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Type: Posts; User: Lynne K

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    Hi Arta, welcome to our forums. You sound much...

    Hi Arta, welcome to our forums. You sound much like I started off with this disease. When you feel up to it some planning is good but don’t leave it too long. A consideration of how appropriate...
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    Hi Carrie, I agree with Ellie. Your symptoms...

    Hi Carrie, I agree with Ellie. Your symptoms sound very worrying but not like MND, I hope that the Neurologist that you see will find out what’s happening soon. I’m sorry that you are alone. I’m no...
  3. Thread: New Guy :)

    by Lynne K
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    1,549

    Hi Beemer, a late welcome. I only just saw your...

    Hi Beemer, a late welcome. I only just saw your message. Until you buy new clothes with Velcro fasteners there’s a cheap device available for doing up little buttons and pulling up and down zips. I...
  4. Thread: Kayleigh

    by Lynne K
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    Did Kayleigh mention a holiday or am I dreaming...

    Did Kayleigh mention a holiday or am I dreaming Barry? Lynne
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    Hi Tot, sorry that I can’t answer your question...

    Hi Tot, sorry that I can’t answer your question but wanted to wish you well about getting a definitive diagnosis soon. Have you been referred for tests? The usual ones that help with getting a...
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    Glad that your shoulder is less pain Doug. I saw...

    Glad that your shoulder is less pain Doug. I saw on another post of yours that you’ve got a new desktop pc with Winfows 10. That’s smashing. Enjoy. Sorry that I don’t know about washing toilet seats....
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    Good luck Andy. It sounds great, Lynne

    Good luck Andy. It sounds great, Lynne
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    Hi B, welcome to forums. I’m sorry about your...

    Hi B, welcome to forums. I’m sorry about your dad’s diagnosis. As Ellie said hospices are good. One thing that I always mention to newbies is voice banking. If you put that into the search box posts...
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    Hi Mango. I’m very sorry about your mum’s...

    Hi Mango. I’m very sorry about your mum’s diagnosis. Good luck with getting an appropriate care package. Lynne
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    My neurologist got in touch with local palliative...

    My neurologist got in touch with local palliative care services that included an OT, Physiotherapist and a Speech Therapist. The neurologist that diagnosed me referred me to the MND clinic which is...
  11. Thread: She's Gone

    by Lynne K
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    Thank you Chrissie for your post at this...

    Thank you Chrissie for your post at this difficult time and your kind words. I'm sorry about your grans passing but at least as you explained she wasn't alone. Hugs, Lynne x
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    Yea thanks Sheila. I'm ok. I got a super dupa...

    Yea thanks Sheila. I'm ok. I got a super dupa lift up (from the floor) device delivered yesterday. So, if I fall again my husband will be able to get me up much more easily and I won't be wiped out...
  13. Thread: Advice needed

    by Lynne K
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    Hi Mark. Welcome to forums and sorry about your...

    Hi Mark. Welcome to forums and sorry about your wife's diagnosis. I'm afraid that nobody, even neurologists can determine any MND sufferers rate of decline, nor which symptoms she'll get from a...
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    Thanks Sheila, you hit the nail on the head with...

    Thanks Sheila, you hit the nail on the head with my shaky fingers on my right hand. My left is not so bad but I'm right handed. I'm glad that you understood. It took some angst from me :) x
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    Ellie that's a great idea. I usually post from my...

    Ellie that's a great idea. I usually post from my phone but I think that I'll do so from my laptop in future so that I can do as you do as word is on my laptop and not my phone. Lynne x
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    Sheila, Sarah and Terry. I wrote a long post to...

    Sheila, Sarah and Terry. I wrote a long post to all of you about an hour ago but because of my wayward fingers I accidentally deleted it, instead of posting it. I was so disheartened that I came off...
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    Chrissie, it sounds like your gran could have...

    Chrissie, it sounds like your gran could have benefited from a feeding tube and eye gaze commynication. Hasn't her MND OT or her neurologist talked about these things?, love Lynne x
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    Sounds good about the tramper Jaqui. I hope that...

    Sounds good about the tramper Jaqui. I hope that your fun continues. Lynne x
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    Oh Debbie, I hope that you're embolism melts away...

    Oh Debbie, I hope that you're embolism melts away quickly, and that the hospital sort out either a translator or a medical professional who speaks English.

    About my reading. I've just read three...
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    I hope that you pick up soon Doug. I've had my...

    I hope that you pick up soon Doug. I've had my Thumbprint around for about 2 weeks awaiting my attention. I haven't felt like reading it yet, mostly because I've had my head into books that I've been...
  21. Thread: Advice needed

    by Lynne K
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    Hi Rubyray, welcome to our forums. I'm sorry...

    Hi Rubyray, welcome to our forums. I'm sorry about your mum's fairly recent diagnosis.

    I agree with Ellie that the progress of mnd/als is so varied amongst sufferers that nobody, including...
  22. Thread: So tired

    by Lynne K
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    Thanks CC, well said, Lynne x

    Thanks CC, well said, Lynne x
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    Good luck about your prospective new home Andy. I...

    Good luck about your prospective new home Andy. I hope that all goes to plan. Lynne
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    Hi Jaqui, welcome to our friendly helpful forums....

    Hi Jaqui, welcome to our friendly helpful forums. I'm sorry that you find yourself on this horrid journey with us.

    I too got a 3 month supply of Riluzole at diagnosis day from my neurologist. She...
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    Hi Nav, thank you for your summary of your mums...

    Hi Nav, thank you for your summary of your mums MND journey. I'm very sorry for your financial burden that your mums MND is causing in Kenya. It's enough to deal with the illness without having to...
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