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  1. Thread: London show

    by Pinklollie
    Replies
    16
    Views
    7,493

    Hi Pinkelle Another thing you might want to...

    Hi Pinkelle

    Another thing you might want to check, if 2 of you are in wheelchairs some theatres offer tickets free ickets to anyone one who accompany you as ‘carers’ might be worth doing this and...
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    6,312

    Night owl My Mum gets Continuing Healthcare. It...

    Night owl
    My Mum gets Continuing Healthcare. It is not means tested at all so don’t be worried about how much money your Mam does or doesn’t have in the bank, it is irrelevant
    CHC is awarded on a...
  3. Replies
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    2,196

    Thanks Barry x

    Thanks Barry x
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    2,196

    Thanks Stev50 My Mum is at home in an adapted...

    Thanks Stev50
    My Mum is at home in an adapted extension paid for by the CCG so it seems ludicrous to now suggest putting her in a nursing home. We have been told that if we can no longer provide the...
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    2,196

    Has anyone ever fought the CCG?

    My Mum is in receipt of Continuing Healthcare (CHC) funded by the Clinical Commission Group (CCG) her main carer was my Dad who sadly passed away unexpectedly at Christmas. This has left Mum without...
  6. Replies
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    4,346

    Family in Crisis

    Looking for advice please...
    My Mum has had MND since 2014 and is currently living at home in an adapted extension paid for by our local council. Although she is paralysed and bedbound and is on NIV...
  7. Replies
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    5,082

    Thank you Miranda and Terry xx

    Thank you Miranda and Terry xx
  8. Replies
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    5,082

    I know Ellie, fancy that, my Mum surviving longer...

    I know Ellie, fancy that, my Mum surviving longer than 3 months, how dare she!!!!
    Totally barbaric. If the CCG had taken the time to properly look at my Mums case and speak to health professionals...
  9. Replies
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    5,082

    Hi kc Your situation is mirroring my Mums at...

    Hi kc

    Your situation is mirroring my Mums at the moment, my Mum was in hospital last November, she already had CHC but only had carers coming in 2 times a day with 4 night sits. The hospital felt...
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    6,303

    Hi Tabby there is a support group for South...

    Hi Tabby there is a support group for South Manchester at Alma Lodge in Stockport on 23rd February at 7pm. Hope this helps. Xx
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    9,801

    Pam, my heart is breaking for you. What a...

    Pam, my heart is breaking for you. What a wonderful daughter you have been. Take comfort in the fact that your Dad is no longer suffering and you are no longer having to watch that suffering. Get the...
  12. Replies
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    Big hugs Lorret xxx

    Big hugs Lorret xxx
  13. Thread: Thanks

    by Pinklollie
    Replies
    7
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    3,734

    You total cutie! Thanks Mike. Big hugs xxx

    You total cutie!

    Thanks Mike. Big hugs xxx
  14. Replies
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    8,903

    The trouble is my Mum prefers me to do the jobs...

    The trouble is my Mum prefers me to do the jobs that the carers could do, like washing her hair, cooking her food, changing her bed, emptying the commode etc. etc. The carers are amazing and often...
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    8,903

    Thank you Graham, Nettie and all who replied. I...

    Thank you Graham, Nettie and all who replied.
    I am taking your advice on board. I have to make a change.

    Much love xx
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    Thank you as ever for your caring advice. Feeling...

    Thank you as ever for your caring advice. Feeling a little calmer today, I think you're right Terry, I feel Mum may have to lower her expectations even though I wish with all my heart that I could be...
  17. Replies
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    8,903

    sounding off

    Hi All

    I haven't posted for a while but really need to get some things off my chest, I know some people reading this will probably think I'm selfish and unfeeling, please don't post any negative...
  18. Replies
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    4,169

    Hi there If your husband is willing to have...

    Hi there

    If your husband is willing to have carers help out then do it NOW. My Mum resisted carers for a while no matter how hard I tried to persuade her. In the end we had to get an emergency...
  19. Thread: Our Story

    by Pinklollie
    Replies
    7
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    3,944

    Amanda = Angel Sending you positivity, love...

    Amanda = Angel

    Sending you positivity, love and muchos muchos respect.

    Big hugs xx
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    Thanks Candle, I've taken your advice and rung...

    Thanks Candle, I've taken your advice and rung again today to clarify exactly what Mum needs. The gentleman booking it was REALLY helpful, he's made a note if Mums weight and made sure that a 3 man...
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    Hospital transport

    Hi All

    I've booked hospital transport for my Mum today, we haven't had to use it before as Mum was able to get in and out of the car with help but unfortunately her mobility has rapidly declined...
  22. Thread: Meltdown

    by Pinklollie
    Replies
    31
    Views
    12,884

    Freesia Sorry for the late reply! I totally...

    Freesia

    Sorry for the late reply!

    I totally feel your pain, it sounds like you're at the end of your rope. I sometimes feel exactly the same, it isn't necessarily caring for my Mum that's...
  23. Replies
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    I'm in Old Trafford but Mum is in Flixton xx

    I'm in Old Trafford but Mum is in Flixton xx
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    Spring, what a great idea, I will definitely take...

    Spring, what a great idea, I will definitely take up your lovely suggestion! Xx

    Lynne, I am very lucky to come from a family who tell each other all the time how much we mean to each other so I...
  25. Thread: Grieving

    by Pinklollie
    Replies
    334
    Views
    114,699

    This thread is the saddest thread. Reading...

    This thread is the saddest thread.

    Reading everyone's beautiful words of support and comfort has had me wailing with sorrow and yet I can't stop reading it!

    Perhaps it's because it's...
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