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  1. Thread: Ellie

    by Kernowcluck
    Replies
    28
    Views
    10,392

    :) phew well done both of you-big sizghsof...

    :) phew well done both of you-big sizghsof relief all round
  2. Thread: Ellie

    by Kernowcluck
    Replies
    28
    Views
    10,392

    Hi Ellie, I hope you read all these posts and...

    Hi Ellie, I hope you read all these posts and realise how much we respect your input. I always read your posts as I know your advice will be helpful . Your knowledge, empathy and kindness shine...
  3. Replies
    30
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    10,302

    Hello Katrina, it is good to hear from you again....

    Hello Katrina, it is good to hear from you again. I guess it is still early days since you lost your dad and I don't think you ever get over such a loss completely but it gets a little easier with...
  4. Replies
    49
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    16,922

    I have exactly the same problem as you so I...

    I have exactly the same problem as you so I sympathise. I will be interested to hear any replies as it really is most uncomfortable.
  5. Replies
    15
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    9,823

    I would like to add my good wishes for Christmas...

    I would like to add my good wishes for Christmas and the New Year to everyone on this forum as well . I hope 2017 will bring us all some peace , A good dose of happiness and a dollop of hope to keep...
  6. Replies
    42
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    13,549

    Loving thoughts to Lynne and her family-may she...

    Loving thoughts to Lynne and her family-may she have a smooth journey and find peace in a good place that she so deserves.
  7. Thread: Dude

    by Kernowcluck
    Replies
    48
    Views
    27,507

    Me too-it's horrible when you suddenly don't hear...

    Me too-it's horrible when you suddenly don't hear from somebody although I do understand if people need a break for whatever reason. Dude, at least you know we are thinking about you. A big hug to...
  8. I tried to complete the survey but it wouldn't...

    I tried to complete the survey but it wouldn't accept my age!! So I couldn't get further than the front page-sorry but I do definitely think that psychological support is so so important.
  9. Thread: Limbo Land

    by Kernowcluck
    Replies
    31
    Views
    17,617

    Sueg, I think most of us have had to wait some...

    Sueg, I think most of us have had to wait some time for a definitive diagnosis. Mine took over a year with all the classic symptoms. My GP refused to refer me for neurological tests and got quite...
  10. Replies
    15
    Views
    6,053

    Hi Nettie, that was a lovely post and good to...

    Hi Nettie, that was a lovely post and good to hear from you again. You must be feeling awfully empty without Trevor. Having lost both a husband and a partner I can empathise with you. Life will...
  11. Replies
    6
    Views
    2,289

    Hi Gini, I take Ri luz ole with no ill effect.if...

    Hi Gini, I take Ri luz ole with no ill effect.if you are concerned about the effect on your other condition why don't you ask ask your oncologists to speak to the neurologist - there may not be a...
  12. Replies
    56
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    22,506

    Hi Dave, I sort of know how you feel as I really...

    Hi Dave, I sort of know how you feel as I really miss my nursing role and my colleagues and patients after 35 years and too feel redundant and useless. I know the hospital I worked in wouldsnap up...
  13. Replies
    24
    Views
    7,416

    Chris, welcome to the family know one wants to...

    Chris, welcome to the family know one wants to belong to. Were all living through this together and you will be able to discuss allsorts, from the intimate to the practical, the bizarre to the...
  14. Replies
    9
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    3,084

    Hi all, I too have heard from Graham and he...

    Hi all, I too have heard from Graham and he sounds quite upbeat which is good news. Hopefully he will be back with us on the forum when he is ready. At least he knows that the MND family here are...
  15. Hello Mike, welcome to the forum. One thing you...

    Hello Mike, welcome to the forum. One thing you can be sure of you've joined a family where we all know exactly how you feel -We've been there or are still there. I won't deny it's a very scary time ...
  16. Replies
    6
    Views
    3,864

    Thank you for your story and for your bravery...

    Thank you for your story and for your bravery with tissue donations on your father's passing . You never know there may have been some sort of breakthrough as a result of that decision so thank you. ...
  17. Thread: Grief

    by Kernowcluck
    Replies
    8
    Views
    3,558

    Sorry to hear about your losses and the pain you...

    Sorry to hear about your losses and the pain you are suffering now. Those of us with MND also go through a grieving process as we lose so much in our day-to-day lives but also our futures which we...
  18. Thread: Bad fall

    by Kernowcluck
    Replies
    101
    Views
    27,909

    Mags I'm so sorry to hear about your fall. They ...

    Mags I'm so sorry to hear about your fall. They they are so frightening. My last fall was the last time I walked and since then I have been hoist/wheelchair dependent. Something I had fought...
  19. Replies
    7
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    6,178

    Thank you for all your replies. I'm just glad my...

    Thank you for all your replies. I'm just glad my first two visits of the day are over now . I know I have a male carer at teatime , With a female, but I don't mind him as it's just a toileting visit...
  20. Replies
    13
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    4,217

    I get acid reflux is well and that feels like a...

    I get acid reflux is well and that feels like a burning sensation in my throat-never had it before and I understand it's a symptom of MND. While we're on the subject of weird sensations I get a...
  21. Replies
    7
    Views
    6,178

    Male carer for female patients

    I just thought I'd run this past you ladies although you gents may have an opinion ifèr the tables were turned.

    My care agency which provides morning and midday care have decided to put one...
  22. Replies
    6
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    2,229

    Terry that is a wonderfully positive idea I love...

    Terry that is a wonderfully positive idea I love it. Wendywoo you can have customised ones – I'm sure the NHS will oblige ha ha
  23. Hello Nixx, what a difficult position you find ...

    Hello Nixx, what a difficult position you find yourselves in. In a way I can understand why your mother in law is clinging on to, in her mind, the last vestiges of independence and dignity. I've...
  24. Replies
    9
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    3,648

    Hi Claire, sorry to hear about your mum but it...

    Hi Claire, sorry to hear about your mum but it least you know have a diagnosis and horrible though that may be you may be able to access services and equipment quicker. Don't fixate too much on the...
  25. Replies
    37
    Views
    11,449

    Dear Craftlad y , there is nothing good about...

    Dear Craftlad y , there is nothing good about this horrible condition. Even with the best will in the world it destroys you mentally and physically and the only consolation I can offer you is that...
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