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Type: Posts; User: miranda

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  1. Thread: New to Posting

    by miranda
    Replies
    9
    Views
    319

    Welcome Lucy. I can only imagine how...

    Welcome Lucy. I can only imagine how overwhelming it must be for you both to cope with life with MND especially now with coronavirus taking centre stage in all our lives and limiting our normal...
  2. Replies
    4
    Views
    176

    Wishing you well too. Hope you find a relevant...

    Wishing you well too. Hope you find a relevant online forum for support now you have a firm diagnosis.
  3. Replies
    5
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    394

    I Hayls I thought this said superglue. Now I...

    I

    Hayls I thought this said superglue. Now I can’t stop giggling! I can so,picture you and hubby struggling Debbie - you have to,laugh or cry! Or maybe do both. Anyway good luck with getting...
  4. Thread: Ric feed

    by miranda
    Replies
    7
    Views
    448

    I had a PEG fitted many years ago but have only...

    I had a PEG fitted many years ago but have only used it for meds and extra hydration. I manage with a soft food diet but can’t swallow tablets.
  5. Thread: Lost

    by miranda
    Replies
    27
    Views
    2,179

    Welcome Jackie to our forum. It’s good that you...

    Welcome Jackie to our forum. It’s good that you have found us after what must have been like a never ending nightmare. We all have different ways of coping and there absolutely no way we can answer...
  6. Thread: This forum

    by miranda
    Replies
    20
    Views
    1,530

    There was a recent post referring to the fact the...

    There was a recent post referring to the fact the forum wasn’t having as much traffic as normal. Several reasons were suggested but, personally, I think it’s to do with our reaction to lockdown and...
  7. Thread: inbox

    by miranda
    Replies
    12
    Views
    3,915

    Thanks Ellie. Itís emptied now xx

    Thanks Ellie. Itís emptied now xx
  8. Thread: Motability

    by miranda
    Replies
    12
    Views
    1,108

    RSA are the insurers for the motability scheme...

    RSA are the insurers for the motability scheme vehicles and have always been very helpful and understanding when we have had to contact them.
  9. Replies
    10
    Views
    1,445

    Welcome Matthew. Although no one wants a MND...

    Welcome Matthew. Although no one wants a MND diagnosis, you seem to have had the diagnosis quickly. Please don’t hesitate to ask questions - someone on the forum will usually have an answer or can...
  10. Replies
    22
    Views
    10,043

    I’ve now got my new app for iPhone or iPad - it’s...

    I’ve now got my new app for iPhone or iPad - it’s called Speech Assistant and I am very happy with it.
  11. Thread: Hello Everyone

    by miranda
    Replies
    7
    Views
    822

    Welcome Tess. Please don’t ever feel there are...

    Welcome Tess. Please don’t ever feel there are questions you can’t ask. It’s a lot to take in but try to take a step at a time otherwise you will feel overwhelmed.
  12. Thread: Teeth Brushing

    by miranda
    Replies
    9
    Views
    921

    If using an electric toothbrush, donít switch it...

    If using an electric toothbrush, donít switch it on until itís in the mouth! One of my carers learnt the hard way!!!
  13. Replies
    14
    Views
    2,002

    I’ve got side rails fitted to my hospital bed and...

    I’ve got side rails fitted to my hospital bed and use these to haul myself over. I also have Wendylet sheets (Provided by my wonderful OT). These have a slippery fabric down the centre which helps...
  14. Replies
    12
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    1,851

    Hello David and welcome. I lost my speech before...

    Hello David and welcome. I lost my speech before voice banking was available and used a wonderful cheap app called Speak It. Unfortunately it’s not now available and I’ve tried using Predictable...
  15. Thread: Bed Advice

    by miranda
    Replies
    11
    Views
    1,442

    I go through exactly the same procedure for...

    I go through exactly the same procedure for getting in and out of my profiling bed as Ellie. In addition I raise the foot end when my feet become swollen - as they always do when the weather is hot...
  16. Thread: Ivan

    by miranda
    Replies
    11
    Views
    1,474

    Welcome Ivan. There’s a lot to get your head...

    Welcome Ivan. There’s a lot to get your head around in these early days but Please don’t hesitate to ask questions- there’s usually someone who will be able to give you an answer or point you in the...
  17. Thread: Moving house

    by miranda
    Replies
    9
    Views
    1,274

    Great news for you. Make sure you know where...

    Great news for you. Make sure you know where your favourite tipple is packed so you can have a cuppa or something stronger when you arrive in your new home.
  18. Thread: Advice needed

    by miranda
    Replies
    4
    Views
    867

    Welcome John. Hopefully you will get reassurance...

    Welcome John. Hopefully you will get reassurance that you haven’t got MND. In the meantime perhaps your grandad might be interested in this forum?
  19. Thread: Please help

    by miranda
    Replies
    12
    Views
    2,018

    I do hope you can accept that your symptoms are...

    I do hope you can accept that your symptoms are unlikely to be MND. The health of your Mum must be difficult to cope with, even more so in the current lockdown which can’t but impact on your anxiety...
  20. Thread: Hello

    by miranda
    Replies
    8
    Views
    1,358

    Welcome Elvisfan. A positive mental attitude...

    Welcome Elvisfan. A positive mental attitude seems to help in coping with the many aspects of MND but please don’t hesitate to ask questions - there’s a lot of knowledge and experience on this forum.
  21. Thread: Nuedexta

    by miranda
    Replies
    9
    Views
    1,918

    I donít believe it!!! Barry I canít believe you...

    I donít believe it!!! Barry I canít believe you are still breaking the ďno falls allowed ď rule by not using your walker. You will no doubt get another telling off - only because we care and donít...
  22. Replies
    30
    Views
    4,618

    Hi David. I’m sure your positive post will have...

    Hi David. I’m sure your positive post will have reassured many people. I had my PEG fitted soon after diagnosis but have only ever used it for medication as I can still manage a soft food diet. As...
  23. Welcome. I am not a carer but can understand the...

    Welcome. I am not a carer but can understand the awful dilemma you are facing and, from the time you,posted, I guess you are having sleep disturbed nights. Does your wife have a support team...
  24. Thread: Hi

    by miranda
    Replies
    10
    Views
    2,319

    Welcome Diddly. I can only echo,previous...

    Welcome Diddly. I can only echo,previous comments. In my case it was four years after my MND diagnosis that I was told by prof Talbot at the MND clinic in Oxford that I had PLS. But unfortunately...
  25. Thread: RIP Dude

    by miranda
    Replies
    26
    Views
    10,659

    Sad to remember those like Dude who contributed...

    Sad to remember those like Dude who contributed so much to the forum. Good to keep memories alive. Thank you.
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