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Type: Posts; User: Lynne K

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  1. Thread: So tired

    by Lynne K
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    I hope that your breathing stats turn out good...

    I hope that your breathing stats turn out good Terry, Lynne
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    Thanks Ellie, half time and 1 - 0 to Liverpool....

    Thanks Ellie, half time and 1 - 0 to Liverpool. Both teams playing well. Wolverhampton the opposition x
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    Thanks Terry and Ellie. Terry, there's always...

    Thanks Terry and Ellie. Terry, there's always weight in my walker. This is mostly a light 4 wheeled walker sometimes my favourite Topro 4 when walker but that's too big around our flat. Although I'm...
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    Thanks Kayleigh, Lynne x

    Thanks Kayleigh, Lynne x
  5. Thread: Terry

    by Lynne K
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    They haven't seen Topcat with me Kayleigh but I'm...

    They haven't seen Topcat with me Kayleigh but I'm thinking of showing them when they are next here. I'm sure that they'll like it x
  6. Thread: Terry

    by Lynne K
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    Me too Kayleigh and Terry :)

    Me too Kayleigh and Terry :)
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    Debbie, the idea of using my powered wheelchair...

    Debbie, the idea of using my powered wheelchair when I'm on my own has never occurred to me. So thank you. It's a smashing idea. I'll put it to St) ve when he comes back in. He's out teaching...
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    Thanks Sheila. Yes, it is easy to forget about...

    Thanks Sheila. Yes, it is easy to forget about being careful with balancing, especially when you are distracted by something.

    The back of my head is a little sore to the touch but ok otherwise....
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    My thoughts are with you Chrissy at this sad...

    My thoughts are with you Chrissy at this sad time. As others have said you are a wonderful granddaughter that has given your all to your gran. I hope that the hospice is offering support to you....
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    Thanks Barry. I had a sore head last night (2am)...

    Thanks Barry. I had a sore head last night (2am) but it's perfectly ok now. I'm just exhausted still. But the late night doesn't help much there. I'm usually in bed before midnight. I'd been watching...
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    I agree Billy. Housing for disabled people is a...

    I agree Billy. Housing
    for disabled people is a nightmare. Smaller things and holidays for the disabled have hugely inflated prices. We are easy prey.

    Do you have the knowhow and funds to...
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    Hi all. When my OT came out the other week she...

    Hi all. When my OT came out the other week she saw me walk with my walker and a said for me to continue using it for as long as possible so I have been. But I've fallen twice in the last week and...
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    Ellie, Riluzone is continued while everone is on...

    Ellie, Riluzone is continued while everone is on this trial. It's on the trial plan. Lynne x
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    Oh Tangly, so sorry for what appears to be a fast...

    Oh Tangly, so sorry for what appears to be a fast decline of your lovely mum. I hear the courage that it took to join our forums and post a message. I hope that you find the support that you need. We...
  15. Thread: Terry

    by Lynne K
    Replies
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    9,192

    Glad that you are home and you are in less pain...

    Glad that you are home and you are in less pain Terry. Lynne
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    Good luck with your complaints Juliette. Lynne x

    Good luck with your complaints Juliette. Lynne x
  17. Replies
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    Thanks for the update Juliette. Good luck for...

    Thanks for the update Juliette. Good luck for your mums homecoming, a turnaround of all the negative services and your mum's systedealing successfully with the infection with the help of antibiotics....
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    Hi Shaun, welcome to the best forums for all of...

    Hi Shaun, welcome to the best forums for all of us on this horrid MND journey. It sounds like you are keeping positive which is great. I hope that your pub challenge will be greatly enjoyed. It's a...
  19. Thread: Pain/Agony

    by Lynne K
    Replies
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    Fingers crossed for you Hayls, and Ellie thanks...

    Fingers crossed for you Hayls, and Ellie thanks :) xx
  20. Thread: Nervous newbie

    by Lynne K
    Replies
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    Hi Boden, I'm sorry about the fairly recent loss...

    Hi Boden, I'm sorry about the fairly recent loss of your paternal grandfather and that now your dad has been diagnosed with MND. It must be a dreadful shock to everybody.

    You have found the right...
  21. Thread: Terry

    by Lynne K
    Replies
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    Smashing that you expect to be out Monday Terry,...

    Smashing that you expect to be out Monday Terry, at last, Lynne
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    Thank you Sarah for such a heartfelt excellent...

    Thank you Sarah for such a heartfelt excellent poem. You have a talent for sure x
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    Don't worry Nicky. The trial is definitely coming...

    Don't worry Nicky. The trial is definitely coming to England soon. My MND Centre, Salford is one of the centres that is doing it. I only found this out today as I was in email contact with Salford's...
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    I can't really offer advice. But I'm shocked and...

    I can't really offer advice. But I'm shocked and disgusted. Isn't it the MND sufferers decision whether or not to withdraw treatment?
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    I registered for this Scottish trial because I...

    I registered for this Scottish trial because I haven't heard from my consultant about the trial that she'd agreed to put me forward for. They are planning to trial multiple drugs that have been...
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