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  1. Thread: Awaiting diagnosis

    by Ali
    Replies
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    8,189

    Hi Daniel, I strongly agree with Dis1960 about...

    Hi Daniel,

    I strongly agree with Dis1960 about voice banking. My mum was diagnosed with MND - Progressive Bulbar Palsy in July last year, she started slurring her words back in March, by Christmas...
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    3,504

    Hi Jaqui, Mum already has the Understanding...

    Hi Jaqui,

    Mum already has the Understanding my needs booklet, it’s already filled out and I’ve just printed a photo of mum to stick on the front.

    We are extremely luck to live 10 minutes away...
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    3,504

    Hi all, thank you for your replies. I’m...

    Hi all, thank you for your replies.

    I’m hoping that she will just be in for the day, the nutritionist said it’s normal to be in and out on the same day. As she is having breathing difficulties...
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    3,504

    Bulbar Palsy - communication book.

    Hello all,

    My mum has MND PBP so cannot speak. She is going into hospital next week to have a feeding tube fitted. We were at a MND coffee morning on Monday and the MND staff and volunteers...
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