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    Sad loss of my husband Richard

    I just wanted to say thank you to this forum for words of support over the last year when I have needed them.
    Richard sadly passed away on Sunday morning, he never got out of hospital from being...
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    Thanks Mick and Ellie for advice, Richard...

    Thanks Mick and Ellie for advice,

    Richard seems to want to keep a catheter due to his problems using a bottle. I was just concerned as you say Mick about having possibilities for further...
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    Long term catheters

    Hi all,

    I was just wondering if anyone can give me advice on the use of long term catheters.

    My husband Richard is in hospital at the moment since the 7th March. He has been on a catheter...
  4. Thanks Ellie, He has definitely improved in that...

    Thanks Ellie,
    He has definitely improved in that he is not in pain anymore and infection is under control thankfully.
    He has been nil by mouth since Thursday last week when he was taken into...
  5. Hi all, thanks for your replies and good wishes x...

    Hi all, thanks for your replies and good wishes x

    Richard has now been moved to a urology ward and is in a side room rather than a bay. This is quieter for him and the difficulty in speaking...
  6. Unrelated Kidney stone diagnosis after starting PEG feeds

    Hi all,
    Just wanted to update in case anyone read about the start of my husband Richards PEG feed and issues he was having and are starting themselves, didn't want anyone to worry unduly about...
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    I said to the GP that it had been mentioned to me...

    I said to the GP that it had been mentioned to me that it was unusual to start with peg feed in the manner that Richard has. She didn't think it was anything to do with that but I will call dietician...
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    Hi Ellie thanks for that advise, will try the...

    Hi Ellie thanks for that advise, will try the pillow and check with OT again about sitting position.

    Richard only managed 1200ml last night. This morning he woke with pain in his lower right side...
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    Thanks Sarah, Will let you know. Best of luck...

    Thanks Sarah,

    Will let you know. Best of luck with your start with the feed, hope all goes well.

    Love Amanda x
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    Hi Everyone, Thanks for your replies x It...

    Hi Everyone,

    Thanks for your replies x

    It is a 1500ml bottle Ellie and I was told to flush at the start and finish, nothing mentioned about part way through.

    Hopefully Richard will sleep...
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    First night of PEG feed

    Hi all,
    Firstly Sarah I hope from your original post about peg feeding you are doing ok x

    Last night was the first feed I sorted for Richard after being shown how to work the system yesterday...
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    Thanks Ellie, I`m sure once we get into the swing...

    Thanks Ellie, I`m sure once we get into the swing of things it will be as you say x

    The dietician thought overnight might be better so that Richard could still eat food orally during the day as...
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    Hi Sarah, my husband Richard is about to start...

    Hi Sarah, my husband Richard is about to start over night feeds too. He was diagnosed last March and over the last year steadily things have got worse. He has problems swallowing but still eats...
  14. Thanks Ellie, yes we were glad it wasn't. Not...

    Thanks Ellie, yes we were glad it wasn't. Not sure what the rash is maybe some reaction to medication, was vague but said this cream would make more comfortable. The OT has been this week, we now...
  15. Unfortunately our stairs could not accommodate a...

    Unfortunately our stairs could not accommodate a stair lift, so it is great we have a toilet downstairs too. I hope that when the time comes Shrew, hopefully a good time away, you are able to sort...
  16. Thank you Terry. :-)

    Thank you Terry. :-)
  17. Thank you Debbie, love to you too xx

    Thank you Debbie, love to you too xx
  18. So the doctor today gave us some cream for...

    So the doctor today gave us some cream for Richards problem, which thankfully he says isn't a pressure sore. Hopefully it will clear the problem up and make him more comfortable in the next few days....
  19. Thank you everyone for replying, I have the OT...

    Thank you everyone for replying, I have the OT coming tomorrow afternoon and I have a doctors appointment in the morning so hopefully will get some medical advice too. Thank you all for your time in...
  20. Skin discolouration and uncomfortable sitting

    Hi everyone,
    Can anyone give me advice on something I have noted with my husband in last few days.
    He is getting much weaker and now I have to help him in the shower and drying himself. I noticed...
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    Thank you everyone for your responses, much...

    Thank you everyone for your responses, much appreciated, x
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    Thanks, will check it out :-)

    Thanks, will check it out :-)
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    Thanks for reply Fru. I`ll check with our OT,...

    Thanks for reply Fru. I`ll check with our OT, might be different in different areas perhaps. Fingers crossed for no further falls for either of our husbands :-) Best wishes Amanda x
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    personal alarms

    Can anyone please recommend a service that are contactable at a press of a button on a pendant or wristband worn by a person with MND
    Recently Richard, my husband fell in our shower room, he wasn't...
  25. Thanks for reply Ali_Chris, Richard is getting...

    Thanks for reply Ali_Chris, Richard is getting used to wearing it at night for at least the 4 hours so hopefully this, as you say, will give him a health benefit. He is gradually becoming weaker but...
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