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  1. Thread: tandem jump

    by Gillette
    Replies
    23
    Views
    800

    Well done, Maz. Your interview was great. You...

    Well done, Maz. Your interview was great. You certainly are helping to raise the profile of the MND Association and putting the "fun" into fundraising.
  2. Replies
    6
    Views
    106

    Hi Diamond and welcome to the forum. I can't...

    Hi Diamond and welcome to the forum.

    I can't really make any useful comments about your symptoms but I sincerely hope that you don't have MND. I also hope that the doctors soon manage to...
  3. Thread: hi

    by Gillette
    Replies
    18
    Views
    561

    Hi Maz, It's so hard when your body keeps...

    Hi Maz,
    It's so hard when your body keeps changing, but not for the better. I wish there was something amazing that I could say or do to help you cope with what's happening.
    MND stinks, doesn't it?
  4. Thread: hi

    by Gillette
    Replies
    18
    Views
    561

    Ha ha ha. Oh, what a disappointment! Just when I...

    Ha ha ha. Oh, what a disappointment! Just when I thought my luck was in!
  5. Replies
    13
    Views
    483

    Hi Gloslad and welcome to the forum. It is...

    Hi Gloslad and welcome to the forum.

    It is understandable that you are feeling confused and scared. I think most, if not all, of us on here have felt like that at times on our MND journey.

    Have...
  6. Thread: hi

    by Gillette
    Replies
    18
    Views
    561

    Ooh, I'm liking your thought for the day, Doug!...

    Ooh, I'm liking your thought for the day, Doug! Are you offering? Ha ha ha.
  7. Thread: hi

    by Gillette
    Replies
    18
    Views
    561

    Hi Maz, Yes, my feet are like blocks of ice,...

    Hi Maz,

    Yes, my feet are like blocks of ice, except when I am in bed. Having had very hot feet for about the last 35 years, it's still a novelty to have cold feet.
  8. Replies
    11
    Views
    500

    Hello Vix and welcome to the forum, although we...

    Hello Vix and welcome to the forum, although we are all sorry about your husband's diagnosis. Like you, it took me sometime to pluck up the courage to join.

    Have you and your husband been invited...
  9. Replies
    5
    Views
    400

    Hello Pen, It's sad to hear you are struggling...

    Hello Pen,

    It's sad to hear you are struggling with your grief. I can understand what you were getting at when you were talking about the counsellor at the palliative care unit.

    Grief is a...
  10. Thread: Falling !

    by Gillette
    Replies
    6
    Views
    361

    Hello Debbie, Sorry you have suffered a nasty...

    Hello Debbie,

    Sorry you have suffered a nasty fall. Thank goodness the paramedics realised that moving you to a stretcher would be too traumatic. It's good that your GP surgery are so helpful, as...
  11. Replies
    47
    Views
    7,865

    As I understand it, Andy M and Skyvano, you have...

    As I understand it, Andy M and Skyvano, you have each been told that you do not have ALS/MND. I think you should each be thankful for that and cross ALS/MND off your respective lists of possible...
  12. Thread: tandem jump

    by Gillette
    Replies
    23
    Views
    800

    That's an amazing thing to do! I hope you really...

    That's an amazing thing to do! I hope you really enjoy the jump - it's a fantastic feeling as you float down.
  13. Replies
    143
    Views
    10,539

    Hi Douglas, I have no problem with the word...

    Hi Douglas,

    I have no problem with the word 'alumni', in fact, I thought it was a good word to use. I just meant that it was understandable that knowing several of them had been in previously...
  14. Replies
    12
    Views
    1,092

    Hi Music Man's Wife, Oh, how frustrating for...

    Hi Music Man's Wife,

    Oh, how frustrating for you both. I agree with Terry's idea of asking the police to do a report. Would asking the local council for a dedicated disabled parking space be worth...
  15. Replies
    143
    Views
    10,539

    Is it a mixed ward? I can understand your...

    Is it a mixed ward?

    I can understand your feelings about the other patients but just remember, everyone's MND journey is different.

    Good news that your CO2 levels are coming down.
  16. Replies
    143
    Views
    10,539

    Hi Douglas, I hope things improve for you...

    Hi Douglas,

    I hope things improve for you soon.

    I should have thought the staff would be more knowledgeable, after all, Wythenshawe is supposed to be the specialist chest and breathing...
  17. Replies
    143
    Views
    10,539

    If Wythenshawe is like Salford Royal, the TV...

    If Wythenshawe is like Salford Royal, the TV costs a fortune and the wifi is restricted to 30 minute sessions - so annoying if you are trying to do something specific online.
  18. Thread: Meltdown

    by Gillette
    Replies
    53
    Views
    5,329

    Hi Terry, Deb, Sheila and Shrew, Thank you...

    Hi Terry, Deb, Sheila and Shrew,

    Thank you all. It really is a special sort of support on here, isn't it? Thanks, everyone. :o
  19. Replies
    143
    Views
    10,539

    Oh, Douglas, that's disappointing for you. I hope...

    Oh, Douglas, that's disappointing for you. I hope they get you sorted sooner than that.
  20. Thread: Meltdown

    by Gillette
    Replies
    53
    Views
    5,329

    Thank you, Kayleigh, that's a kind thing to say...

    Thank you, Kayleigh, that's a kind thing to say about me.

    Most of my carers are lovely: attentive and kind - not at all like the Poisoned Dwarf!

    I don't mind getting upset, but I do mind that...
  21. Thread: Meltdown

    by Gillette
    Replies
    53
    Views
    5,329

    Hi Ellie, I forgot about the time when I...

    Hi Ellie,

    I forgot about the time when I posted! I had woken with awful foot pain and it took a while for my partner to be able to get downstairs. Consequently, I was wide awake so I had a drink...
  22. Thread: Meltdown

    by Gillette
    Replies
    53
    Views
    5,329

    This post follows on from Terry's post about not...

    This post follows on from Terry's post about not getting upset as it doesn't do us any good.

    When I began this thread I talked about one of the carers (who I called "X"). I have discovered that,...
  23. Replies
    12
    Views
    1,367

    Hi Ellie, My Salsa has a lap belt which I do...

    Hi Ellie,

    My Salsa has a lap belt which I do use but I'm not sure about using one like the one you mentioned. I think it would take a while for me to come round to the idea of using it, but thank...
  24. Thread: house

    by Gillette
    Replies
    5
    Views
    501

    Hi Ben, Is your OT organising the hoist? Has...

    Hi Ben,

    Is your OT organising the hoist? Has it been confirmed that it's a ceiling hoist you need? There are also mobile hoists.

    My OT has organised a ceiling hoist for me which she has told me...
  25. Thank you for an interesting blog post, Onein400.

    Thank you for an interesting blog post, Onein400.
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