
    13 years , can I ask DD , how you are? My cons says I have slow progression...
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    2,188

    Hello Andy Regarding money, only because, just...

    Hello Andy
    Regarding money, only because, just been through this with my in-laws (alzheimers, all go in our family) make sure it goes into your partner's account , social services cant touch it. We...
  16. Thread: ALS for Dummies

    by Shaun
    Replies
    2
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    806

    Hello Doug Thanks for posting the link, some...

    Hello Doug
    Thanks for posting the link, some interesting ideas and blunt personal points from him. Perhaps more suited for those of us at the beginning of this journey, as many of the senior...
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    Hello Andy I'm in similar circumstances recently...

    Hello Andy
    I'm in similar circumstances recently diagnosed, for the first few weeks it all you can think about, it does ease a bit, once you accept it and more information becomes availble, the guys...
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    Hello all, thanks for all the advice, There are...

    Hello all, thanks for all the advice,
    There are 2 care centres both within an hours drive, I thought these were for people who lived there, didn't realise they were open to all.
    I have looked at...
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    Hello Lynne My neurologist is part of the...

    Hello Lynne
    My neurologist is part of the medicine for elderly department ,so an add-on for MS and MND customers (don't like the patient word) and I'm only 58
    When I asked him about OT he suggested...
  20. Replies
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    Advise please,next steps

    Hello MND connect
    Background summary: diagnosed Nov 2019, ALS flail limb (2 years undiagnosed). Slow progression
    No immediate concerns, carrying on pretty normally, still working.
    Have seen...
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    Hello again Jacqui? Just thinking about your...

    Hello again Jacqui?
    Just thinking about your chewing, perhaps they considered swalllowing may cause issues, riluzole can be crushed but think it may not be as good. It is monitored for liver and...
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    Hi Regarding cost of riluzole (Rilutek) 1x56...

    Hi
    Regarding cost of riluzole (Rilutek) 1x56 50mg . Just under a month's dosage is 242.39 (excl VAT)
    My consultant prescribed me 3 month's worth on diagnosis day, bargain for prescription fee of...
  23. Thread: New Guy :)

    by Shaun
    Replies
    11
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    2,601

    Hello Beemer I have recently been diagnosed and...

    Hello Beemer
    I have recently been diagnosed and have been mulling over the same question, I'm not too bad at the moment, spilt hands, slight limp, and some restriction on my shoulder, but I sit at...
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    Thankyou all for your comments, I'm sure I'll...

    Thankyou all for your comments, I'm sure I'll have some questions to ask as time goes on.(hopefully...... no, definitely)
    Shaun
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    Recently diagnosed

    Hello I was diagnosed early November 2019 with ALS I had originally gone to the GP because of cramping in my hands and difficulty in using a knife and fork, laces and buttons, and more importantly I...
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