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  1. Replies
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    Hi there I have tried to make contact through...

    Hi there

    I have tried to make contact through mnd connect for them to contact you with my details on the sale of the wheelchair

    Many thanks

    Tony
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    Hi Terry, Many thanks for the information. Is...

    Hi Terry,

    Many thanks for the information. Is there any way that I can contact Sam’s wife directly. I am aware that I should not post my phone number or email on the forum.
    I would most welcome...
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    Hi Sammy, I am sorry to hear about your...

    Hi Sammy,

    I am sorry to hear about your husband.

    My name is Tony and I currently suffer from MND. I read with interest on the availability of the wheelchair. Please may I ask how tall was your...
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    As suggested here is a picture of the leg braces...

    As suggested here is a picture of the leg braces they were purchased from the Ladbroke clinic near Birmingham 994
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    Knee and foot orthotics

    Hi everyone,

    I have a pair of full-length knee and foot orthotics. They are a full length leg brace which encompasses support from the feet to the thigh to enable a person to stand. I am unable...
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    Hi everyone Thank you for all of your comments...

    Hi everyone

    Thank you for all of your comments and advice I have just had an OT advisor round who has assessed my needs and will help in providing a solution.

    Many thanks to you all

    Tony
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    Advice on mattresses

    Hi everyone
    I am experiencing pain in my hips and lower back while sleeping at night. I sleep on my back as I cannot move throughout the night. I have recently started to experience pain in my hips...
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    Voluntary care advisor visit

    Had a meeting this week with Brenda a local MND care advisor.

    What a fantastic lady, she provided me with lots of information since my diagnosis in January. She has an in-depth knowledge of MND...
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    Hi Kayleigh Thanks for kind words and info...

    Hi Kayleigh
    Thanks for kind words and info
    Cheers Tony
  10. Thread: Local Group

    by Spitfire
    Replies
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    1,567

    Hi Terry, I use an iPad as I have the use of one...

    Hi Terry,
    I use an iPad as I have the use of one hand funnily enough to type albeit slowly.
    Cheer Tony
  11. Thread: Local Group

    by Spitfire
    Replies
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    Hi Terry Once again thanks Cheers Tony

    Hi Terry
    Once again thanks
    Cheers Tony
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    Hi Terry and thanks. Yeh it took time but they...

    Hi Terry and thanks.
    Yeh it took time but they were following a Muscular dystrophy path which turned out to be a dead end
  13. Thread: Local Group

    by Spitfire
    Replies
    4
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    1,567

    Local Group

    Hi Everyone
    New to the forum just been diagnosed.
    Can anyone advise of a group local to Peterborough that meet Any help appreciated.
    Cheers
    Tony
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    Just been diagnosed

    Hi Everyone,
    After nearly 4 years of tests and degeneration to the point of paralysis from the neck down, I have been advised of MND.
    I wasnít shocked as and it was a relief to have a formal...
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