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  1. Thread: Jordan farrell

    by Terry
    Replies
    22
    Views
    809

    Hi Jordan and welcome to the forum, I hope...

    Hi Jordan and welcome to the forum,

    I hope that you get a appointment with a neurologist soon. Mnd does not normally occur at such a young age especially if there's no family history of it.
    ...
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    Hi PT, You could try talking books or the...

    Hi PT,

    You could try talking books or the links below, also Larazipan might help with anxiety.

    Profile beds with good high narrow hand rails make it much easier to get out of bed.
    ...
  3. Thread: Frieda

    by Terry
    Replies
    38
    Views
    1,865

    Hi Frieda, I take 40 mg of baclofen and my...

    Hi Frieda,

    I take 40 mg of baclofen and my limbs are still quite stiff. Don't think that I have had any side affects and I have taken more.

    Sorry to hear about your other problems.

    Love...
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    Hi TAPG1, You can get twitching in most places...

    Hi TAPG1,

    You can get twitching in most places but I don't think that they happen at the same time. Maybe in a few areas of little part of muscles.

    Love Terry
  5. Replies
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    1,572

    Hi TAPG1, You can feel and see most twitching...

    Hi TAPG1,

    You can feel and see most twitching parts of muscles but sweating and retching are not signs of Mnd.

    Love Terry
  6. Replies
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    Hi Julie and welcome to the forum; I have a...

    Hi Julie and welcome to the forum;

    I have a partner and get to see and communicate with some people but I do lack the social interaction because of MND.

    There are people here that live by...
  7. Thread: Frieda

    by Terry
    Replies
    38
    Views
    1,865

    Hi Frieda; Sorry to hear you've got trouble...

    Hi Frieda;

    Sorry to hear you've got trouble again. Yes you could cut them in half and you can buy a pill cutter from Ebay and other places.

    I reckon that you should start on them if it's...
  8. Replies
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    Hi Andy; I have sleep apnoea and I think that...

    Hi Andy;

    I have sleep apnoea and I think that I stop breathing around 35 times, not sure if that's all night or an hour????????

    My oxygen levels are quite good over night so they've decided not...
  9. Replies
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    64,151

    Just I the gym drinking coffee and playing...

    Just I the gym drinking coffee and playing Yesterday and then Can't Buy Me Love by the Beatles.

    Then I thought of this one especially for Judy.

    https://youtu.be/FhXU8c8qwXs gets a bit loud...
  10. Thread: Jude

    by Terry
    Replies
    19
    Views
    2,372

    Hi Debbie and Judy, Do try to get a moving...

    Hi Debbie and Judy,

    Do try to get a moving mattress if you lay down in one position over night. You are at great risk of bed sores if you do that. I think that one of first signs is a redness of...
  11. Replies
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    12,882

    Hi all, Barry, they are too big and not being...

    Hi all,

    Barry, they are too big and not being a slice of potato, they seem to brake up and cause problems for me.

    I have ridged crisps but it is better to not have them to big or lots of small...
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    12,882

    Hi Deb; Pleased to hear your leg is repairing...

    Hi Deb;

    Pleased to hear your leg is repairing and you're finding better ways of being moved around.

    Love Terry
  13. Thread: What Now?

    by Terry
    Replies
    58
    Views
    3,138

    Hi Chrissie; We just feel for you both and you...

    Hi Chrissie;

    We just feel for you both and you have been trying so hard to improve things.

    Love Terry
  14. Thread: Frieda

    by Terry
    Replies
    38
    Views
    1,865

    Try less of them, Frieda; I Think that they're...

    Try less of them, Frieda;

    I Think that they're normally 10mg size, and they quite often recommend two in the morning and night. If that's the case, try one morning and night for 4 days and then...
  15. Thread: What Now?

    by Terry
    Replies
    58
    Views
    3,138

    Hi Chrissie; It's not that uncommon for Mnd...

    Hi Chrissie;

    It's not that uncommon for Mnd people not to accept things that would improve their life. I don't know why, maybe they don't want the bother or to bother others and burden then.
    ...
  16. Thread: Frieda

    by Terry
    Replies
    38
    Views
    1,865

    Hi Frieda and welcome to the forum; Sorry to...

    Hi Frieda and welcome to the forum;

    Sorry to hear of your recent diagnoses. It is quite unusual to have a reaction with Baclofen and wonder how much of it you were taking. It's often best to...
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    It would be lovely if we were all there, watching...

    It would be lovely if we were all there, watching Cc suffering playing chess.

    I would have plenty of time for licking up the cream with a coffee and talking, while Cc is thinking.

    Love Terry
  18. Replies
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    Hi Polly; Sorry to read of your rubbish day. ...

    Hi Polly;

    Sorry to read of your rubbish day. Hopefully the medication will kick in tomorrow and he'll improve. With that his spirits should rise.

    Hugs, Terry
  19. Replies
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    There's no harm in asking in a nice polite way,...

    There's no harm in asking in a nice polite way, Chrissie;

    9:30 doesn't sound to bad a time to me but you could ask them.

    Love Terry
  20. Thread: mr gerry mulhall

    by Terry
    Replies
    7
    Views
    700

    Hi Gary and welcome to the forum, Raw is a...

    Hi Gary and welcome to the forum,

    Raw is a good word to use, most of us had similar feelings for a month or two after we were diagnosed.

    The forms are a nightmare but necessary. You should be...
  21. Replies
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    Well done Barry; Love Terry

    Well done Barry;

    Love Terry
  22. Replies
    228
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    12,882

    Hi Dina; I'm so please that you had a live...

    Hi Dina;

    I'm so please that you had a live link to his wedding. It's always worrying for us to trust the new technology.

    It's always nice to have flowers around.

    Love Terry
  23. Replies
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    1,096

    Hi Chrissie; I have a remote door bell hanging...

    Hi Chrissie;

    I have a remote door bell hanging above my bed so it never gets lost. The sounder part of it is in my wife's bedroom and is quite loud.

    You could buy two and have a extra remote...
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    Hi Andy, I don't know. I would think that you...

    Hi Andy,

    I don't know. I would think that you would have to use the toilet seat while showering and be manoeuvred in. But lifting or manhandling in would be a bit of a problem unless the side...
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    I believe that this is still available. Love...

    I believe that this is still available.

    Love Terry
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