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  1. Thread: bereavment

    by Caljake
    Replies
    30
    Views
    8,393

    Bereavement

    Hi guys, sadly my Husband passed away on the 1st March, he was yo get his peg fitted the week before, but they didnt think he was strong enough. I don't know if this got to him but he didnt feel like...
  2. Replies
    23
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    7,339

    Hi no I haven't had a carers assessment, is it...

    Hi no I haven't had a carers assessment, is it mandatory ? Liz
  3. Thread: Holidays

    by Caljake
    Replies
    29
    Views
    9,484

    Thank you everyone for your replies ,he keeps...

    Thank you everyone for your replies ,he keeps finding excuses not to go anywhere. A neurophycologist got in touch to see if he needed a chat,he said he will ,I think he needs it . He has other...
  4. Thread: Holidays

    by Caljake
    Replies
    13
    Views
    4,319

    Hi thank you so much everyone for getting back to...

    Hi thank you so much everyone for getting back to me. I have had a call from McMillan to say he has been referred to them, he has been asked if he wanted cares as well. But he's told them we're fine...
  5. Thread: Holidays

    by Caljake
    Replies
    13
    Views
    4,319

    Hi again,I meant to ask does anyone still swim...

    Hi again,I meant to ask does anyone still swim ,Steve thinks he won't be able to do it again. He has an indwelling catheter and will be getting a peg fitted soon ,but even without these as he can't...
  6. Thread: Holidays

    by Caljake
    Replies
    13
    Views
    4,319

    Hi John That gives me hope,I think we're both in...

    Hi John
    That gives me hope,I think we're both in a bit of a rut. I've tried to arrange outings for Steve,but he changes his mind at the last minute. I think he's still coming to terms with every...
  7. Thread: Holidays

    by Caljake
    Replies
    13
    Views
    4,319

    Holidays

    Hi everyone
    I have asked before about holidays as I wasn't sure about what made it easier,, or where was best to go.
    We still haven't booked anywhere as I'm concerned that Steve gets uncomfortable...
  8. Replies
    27
    Views
    8,784

    Hi guys My husband and I have bid on a few...

    Hi guys
    My husband and I have bid on a few flats that we thought were perfect. But apparently they didn't have a wet room so we weren't considered. I know a wet room would help but to us it's the...
  9. Thread: Bowel problems

    by Caljake
    Replies
    22
    Views
    4,301

    Hi Ellie,Thanks for getting back to me. He had...

    Hi Ellie,Thanks for getting back to me. He had movical prescribed for him. It says twice a day but just taking one makes him very loose. I've tried alternate days but still the same result. He...
  10. Thread: Bowel problems

    by Caljake
    Replies
    22
    Views
    4,301

    Hi Ellie,Thanks for getting back to me. He had...

    Hi Ellie,Thanks for getting back to me. He had movical prescribed for him. It says twice a day but just taking one makes him very loose. I've tried alternate days but still the same result. He...
  11. Thread: Bowel problems

    by Caljake
    Replies
    22
    Views
    4,301

    Thanks Terry x

    Thanks Terry x
  12. Thread: Bowel problems

    by Caljake
    Replies
    22
    Views
    4,301

    Hi ,my husband was diagnosed in February, he's...

    Hi ,my husband was diagnosed in February, he's had health issues for years . They actually thought it was msa (multiple systems atrophy)for over a year. He's getting constipated,doesn't go for a few...
  13. Thread: Holidays

    by Caljake
    Replies
    29
    Views
    9,484

    Hi than a everyone for the info,steves not been...

    Hi than a everyone for the info,steves not been great lately ,He's in his wheelchair most if time now. Also his breathing and swallowing are deteriating pretty fast. He's waiting for a peg,he feels...
  14. Replies
    2
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    2,294

    Hi ,my husband was diagnosed with als in...

    Hi ,my husband was diagnosed with als in February. He had symptoms for a couple if years without a diagnosis.
    At first they said Parkinson's then parkinsonism type symptoms. Finally after a year his...
  15. Replies
    28
    Views
    7,172

    Hi I have a similar problem but not with a hoist...

    Hi I have a similar problem but not with a hoist ,but a peg feed. It's been explained to him that it's best to get it now rather than later,but he's quite adamant that he doesn't want it.

    I worry...
  16. Replies
    16
    Views
    4,116

    Hi guys,does everyone become 'locked In. Steve my...

    Hi guys,does everyone become 'locked In. Steve my husband can't stand on his own and his ability to do things with his hands is getting harder,He was diagnosed February this year,they previously...
  17. Thread: Holidays

    by Caljake
    Replies
    29
    Views
    9,484

    Thank you Barry, I think I'll look into a...

    Thank you Barry, I think I'll look into a cruise,. Do we need a medical note before we book
  18. Replies
    19
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    9,132

    Hi there It's every 12 week they change the...

    Hi there It's every 12 week they change the catheter. I only know this as my husband has one and I just rang up to see when they were coming . The nurses just ordered the leg and overnight bags ....
  19. Thread: Holidays

    by Caljake
    Replies
    29
    Views
    9,484

    Holidays

    Hi guys
    How do you all cope with Holidays, my husband would love a break abroad. We usually go abroad every year ,we had to cancel 2 last year. I'm just worried how we'd cope , I thought about a...
  20. Thread: Tired

    by Caljake
    Replies
    8
    Views
    2,563

    Miss not kids

    Miss not kids
  21. Thread: Tired

    by Caljake
    Replies
    8
    Views
    2,563

    Sorry just noticed all the kids spelling,blooming...

    Sorry just noticed all the kids spelling,blooming predictive tx
  22. Thread: Tired

    by Caljake
    Replies
    8
    Views
    2,563

    Thanks everyone,no he doesn't have a Mnd nurse ....

    Thanks everyone,no he doesn't have a Mnd nurse . The diayruct nurses came out to assess him,they'll be back in June. The ot does ring to see if we need anything. Besides that most if what I know is...
  23. Thread: Tired

    by Caljake
    Replies
    8
    Views
    2,563

    Thanks guys ,What's chc ? We have an occupational...

    Thanks guys ,What's chc ? We have an occupational therapist who rings occasionally to see how we are . We were expecting the district nurse yesterday for Steve's catheter but she didn't turn up,I'm...
  24. Thread: Tired

    by Caljake
    Replies
    8
    Views
    2,563

    Tired

    Hi ,I'm just having a rant ,my husband was diagnosed in Feb this year with Als and Als related dementia. He had been showing symptoms for 3 to 4 year. He has an enlarged heart,copd,chrohns...
  25. Replies
    16
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    4,116

    Hi can I ask what does 'locked in ' mean. My...

    Hi can I ask what does 'locked in ' mean. My husband has als but I've never heard of this thanks Liz
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