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  1. Replies
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    935

    Hello all, We have posted a response on the...

    Hello all,

    We have posted a response on the RHC4 thread, which you can find here.

    Many thanks,

    Forum admin,
  2. Thread: Rch4

    by Admin_MND
    Replies
    366
    Views
    89,656

    We apologise for our delayed response to you all....

    We apologise for our delayed response to you all. We have wanted to take the time to properly review the ongoing issues and make sure we are allowing people the right to freedom of expression.

    We...
  3. Thread: Rch4

    by Admin_MND
    Replies
    366
    Views
    89,656

    Good afternoon, We’d like to remind all...

    Good afternoon,

    We’d like to remind all members that this is an open forum supporting a wide range of topics and all users are welcome to comment and contribute. No thread is exclusive to a...
  4. Thread: inbox

    by Admin_MND
    Replies
    8
    Views
    1,154

    Hi Shrew, Once you delete some of your...

    Hi Shrew,

    Once you delete some of your messages then it should free up space for you to receive new messages. Has this worked for you?

    Your 'sent items' folder also count to the full inbox so...
  5. Good morning everyone, Thank you for your...

    Good morning everyone,

    Thank you for your feedback so far. We would like to reiterate that this is by no means a permanent solution and just something we are trialing.

    Many of you have...
  6. Hi Barry, Yes it will indeed apply to...

    Hi Barry,

    Yes it will indeed apply to Android, iSO and other mobile operating systems.

    Thank you.
  7. Changes to the smart phone version of the forum

    From today, we will be trialing a mobile version of the forum, so you will see a change to format if you access it from a smart phone.

    This is in response to the feedback we received, and because...
  8. Volunteers wanted BBC3 article - Post contains reference to funerals

    Please be aware this post prompts discussions about funerals.

    The Association has been contacted by freelance journalist, Erica Buist, who is looking for personal experiences to help with an...
  9. Replies
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    Have your say

    As part of a bigger project we are looking at the services and support we offer to people with and affected by MND and we need to know what you think. Are we getting it right? Are we meeting your...
  10. Hi all The new website is now available at...

    Hi all

    The new website is now available at www.mndassociation.org!
  11. New MND Association website launching Tuesday 14 May

    Dear all,

    We’re making some big changes to our main website on Tuesday 14 May.

    The new website – which you’ll find at our familiar address www.mndassociation.org – has improved navigation...
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    Dear Diary…

    People affected by MND are being invited to leave a written legacy for future generations by recording details of a day in their life as part of a long-standing social history project.

    The Mass...
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    Hi everyone, Thank you for your feedback on...

    Hi everyone,

    Thank you for your feedback on the issues raised below, particularly regarding using the forum on your phone. You are right Catsparkle, it is because it is a desktop site running on...
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    Housing Adaptations - We need your stories

    Have you struggled to get the adaptations to your home that you need?

    If you are living with or affected by MND and have had adaptations to your home, or have had to move to an accessible home,...
  15. Thread: Riluzole

    by Admin_MND
    Replies
    19
    Views
    4,233

    Hi all, We have an update on the a Riluzole...

    Hi all,

    We have an update on the a Riluzole supply issue.

    The MND Association has made the Department of Health and Social Care (DHSC) and manufacturers aware of the issues being raised with...
  16. Replies
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    2,355

    Hi Terry, Thanks for submitting this, we...

    Hi Terry,

    Thanks for submitting this, we think its an interesting idea and something we will most definitely explore and speak to our technical team about.

    Many thanks,

    Forum...
  17. Thread: Riluzole

    by Admin_MND
    Replies
    19
    Views
    4,233

    Riluzole

    We are aware of a reduced supply of the drug riluzole, this is due to some manufacturers ceasing production.

    We are currently liaising with the Department of Health and Social Care and...
  18. Replies
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    2,418

    Hello all, I just wanted to confirm to you...

    Hello all,

    I just wanted to confirm to you all that the new website will not change or effect the forum, as they are two separate sites. All the mechanics, posts and threads of the forum will...
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    NICE Guidelines

    Have you seen our pocket sized booklet to support discussions with health and social care professionals?

    The information in the booklet is taken from the NICE guidelines on MND, which provides...
  20. Replies
    6
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    2,250

    Hi Shrew, We're really sorry to hear about...

    Hi Shrew,

    We're really sorry to hear about this, and the team would like to get in touch with you to follow this up. If you could please email your contact details to...
  21. Replies
    6
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    Scrap 6 Months

    Hello everyone,

    Below are a few updates from the Campaigns team on Scrap 6 Months.

    New Video
    We’re proud to be launching Jack and Rose’s story, a video showing why our Scrap 6 Months...
  22. Improving MND Care Survey - we'd like to hear your views

    We've launched our latest Improving MND Care Survey, focusing on people living with motor neurone disease and their carers.

    The survey asks questions around health, social and continuing care...
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    Physical Activity Study

    The Association is supporting a project which aims to develop new ways for people living with rare conditions (including MND) to be as physically active as they can and want to be. Exercise can have...
  24. Michael’s Story – why our Scrap 6 Months campaign is so important

    We have launched ‘Michael’s Story’, a video to show why our Scrap 6 Months campaign is so important. You can watch the video here.

    Please sign our petition to the Government, calling on them to...
  25. Thread: CuATSM ?

    by Admin_MND
    Replies
    26
    Views
    5,150

    Good afternoon all, Thank you to Ellie for...

    Good afternoon all,

    Thank you to Ellie for sharing the research teams recent blog regarding CuATSM.. We also wanted to give a brief overview to all users of the forum.

    Recent press coverage...
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