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Type: Posts; User: Lynne K

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    Ellie, Riluzone is continued while everone is on...

    Ellie, Riluzone is continued while everone is on this trial. It's on the trial plan. Lynne x
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    Oh Tangly, so sorry for what appears to be a fast...

    Oh Tangly, so sorry for what appears to be a fast decline of your lovely mum. I hear the courage that it took to join our forums and post a message. I hope that you find the support that you need. We...
  3. Thread: Terry

    by Lynne K
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    Glad that you are home and you are in less pain...

    Glad that you are home and you are in less pain Terry. Lynne
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    Good luck with your complaints Juliette. Lynne x

    Good luck with your complaints Juliette. Lynne x
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    Thanks for the update Juliette. Good luck for...

    Thanks for the update Juliette. Good luck for your mums homecoming, a turnaround of all the negative services and your mum's systedealing successfully with the infection with the help of antibiotics....
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    Hi Shaun, welcome to the best forums for all of...

    Hi Shaun, welcome to the best forums for all of us on this horrid MND journey. It sounds like you are keeping positive which is great. I hope that your pub challenge will be greatly enjoyed. It's a...
  7. Thread: Pain/Agony

    by Lynne K
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    Fingers crossed for you Hayls, and Ellie thanks...

    Fingers crossed for you Hayls, and Ellie thanks :) xx
  8. Thread: Nervous newbie

    by Lynne K
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    Hi Boden, I'm sorry about the fairly recent loss...

    Hi Boden, I'm sorry about the fairly recent loss of your paternal grandfather and that now your dad has been diagnosed with MND. It must be a dreadful shock to everybody.

    You have found the right...
  9. Thread: Terry

    by Lynne K
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    Smashing that you expect to be out Monday Terry,...

    Smashing that you expect to be out Monday Terry, at last, Lynne
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    Thank you Sarah for such a heartfelt excellent...

    Thank you Sarah for such a heartfelt excellent poem. You have a talent for sure x
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    Don't worry Nicky. The trial is definitely coming...

    Don't worry Nicky. The trial is definitely coming to England soon. My MND Centre, Salford is one of the centres that is doing it. I only found this out today as I was in email contact with Salford's...
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    I can't really offer advice. But I'm shocked and...

    I can't really offer advice. But I'm shocked and disgusted. Isn't it the MND sufferers decision whether or not to withdraw treatment?
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    I registered for this Scottish trial because I...

    I registered for this Scottish trial because I haven't heard from my consultant about the trial that she'd agreed to put me forward for. They are planning to trial multiple drugs that have been...
  14. Thread: Dina's funeral

    by Lynne K
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    Ah, hope that your shoulder gets better quickly...

    Ah, hope that your shoulder gets better quickly Doug. I hope that you have strong pain killers for over night. My shoulder was worse overnight until I had 2 cortisone injections in it a couple of...
  15. Thread: Dina's funeral

    by Lynne K
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    Hi again Doug. It looks like we'll be able to...

    Hi again Doug. It looks like we'll be able to attend. Steve will be able to move his appointment.

    How's your shoulder today?

    Lynne
  16. Thread: Dina's funeral

    by Lynne K
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    Thanks for passing these details Doug. I'll pass...

    Thanks for passing these details Doug. I'll pass the information on to my husband to see if we can attend but he's got something in his diary. It depends if it can be changed.

    I'm sorry about your...
  17. Thread: Pain/Agony

    by Lynne K
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    Hayls, I won't butt in to your chat with Ellie,...

    Hayls, I won't butt in to your chat with Ellie, but wanted to send you an electronic hug, Lynne x
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    Good decision about the GP Helen. If you are up...

    Good decision about the GP Helen. If you are up to it please drop in here to let us know how you got on, Lynne K
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    Hi Lynne H. Gosh, you have all been through the...

    Hi Lynne H. Gosh, you have all been through the mill. It's not surprising that you're exhausted. Ellie has given you great advice. I'd stress the need for night time care so that you can get the best...
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    Hi Helen, has your mum had a blood test to do a...

    Hi Helen, has your mum had a blood test to do a genetic test? If not then ask her to speak to her consultant to organise a genetic test. Only 10%, approximately of MND sufferers have a faulty gene...
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    Thanks Ellie, Lynne x

    Thanks Ellie, Lynne x
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    Thanks Ellie. I didn't realise that the recording...

    Thanks Ellie. I didn't realise that the recording of voices in Acapela is free. I will explore that. Lynne
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    MNDA paid for my Model Talker and the download to...

    MNDA paid for my Model Talker and the download to Typetalk or whatever it's called. I'm always mixing up names and cannot be bothered checking. I doubt that MNDA would pay for a second voice banking...
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    Thanks Doug. Sounds good. Same here about not...

    Thanks Doug. Sounds good. Same here about not needing speech on my ipad yet.

    As you probably read in the past I did Model Talker. I had to do loads of extra phrases and a final batch of my own...
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    Hi Doug, how did your voice turn out with...

    Hi Doug, how did your voice turn out with Acapela? Lynne
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