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    Thankyou Halys and Ellie I will certainly be...

    Thankyou Halys and Ellie I will certainly be asking the OT about this after the bank holiday.
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    Thanks Lynne, hopefully when his OT is able to...

    Thanks Lynne, hopefully when his OT is able to visit again she maybe able to help us out with something. Itís hard to believe this time last year we hadnít got a clue there was anything wrong.
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    He has been offered a hospital bed but due to it...

    He has been offered a hospital bed but due to it being a single he is reluctant to have one as he would have to sleep on his own. He has a grab rail but is loosing strength in his arms so I pull him...
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    My partner has had a inflatable lift by his OT ...

    My partner has had a inflatable lift by his OT that fits under his pillow in bed and inflated to sit him up when getting out of bed. It helps but itís still a struggle for him. Every little helps...
  5. Thread: New

    by Jo jo
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    We do have terminal illness cover but you have to...

    We do have terminal illness cover but you have to have 12 months or less to live to be able to claim it and due to the neurologist saying it could be months but could be years they wonít pay it.
  6. Thread: New

    by Jo jo
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    Hi everyone hope everyone is coping as best they...

    Hi everyone hope everyone is coping as best they can. My partner is now using a wheel chair and is loosing strength in his right arm and hand. His neurologist wonít say what MND he has als or pls ....
  7. Thread: New

    by Jo jo
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    He had a flying visit from the OT but she said...

    He had a flying visit from the OT but she said she will come and see him again on the 7th. I will ask her who else should be involved and when they might come and see him. Just got back from the...
  8. Thread: New

    by Jo jo
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    How does he bank his voice

    How does he bank his voice
  9. Thread: New

    by Jo jo
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    My partner has started to have a groof voice is...

    My partner has started to have a groof voice is this part of his MND he also says he has a tickley cough. I hate MND.
  10. Thread: Glial cells

    by Jo jo
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    Wouldnít it be a miracle. I pray everyday for a...

    Wouldnít it be a miracle. I pray everyday for a cure 🙏🙏🙏🙏
  11. Thread: New

    by Jo jo
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    That looks like something that would really help...

    That looks like something that would really help Doug Thankyou
  12. Thread: New

    by Jo jo
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    It has 4 wheels, brakes and a storage seat

    It has 4 wheels, brakes and a storage seat
  13. Thread: New

    by Jo jo
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    How do I add a photo

    How do I add a photo
  14. Thread: New

    by Jo jo
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    Thankyou everyone I have managed to find one on...

    Thankyou everyone I have managed to find one on Facebook as new 40 pounds so Iím collecting it later. You are all such lovely helpful people especially when I have no one else to ask. He could have...
  15. Thread: New

    by Jo jo
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    Thanks Lynne I will ask them on the 18th when...

    Thanks Lynne I will ask them on the 18th when they come.
  16. Thread: New

    by Jo jo
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    Hi all, my partner has had his first fall today....

    Hi all, my partner has had his first fall today. Absolutely heartbreaking. Heís using crutches but heís finding it hard to lift his right leg as his foot folds under and trips him up. First OT...
  17. Thread: New

    by Jo jo
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    Received a call today from an OT to book first...

    Received a call today from an OT to book first appointment still no news from anyone else they said we would get a call on Monday just gone. O well atleast something is happening now.
  18. Thread: New

    by Jo jo
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    Thankyou Kayleigh all the best to you xx

    Thankyou Kayleigh all the best to you xx
  19. Thread: New

    by Jo jo
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    I have just spoken to a lovely lady on that...

    I have just spoken to a lovely lady on that contact number and she is going to get someone to call me on Monday. She said we should have heard something by now from the team. Thankyou for the advice.
  20. Thread: New

    by Jo jo
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    Thankyou Kayleigh I didnít know these advisers...

    Thankyou Kayleigh I didnít know these advisers were local I will contact them tomorrow. I thought someone would have contacted us.
  21. Thread: New

    by Jo jo
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    Does anyone know how long after diagnosis do you...

    Does anyone know how long after diagnosis do you get to see any specialists. My partner was diagnosed on 2.10.19 and we are still waiting to hear from what the consultant called a team he will have...
  22. Thread: Sick pay

    by Jo jo
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    Sick pay

    Is my partner who has MND better to stop working or go sick financially. I work.
  23. Thread: New

    by Jo jo
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    Thank you

    Thank you
  24. Thread: New

    by Jo jo
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    Is the twitching killing more muscle if itís more...

    Is the twitching killing more muscle if itís more rapid. Some days his whole body including his nose is constantly twitching.
  25. Thread: New

    by Jo jo
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    Thankyou everyone and thanks lynne for your...

    Thankyou everyone and thanks lynne for your advice. My partner is going to try and join this group tonight. Itís good to talk to people that know as heís been recently diagnosed we really donít know...
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