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  1. Replies
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    Views
    101

    Well done Sarah for starting your Blog. It...

    Well done Sarah for starting your Blog.

    It reads really well and I'll look forward to reading more.

    Love Debbie x
  2. Thread: New to site

    by Deb
    Replies
    6
    Views
    216

    Hi Jeremy, A warm welcome from me to the...

    Hi Jeremy,

    A warm welcome from me to the forum although I am obviously so sorry for your diagnosis.

    The forum is a valuable place for support, advice and friendship.

    Take Care and look...
  3. Thread: Recently diagnosed

    by Deb
    Replies
    10
    Views
    340

    Hi Arta, A warm welcome to our friendly forum....

    Hi Arta,

    A warm welcome to our friendly forum. I am so sorry for your diagnosis.

    When I was diagnosed I felt overwhelmed by the well meaning advice and support from professionals because it...
  4. Replies
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    Hi Carrie and a warm welcome to the forum from...

    Hi Carrie and a warm welcome to the forum from me. In the nicest possible way I hope you are a temporary visitor on here and that you get some answers to explain your symptoms soon.

    Waiting to see...
  5. Thread: Kayleigh

    by Deb
    Replies
    12
    Views
    1,147

    I've been wondering about Kayleigh too as it's...

    I've been wondering about Kayleigh too as it's not like her not to be in touch.

    I was hoping she has gone away on holiday as its half term this week.

    Fingers crossed,
    Love Debbie x
  6. Replies
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    Hello Tot and welcome to the forum although I am...

    Hello Tot and welcome to the forum although I am sorry you have found yourself on here.

    Although you are obviously hoping there is another explanation having a "probable " diagnosis must make it...
  7. Thread: She's Gone

    by Deb
    Replies
    14
    Views
    1,677

    Dear Chrissie, I am so very sorry to hear of...

    Dear Chrissie,

    I am so very sorry to hear of the loss of your beloved Gran. You were such a devoted and loving Grandaughter and your Gran was lucky to have you to care for her.

    I hope you have...
  8. Replies
    47
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    4,608

    Thank you Sarah for keeping us updated. I hope...

    Thank you Sarah for keeping us updated. I hope tonight is better for you and you sort your feed out.

    Thank you to everyone on the thread for their honesty. It really helps to know we're not alone...
  9. Replies
    376
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    34,828

    I am not sure this should be under the good news...

    I am not sure this should be under the good news thread but I feel very lucky to be reclined in my powerchair in the Spanish sunshine, so it seems the right place.

    The health care in Spain has...
  10. Replies
    47
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    4,608

    Hi Sarah , I am so sorry you are feeling low...

    Hi Sarah ,

    I am so sorry you are feeling low but its is totally understandable. Please dont apologise for it ever because it's almost impossible to be positive when MND is relentless. You have...
  11. Thread: So tired

    by Deb
    Replies
    45
    Views
    5,386

    Hi Terry, I've been thinking about you lots...

    Hi Terry,

    I've been thinking about you lots too, recently. I hope you're comfortable and in less pain. I also hope you've been able to sort carers to make life easier for you and your wife.
    ...
  12. Replies
    376
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    34,828

    Would love to know what you're reading Lynne.....

    Would love to know what you're reading Lynne.. it's my favourite thing !

    Hope you continue to feel a little better each day Doug. It's really hard isn't it to get back on an even keel after a...
  13. Thread: So tired

    by Deb
    Replies
    45
    Views
    5,386

    Oh Terry, You are certainly not a wimp ! You...

    Oh Terry,

    You are certainly not a wimp ! You have brought so much warmth, advice and encouragement to the forum over the years. ( and very funny humour !)

    I am not surprised you are fed up,...
  14. Replies
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    Hi Chrissie, Thank you for keeping us updated. ...

    Hi Chrissie, Thank you for keeping us updated.

    Its sounds like your Gran is comfortable and pain free. You are such a loving and devoted granddaughter and you Gran is lucky to have you .

    Take...
  15. Thread: Terrified

    by Deb
    Replies
    9
    Views
    1,489

    Hi Kittybelle, I am so sorry for your symptoms...

    Hi Kittybelle,

    I am so sorry for your symptoms and that you feel so scared and anxious. Waiting to see consultants or waiting for the results of tests is so stressful and it is hard to think of...
  16. Thread: Changes are afoot.

    by Deb
    Replies
    31
    Views
    5,179

    Hi Lynne , So sorry about your fall and I...

    Hi Lynne ,

    So sorry about your fall and I really hope you feel better today. Falling is so scary, undignified and it makes us feel so vulnerable. Rubbish !

    When I was still walking using my...
  17. Replies
    7
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    1,171

    Hi Tangly, I am so very sorry for the...

    Hi Tangly,

    I am so very sorry for the terrible shock and heartbreak of your mum's diagnosis and rapid decline.

    It sounds like you have a wonderful, close and loving relationship. I hope you...
  18. Thread: Terry

    by Deb
    Replies
    101
    Views
    11,754

    So glad you are back home Terry, back on the...

    So glad you are back home Terry, back on the forum and definitely looking more like yourself. We missed you !

    Hope you continue to feel better and enjoy your home comforts,

    Love Debbie x
  19. Thread: Recently diagnosed

    by Deb
    Replies
    6
    Views
    1,281

    Hi Shaun, A warm welcome to the forum,...

    Hi Shaun,

    A warm welcome to the forum, although I am obviously so sorry for your diagnosis. This forum is a really good place for emotional and practical advice.

    The diagnosis is such a...
  20. Thread: Nervous newbie

    by Deb
    Replies
    7
    Views
    1,583

    Hi Claire and a warm welcome to the forum from...

    Hi Claire and a warm welcome to the forum from me.

    I am so sorry for your Dad's diagnosis and for the loss of you grandfather. The diagnosis is such a terrible shock and its really hard to think...
  21. Replies
    376
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    34,828

    Hi everyone, I wanted to keep up the thread,...

    Hi everyone,

    I wanted to keep up the thread, that Dina started because it seems it was really typical of her to celebrate the good things.

    I was due for an MND clinic visit and also for a...
  22. Replies
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    Beautiful words and sentiments Sarah, I am so...

    Beautiful words and sentiments Sarah,

    I am so glad your wife encouraged( pestered ! ) you to share it with us. It made me cry too but in a very warm and hopeful way. You have a wonderful way with...
  23. Thread: Dina's funeral

    by Deb
    Replies
    11
    Views
    1,995

    Thanks for this information Doug, I think...

    Thanks for this information Doug,

    I think about Dina alot and will especially do so on Monday. I think we all miss her humour, bravery,positivity and encouragement on the forum.

    Doug, I really...
  24. Replies
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    3,717

    Thank you for your post Steve and for offering...

    Thank you for your post Steve and for offering tips to MND people and carer.

    Quality of care is so important for quality of life so thank you for supporting your local hospice.

    Love and best...
  25. Replies
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    4,249

    Thanks for the link Barry, It was good to see...

    Thanks for the link Barry,

    It was good to see MND as the headline report on the BBC , promoting awareness. I registered for the trial, although it is initially only available to people in...
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