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Type: Posts; User: Renza8

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  1. Replies
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    Thanks all. Forgot to mention mum lives in a...

    Thanks all. Forgot to mention mum lives in a council house, so can't just get a sparky round to do the deed. I'll have another 3 way conversation with the OT & the council to see if something can be...
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    Bio-bidet....needing power supply?

    Hi all

    Having heard of Bio-bidet first on this forum I was really hoping to get my mum one. However, understand it needs to be plugged into an electricity supply.....which mum doesn't have in her...
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    Hi Dude....do you have a link for Lifeline? I had...

    Hi Dude....do you have a link for Lifeline? I had a look on the wondrous web & was bombarded with lots of 'lifelines'! Thanks in advance x
  4. Thread: Flu jab

    by Renza8
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    21,980

    Hope you feel much more yourself very soon Joycie...

    Hope you feel much more yourself very soon Joycie xx
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    Thanks Lily, I passed your suggestion on to mum....

    Thanks Lily, I passed your suggestion on to mum.

    Dude, the dieticians are happy re pureed food, as long as mum is happy to keep trying to get them down her. I don't think it'll be long before...
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    Thanks Dude, Graham & Terry, really helpful...

    Thanks Dude, Graham & Terry, really helpful suggestions & advice. Yes mum's still being encouraged to eat orally but now on 'blitzed' (purée) meals, yogurts, soup etc. She FINALLY had a very...
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    Ah thanks Dude. I'm not sure how fast she drank...

    Ah thanks Dude. I'm not sure how fast she drank it, but probably not terribly slowly. I'll suggest she slows down if she tries another flavour. Think she was looking forward to the coffee one! ☕️ Xx
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    Reaction to Ensure Plus

    Hi all

    My Mum has finally been provided with some Ensure Plus to try. Tonight she had the Vanilla one. Not long after she came over very shaky & she felt like her heart was racing.

    We're...
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    Hi Mik. The MNDA sent me an excellent pack for my...

    Hi Mik. The MNDA sent me an excellent pack for my 6&3 year old to explain why Nanna is poorly. I'll try & take pics to show you what it's like. I think it's been designed perfectly for that age &...
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    Power assisted wheelchair & cars

    Hi all

    Posting on behalf of Mum again. She is having a visit from wheelchair services this week. She currently uses a crutch or 2 in the house, or short distances on the flat outside. She does...
  11. Thread: Acceptance

    by Renza8
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    3,803

    Thanks all for your replies. So sorry to take so...

    Thanks all for your replies. So sorry to take so long to find them, I didn't realise they were there. Have forwarded all on to mum xx
  12. Thread: Acceptance

    by Renza8
    Replies
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    3,803

    Acceptance

    Hi all. Posting on behalf of my mum again, bulbar onset Dec 2013, diagnosed March '15. She's really desperately struggling psychologically & emotionally, with the diagnosis but more so with the loss...
  13. Thread: Phlegm!

    by Renza8
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    Thanks for your thoughts & comments, we really...

    Thanks for your thoughts & comments, we really appreciate them ��
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    Thanks all for your replies. I've passed them on...

    Thanks all for your replies. I've passed them on to mum. Your words helped reassure her before she met with the hospice nurse a second time. ��
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    Hospice nurse visits - frequency?

    Hi all. My mum was diagnosed with bulbar onset MND last month, having had symptoms worsening since Dec 2013. Before mum had even met the local MND nurse, OT or neuro rehab team, she had a visit from...
  16. Thread: Phlegm!

    by Renza8
    Replies
    10
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    5,756

    Phlegm!

    Hi all. My mum, recently diagnosed with bulbar onset MND, is finding phlegm more of a problem now. The speech therapist recommended drinking acidic drinks like orange juice or Coke to cut through it...
  17. Thanks all xx

    Thanks all xx
  18. Hi Marieline, thanks for your thoughts. Mums been...

    Hi Marieline, thanks for your thoughts. Mums been seeing a speech therapist for quite a while, but sadly neither they or the neurologist can think of what is causing the sensation or how to help....
  19. Bulbar onset MND with strange tongue/mouth symptoms

    Hi all. Further to the great feedback on my first introductory post yesterday, my mum has asked if I can enquire about something on her behalf.

    Mum has bulbar onset MND, symptoms of slurred...
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    Ah thank you all so much for your kind words &...

    Ah thank you all so much for your kind words & suggestions. I honestly feel Oxford is the way to go, but will have a good chat with mum about it. I have told her what a lovely bunch of people I have...
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    Hello & help choosing care centre

    Hi all. This is my first post! My mum was finally diagnosed with MND 2 weeks ago. She has been suffering deteriorating slurred speech since Dec 2013, and is now also having difficulty with eating...
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