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Type: Posts; User: Alan Livett

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  1. Hi Mags - you shouldn't need to worry about the...

    Hi Mags - you shouldn't need to worry about the price (I don't know how much it costs)

    . As I understand it there are a number of funding options available. My advice would be to give Dane (the...
  2. Maintaining comfort and controlling my bed using Eyegaze equipment

    Hello all,

    I've not posted on the forum for some time now, but wanted to share with you my involvement in the development of a new piece of equipment which helps me maintain my independence in...
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    Hi Sylv. My council is Bradford in West...

    Hi Sylv. My council is Bradford in West Yorkshire. I'm aware that different councils have different rules but it must be worth trying. Either way the 6 week assessment should be free and it means you...
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    Hi Nightwalker. I went through Social Services in...

    Hi Nightwalker. I went through Social Services in the first instance. They undertook a 6 week assessment which was free. After that they organised a private care company for me. I currently have two...
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    Hi sue. I have had a closomat toilet fitted....

    Hi sue. I have had a closomat toilet fitted. There are a variety of controls available. I have a whoopie cushion which needs a light squeeze to operate! I got a refurbished toilet (looks like new)...
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    Hi Charles. I continued to work for 18 months...

    Hi Charles. I continued to work for 18 months after I was diagnosed. Through Access to Work I obtained a grant to help pay for my contribution towards a wheelchair accessible vehicle from...
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    Hi Anna. My MND symptoms started with foot drop...

    Hi Anna. My MND symptoms started with foot drop on my left leg. I was initially precribed a boxia. When this stopped being effective I was prescribed an Allard ' toe off. This is made out of carbon...
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    I had hand controls fitted before I needed them....

    I had hand controls fitted before I needed them. Initially I continued to use my right foot for accelerating and the hand controls for braking! Over time I used the hand controls for both and now it...
  9. Hi If you are taking statins get your doctor...

    Hi

    If you are taking statins get your doctor to do a blood test to see if you are experiencing side effects. Regards. Alan alivett
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    Hi Arthur. I didn't find the nose cushions any...

    Hi Arthur. I didn't find the nose cushions any use either. They dried up my nose and made my nostrils really sore. I now use a nose mask which took a bit of getting used to as I was a 'mouth...
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    Hi Trevor. We have had to widen our doors...

    Hi Trevor. We have had to widen our doors downstairs to accommodate my wheelchair. It was not a particularly difficult adaptation in the greater scheme of things. If you are looking for a bungalow I...
  12. Hi Ian. I am 6'3" so I needed a larger WAV. I too...

    Hi Ian. I am 6'3" so I needed a larger WAV. I too needed 5 seats but use the wheelchair as the fifth seat for any passenger. I chose an automatic with hand controls so I am still able to drive even...
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    Hi Steve. Closomat also sell reconditioned...

    Hi Steve. Closomat also sell reconditioned toilets which are considerably cheaper than a new one (1500). I would also speak with your regional mnd representative about a contribution towards the...
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    Hi Joan I started taking Baclofen for my cramps...

    Hi Joan
    I started taking Baclofen for my cramps but they made me feel very queasy, particularly when taken with red wine!! I was then put on Gabapentine which I have found to be very effective....
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    I thought my experience was bad enough. I was...

    I thought my experience was bad enough. I was told by a neuro and within ten minutes was given three bits of paper. One for a blood test, one for breathing tests and one for riluzole. I then had to...
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    Hi Frank. I have continued to work as a teacher...

    Hi Frank. I have continued to work as a teacher until very recently. I too found the daily banter and interactions with staff and students really important in helping me cope with the daily realities...
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    Hi John I found your link to nhscare really...

    Hi John
    I found your link to nhscare really interesting. One question though - the information talks about being too ill to be cared for at home. I am very keen to have my care at home for as long...
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    Hi pepper. I have just written a long post and...

    Hi pepper. I have just written a long post and have hit the wrong button and the whole post had disappeared!!! So frustrating. Anyway I'll try again with a shorter post as its getting late!! Don't go...
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    Hi Pepper. You mention in your last post the need...

    Hi Pepper. You mention in your last post the need for something to help Colin buzz you when he needs help. I spoke to the district nurse about an alarm to get help if I fell when on my own at home....
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    I saw my OT yesterday to arrange for the same for...

    I saw my OT yesterday to arrange for the same for me. She told me the dimensions were 37" x 83"

    Regards

    Alan
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    Hi cc I find it frustrating that I find out what...

    Hi cc
    I find it frustrating that I find out what is available and sensible almost by accident!!

    Regards Alan
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    Pneumococcal vaccination

    For the last two years I have had the flu jab as reccomended by my neurologist. Last week I had an appointment at a breathing clinic where it was suggested I have a pnuemococcal vaccination to...
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    Hi. When we planned our wetroom we decided to put...

    Hi. When we planned our wetroom we decided to put a standard toilet in with electrical wiring to be used in the future for a closomat toilet. Social services have provided me with a shower chair....
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    Nelson Mandela

    "But the human body has an enormous capacity for adjusting to trying circumstances. I have found that one can bear the unbearable if one can keep one's spirits strong even when one's body is being...
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    Hi Andrew. Thank you for the answers to my...

    Hi Andrew. Thank you for the answers to my questions. I have to
    Say that I am rather disappointed with the response from nice. It does not appear that any effort is being made to enable mnd patients...
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