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  1. Thread: So tired

    by Terry
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    0
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    51

    So tired

    I posted at the beginning of November saying that I just felt exhausted and a few days after that I felt very hot even in a cold room. I never had a temperature but was totally wiped out.

    I...
  2. Thread: Terry

    by Terry
    Replies
    80
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    8,114

    One of your best one's, Graham, I lasted just...

    One of your best one's, Graham,

    I lasted just under two and a half minutes and got worried what pictures were coming up next.

    Love Terry
  3. Thread: Terry

    by Terry
    Replies
    80
    Views
    8,114

    Carer's seem to be good and nice. Believe I have...

    Carer's seem to be good and nice. Believe I have the same two six days a week. They are not English but I have quite often found that they pick up on things like my sort of sign language better and...
  4. Thread: Terry

    by Terry
    Replies
    80
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    8,114

    I'm home, Very stressful, especially for the...

    I'm home,

    Very stressful, especially for the wife.

    Lost over three kilo, and a lot of movement. In pain.

    Many of the staff came in and kissed me, including the male cook.

    Lot's of...
  5. Thread: Terry

    by Terry
    Replies
    80
    Views
    8,114

    Thanks for the messages, Don't drink whisky...

    Thanks for the messages,

    Don't drink whisky but have got a few beers in.

    Should be out Monday and if will be nice to see what I can still do.

    Love Terry
  6. Thread: Terry

    by Terry
    Replies
    80
    Views
    8,114

    Hi there,, Think that most of my neck and...

    Hi there,,

    Think that most of my neck and upper back shoulder pain is from inactivity causing the MND to progress. Poor sitting positions don't help.

    No news on getting out of here.

    Can't...
  7. Thread: Terry

    by Terry
    Replies
    80
    Views
    8,114

    Hi grandad and welcome to the forum. You can...

    Hi grandad and welcome to the forum.

    You can annoy me here as well as having to put up with you on our days out.

    Now in captive in hospital.

    Bring expensepencive presents and don't stay...
  8. Thread: Terry

    by Terry
    Replies
    80
    Views
    8,114

    Just keep falling asleep when trying to do...

    Just keep falling asleep when trying to do anything
  9. Thread: Terry

    by Terry
    Replies
    80
    Views
    8,114

    I have to log when I connect with my wife's phone.

    I have to log when I connect with my wife's phone.
  10. Hi vicky, Sorry to hear about your father's...

    Hi vicky,

    Sorry to hear about your father's passing but so pleased that you have offered the chair here

    I have been fortunate enough to get one but others might not be so very lucky.

    It...
  11. Thread: Terry

    by Terry
    Replies
    80
    Views
    8,114

    I definitely am a bit better today but it is so...

    I definitely am a bit better today but it is so hard getting things done in here, I really need someone in here a quarter of the time.

    Wish full thinking
  12. Thread: Terry

    by Terry
    Replies
    80
    Views
    8,114

    They have released me from isolation and felt...

    They have released me from isolation and felt quite well this morning. Gone down hill since lunch although I have been resting.

    Planned release Friday if carers are in place.

    Feeling tired.
    ...
  13. Thread: Terry

    by Terry
    Replies
    80
    Views
    8,114

    Afraid I got a bug from here so I'm sick now,...

    Afraid I got a bug from here so I'm sick now, also have strained muscles in lower back neck muscles and shoulders.

    Can't eat much but if I don't I will be in main hospital.

    Looks like I'm...
  14. Thread: Terry

    by Terry
    Replies
    80
    Views
    8,114

    Here till Friday. Pain is less but quite tired.. ...

    Here till Friday. Pain is less but quite tired..

    Cooked breakfast this morning in bed, first time for everything

    After seven days of not going much now very loose and get worried about every...
  15. Thread: Terry

    by Terry
    Replies
    80
    Views
    8,114

    Still in hospital, being better looked after but...

    Still in hospital, being better looked after but who knows what crew will turn up.

    No Internet, back still bad and energy levels not always good.
  16. Thread: Terry

    by Terry
    Replies
    80
    Views
    8,114

    I'm not in the right place for rehab, hope that...

    I'm not in the right place for rehab, hope that something improves.

    I have no Internet here so can't normally look in.

    I am breathing fine but still have lots of pain and no physio

    Hope you...
  17. Thread: Panic attacks

    by Terry
    Replies
    21
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    2,732

    Hi Lesley, I have fortisip chocolate 220 ml...

    Hi Lesley,

    I have fortisip chocolate 220 ml drinks, which are not as gloopy as the more consentrated smaller ones. Also very cold things can be easyer to drink.

    Certainly the fruit base ones...
  18. Thread: Russ60

    by Terry
    Replies
    12
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    2,340

    Hi Russ, You will have to explain the nerve...

    Hi Russ,

    You will have to explain the nerve issues more but I doubt that I can help you much.

    With your speech issues, have you looked into speech programs apps etc.

    Also you can use your...
  19. Replies
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    Hi Steve; You seem to have to fight for...

    Hi Steve;

    You seem to have to fight for everything as a carer or a person struggling with Mnd. Things could be so much easier without the extra frustration and unneeded stress.

    Hope all goes...
  20. Thread: Panic attacks

    by Terry
    Replies
    21
    Views
    2,732

    Hi Lesley; I guess your mum hasn't a feeding...

    Hi Lesley;

    I guess your mum hasn't a feeding tube and her dietitian has given her some drinks.

    There are lots of different drinks from a few different companies. Also some are smaller and...
  21. Thread: Russ60

    by Terry
    Replies
    12
    Views
    2,340

    Hi Russ and welcome to the forum; I too do...

    Hi Russ and welcome to the forum;

    I too do gets very hungry and feel weak because of that if I don't eat regularly. You should have a dietitian in your team and if not speak to your doctor about...
  22. Thread: So so tired

    by Terry
    Replies
    55
    Views
    10,415

    Thanks all, Today has been a little better...

    Thanks all,

    Today has been a little better than yesterday, but we'll see how tonight goes.

    I have thought about a breathing machine but there has not been much change in my breathing for a...
  23. Thread: So so tired

    by Terry
    Replies
    55
    Views
    10,415

    On the 5th I was so tired even though I slept the...

    On the 5th I was so tired even though I slept the best night for years. For a couple of days my tiredness got worse and I felt hot all of the time, requiring a fan and a cool room to be ok. This...
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    Sorry to hear that your wife has gone, Steve; ...

    Sorry to hear that your wife has gone, Steve;

    Feeling for you all there.

    RIP, Doreen.

    Love Terry
  25. Thread: Doddie Weir

    by Terry
    Replies
    10
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    2,296

    Hi Andy; He must have a slow type of Mnd,...

    Hi Andy;

    He must have a slow type of Mnd, perhaps like me. I think that I did manage to build up some muscles but they have been gradually going over the last seven years.

    I must say that...
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