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Type: Posts; User: mndmarlon

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  1. Thread: Rch4

    by mndmarlon
    Replies
    400
    Views
    102,613

    Someone will pick it up and run with it someday,...

    Someone will pick it up and run with it someday, as the results are too good to miss on as an opportunity. It will cost a fair bit of money to get to trial but there is a big bucket load of money to...
  2. Thread: Rch4

    by mndmarlon
    Replies
    400
    Views
    102,613

    alfadoc, as Tim said, you are spot on with your...

    alfadoc, as Tim said, you are spot on with your evaluation.

    Pity that 'leaders' in ALS research, who have negatively commenting on the drug, cannot realise this fact and understand the damage...
  3. Thread: Rch4

    by mndmarlon
    Replies
    400
    Views
    102,613

    Kayleigh, You did not need to delete, perhaps...

    Kayleigh,

    You did not need to delete, perhaps I worded it too harshly. What I want to say is that there may be some good advice on 'Riluzole' on other threads as most of the RCH4 users don't take...
  4. Thread: Rch4

    by mndmarlon
    Replies
    400
    Views
    102,613

    Kayleigh, You are correct, RCH4 is still a...

    Kayleigh,

    You are correct, RCH4 is still a trial drug and needs to go to FDA trials. The 'RC Charity' who supply RCH4 to us, are trying to find sponsorship at the moment, to take it to further...
  5. Thread: Rch4

    by mndmarlon
    Replies
    400
    Views
    102,613

    It has been a while since last update from me on...

    It has been a while since last update from me on the forums.It is unbelievable to think we were holidaying in Mexico 3 years ago, before starting RCH4, and we had to move my wife around in a...
  6. Thread: Rch4

    by mndmarlon
    Replies
    400
    Views
    102,613

    ChrisP, in answer to your question, the suppliers...

    ChrisP, in answer to your question, the suppliers of RCH4 are looking for sponsors to take the drug through trials. If you know anyone with a few Million to do this let me know. The sooner it gets...
  7. Thread: Rch4

    by mndmarlon
    Replies
    400
    Views
    102,613

    Barry, RCH4 has Orphan Drug Designation which...

    Barry,

    RCH4 has Orphan Drug Designation which I believe means that it is approved for use with the acceptance of a medical practitioner

    The Orphan Drug Designation program provides orphan...
  8. Thread: Rch4

    by mndmarlon
    Replies
    400
    Views
    102,613

    Andy, As I said before it is not a registered...

    Andy,

    As I said before it is not a registered charity. It just gives the drug away for nothing. See Oxford dictionaries definition of charity
    'The voluntary giving of help, typically in the form...
  9. Thread: Rch4

    by mndmarlon
    Replies
    400
    Views
    102,613

    With respect to privacy, I'm happy for anyone to...

    With respect to privacy, I'm happy for anyone to contact me and I'll talk about my RCH4 experience.

    Send me a PM and I'll facetime / ring whatever.

    I'm in Pacific Pines in QLD, Australia.

    My...
  10. Thread: Rch4

    by mndmarlon
    Replies
    400
    Views
    102,613

    Rch4 is supplied to us free of charge and there...

    Rch4 is supplied to us free of charge and there are numerous users on the net reporting the same successful results. What is there to be suspicious about.
    The charity is actively looking for funding...
  11. Thread: Rch4

    by mndmarlon
    Replies
    400
    Views
    102,613

    Just updating. My wife is still doing very well...

    Just updating. My wife is still doing very well and still taking RCH4. Still no real progression for about 2 years now which is excellent news. Gotta say after reading the above posts, I wish that...
  12. Thread: Rch4

    by mndmarlon
    Replies
    400
    Views
    102,613

    Hi, Our consultant can see the benefit but...

    Hi,

    Our consultant can see the benefit but because the drug is not FDA approved yet, from a professional position he cannot be a supporter. He is watching closley and is very happy with my wifes...
  13. Thread: Rch4

    by mndmarlon
    Replies
    400
    Views
    102,613

    CCxox, The reply you have from ALS Worldwide...

    CCxox,

    The reply you have from ALS Worldwide is an absolute crock of crap.
    RCH4 is not Edaravone

    RCH4 is a Peptide drug and nothing like Edaravone/Radicava and is not available from anyone...
  14. Thread: Rch4

    by mndmarlon
    Replies
    400
    Views
    102,613

    Hi, Just updating. My wife who is on RCH4 is...

    Hi,

    Just updating. My wife who is on RCH4 is still well and still shows no signs of progression (Since Feb 2016!)
    Chart below shows the time lines of my wife's identical triplet sisters and...
  15. Replies
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    33,603

    It might be worth you looking at RCH4. My wife...

    It might be worth you looking at RCH4. My wife has been on it for nearly 2 years and her progression has completely halted. I know of several others with the same results! It is supplied for free if...
  16. Thread: Rch4

    by mndmarlon
    Replies
    400
    Views
    102,613

    Streetwise, yes I agree. Our Neuro has not really...

    Streetwise, yes I agree. Our Neuro has not really taken any notice until lately. because my wifes progress has still been halted for so long. But that has taken nearly 2 years. He says that just...
  17. Thread: Rch4

    by mndmarlon
    Replies
    400
    Views
    102,613

    Annb, There are a few patients posting results...

    Annb,
    There are a few patients posting results on the PLM website:
    https://www.patientslikeme.com/treatments/show/28469#overview
    Marlon
  18. Thread: Rch4

    by mndmarlon
    Replies
    400
    Views
    102,613

    Annb, My consultant had not heard of RCH4 and...

    Annb,
    My consultant had not heard of RCH4 and many still have not. I find it strange that leading Neuros don't check places like the forums in case people are having reversals or stumble across...
  19. Thread: Rch4

    by mndmarlon
    Replies
    400
    Views
    102,613

    To all those following RCH4, an update on my...

    To all those following RCH4, an update on my wife.
    She is still holding at ALSFRS-S score 43 with no progression
    I've posted her latest chart below.

    827
  20. Thread: Rch4

    by mndmarlon
    Replies
    400
    Views
    102,613

    Hi, My wifes ALS activated started to decline...

    Hi,

    My wifes ALS activated started to decline rapidly in Xmas 2015 and we applied to get on RCH4 straight away as there was nothing else available that we thought could help (we knew the signs...
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