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  1. Thread: Als

    by Broostine93
    Replies
    11
    Views
    3,087

    Hi Puddy, It's been a while since I've been...

    Hi Puddy,

    It's been a while since I've been on the forum due to my caring role coming to an end in February of this year. Firstly, you've absolutely done the right thing by talking to...
  2. Replies
    8
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    1,888

    Sending massive hugs to you

    Sending massive hugs to you <3 Words can't describe how sorry I am.

    Try to take comfort in that he passed quickly (though it is not much consolation, I know).

    It'll be a busy few weeks for you,...
  3. Thread: She's Gone

    by Broostine93
    Replies
    14
    Views
    2,559

    Thank you :) It really does mean so much to me to...

    Thank you :) It really does mean so much to me to read your comments.

    I am now getting the 'if there's anything I can do to help' comments from the family members- this isn't a time for me to be...
  4. Thread: She's Gone

    by Broostine93
    Replies
    14
    Views
    2,559

    Hi everyone, Thank you all so much for your...

    Hi everyone,

    Thank you all so much for your wonderful messages :)

    I think I'm in shock at the moment, as I haven't really been able to cry since yesterday morning- I know that's 'normal, but...
  5. Thread: She's Gone

    by Broostine93
    Replies
    14
    Views
    2,559

    She's Gone

    My Gran passed away yesterday afternoon at 3:55pm.
    I was at work and received a phone call at 3:45pm to say that her breathing had deteriorated quite suddenly. I raced over there, but I was 5...
  6. Replies
    47
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    6,522

    Something that might help with your loo worry...

    Something that might help with your loo worry (for #1) is something I've heard of other people using who have MND. I'm not sure of the exact name, but it's something like a she-wee. It means you can...
  7. Replies
    18
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    3,632

    Hi Nunhead- He had a little concussion, so not...

    Hi Nunhead- He had a little concussion, so not too badly injured. I think he was more shocked than anything.

    Lynne- Myself and the Palliative Team kept on urging Gran to have a feeding tube...
  8. Replies
    18
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    3,632

    Hi Guys, The staff seemed to know what they...

    Hi Guys,

    The staff seemed to know what they were doing last night- they came in to check her driver and change her pad just as I was about to leave.

    Unfortunately, I am still the 'get Gran as...
  9. Replies
    18
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    3,632

    Hi Guys, Ellie- it's my uncle, but he's about...

    Hi Guys,

    Ellie- it's my uncle, but he's about as useful as a paper brolly.

    We've had a complete turn-around since I posted this thread initially. The hospice weaned Gran off the heavy dose of...
  10. Replies
    18
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    3,632

    The hospice staff are hit and miss at the moment....

    The hospice staff are hit and miss at the moment. I think they're wary of telling me things because I probably look too young to be considered the 'carer'/'main family member'. I'm sure they'll...
  11. Replies
    18
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    3,632

    Thank you all for your lovely messages :) ...

    Thank you all for your lovely messages :)

    Inevitably, we have some family members who haven't been around throughout the whole illness and now suddenly want to know everything and be involved...
  12. Replies
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    3,632

    The End- Thank you all

    Hi All,

    Looks like my Gran is reaching the end of this awful disease. Her palliative team managed to find her a place at our local hospice so they moved her from the nursing home on Friday...
  13. Thread: What Now?

    by Broostine93
    Replies
    58
    Views
    8,395

    Hi Guys, Rachel RE the distress- I think the...

    Hi Guys,

    Rachel RE the distress- I think the carers see some of the distress, but I think they put it down to her age, rather than the condition (not surprising, seeing as they've never seen...
  14. Thread: What Now?

    by Broostine93
    Replies
    58
    Views
    8,395

    I was forceful back in September whereby I...

    I was forceful back in September whereby I outright told my Gran I would not be visiting 2 days per week (something I've stuck to and something I'm guessing is the reason I've not already hit...
  15. Thread: What Now?

    by Broostine93
    Replies
    58
    Views
    8,395

    Hi Gillette, Think I've already cracked- been...

    Hi Gillette,

    Think I've already cracked- been running on empty since about June! I am trying to look after myself, as best I can, under the circumstances. I can't begin to count the amount of...
  16. Thread: What Now?

    by Broostine93
    Replies
    58
    Views
    8,395

    Hi Rachel, The GP only visits when the nurses...

    Hi Rachel,

    The GP only visits when the nurses ring them to say that Gran has a chest infection. They haven't been in touch with her regularly from the start, stating that they're only really to be...
  17. Thread: What Now?

    by Broostine93
    Replies
    58
    Views
    8,395

    Hi Rachel, No, she can't/refuses to use any...

    Hi Rachel,

    No, she can't/refuses to use any tech (she can't even use the most simple of mobile phones, unfortunately). When I am there, she gets me to adjust her pillows (this is now taking up to...
  18. Thread: What Now?

    by Broostine93
    Replies
    58
    Views
    8,395

    Thank you, Terry and Deb :) Nunhead- I have...

    Thank you, Terry and Deb :)

    Nunhead- I have been seeing a palliative therapist for about 2 months and it was she who suggested antidepressants (on top of our therapy sessions).

    It all came to...
  19. Thread: What Now?

    by Broostine93
    Replies
    58
    Views
    8,395

    Hi Guys, Thank you all for the supportive...

    Hi Guys,

    Thank you all for the supportive messages in response to my 'crazy crisis panic day'. Must admit, this week has been a particularly low one- crying all over the place like an idiot! (My...
  20. Thread: What Now?

    by Broostine93
    Replies
    58
    Views
    8,395

    Hi Gillette, She does have CHC funding, but...

    Hi Gillette,

    She does have CHC funding, but she flat-out refuses to move elsewhere. I daren't do anything 'behind her back' because then it's taking even more control away from her. It's so hard...
  21. Thread: What Now?

    by Broostine93
    Replies
    58
    Views
    8,395

    Hi Ellie, Absolutely agree, yes. I think her...

    Hi Ellie,

    Absolutely agree, yes. I think her age and stubborn personality (almost cutting nose of to spite face type attitude) are causing a lot of the problems here. I have asked her so many...
  22. Thread: What Now?

    by Broostine93
    Replies
    58
    Views
    8,395

    Hi Ellie, She won't even let me/the carers...

    Hi Ellie,

    She won't even let me/the carers put a DVD on for her now, so I can't see her embracing the audiobooks or IPlayer or anything like that (woman's her own worst enemy, most of the time!)...
  23. Thread: What Now?

    by Broostine93
    Replies
    58
    Views
    8,395

    Thanks so much all of you :) Been pondering...

    Thanks so much all of you :)
    Been pondering (more like panicking) about all of this for a few days now and realised I've missed something completely obvious- the need for glasses to read/watch tv....
  24. Replies
    5
    Views
    1,420

    You're justified to ask for a specific time, but...

    You're justified to ask for a specific time, but I wouldn't hold your breath that you'll actually get the time you want. Depending on the company, some can be extremely accommodating, but others are...
  25. Thread: What Now?

    by Broostine93
    Replies
    58
    Views
    8,395

    Wow- thanks so much guys :D I really appreciate...

    Wow- thanks so much guys :D I really appreciate the effort you're going to to help with this issue! (though, in fairness, Gran is still currently half-talking, half-writing stuff down, so it's more...
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