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  1. Replies
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    Trip to Dublin then Ellie, is it? Never...

    Trip to Dublin then Ellie, is it? Never been.....hire a van and take it all there or fit it in the car.....that would be an adventure :-)

    I will look at your link, Terry, thank you for all of the...
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    Hi Dina, Thanks for your message and ideas. I...

    Hi Dina,

    Thanks for your message and ideas. I have tried local charities and they don’t want any of it. Can’t believe they don’t take some of it back and give it a good clean up. No wonder the NHS...
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    Thank you Terry, I am in the Crewe area, so if...

    Thank you Terry, I am in the Crewe area, so if they are able come up with any ideas in this area, that could be good.

    Thank you for your reply.

    Wailywoo
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    Oh Ellie, you are the font of all knowledge and...

    Oh Ellie, you are the font of all knowledge and good ideas.

    If you have a contact for the people who take the equipment abroad, I can’t think of a better cause for it.

    I would love to help out...
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    Unwanted equipment

    Hi,

    Does anyone have any idea who I could give the equipment to that hubby used?

    He had two walking frames, a wheeled commode, 4 elephant feet for the arm chair, 4 walking sticks, toilet frame...
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    Hello everyone, I am so touched by all of your...

    Hello everyone,

    I am so touched by all of your messages. I don’t know what to say other than thank you for all of your support over the last 9 months.

    No doubt I will still be looking at the...
  7. Replies
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    Hi, I am so sorry I haven’t been back on here...

    Hi,

    I am so sorry I haven’t been back on here to respond to your later posts. Hubby was admitted into our local hospital on Wednesday following difficulties with swallowing and not eating for a...
  8. Replies
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    Hi Ellie, Thank you for your reply. I just...

    Hi Ellie,

    Thank you for your reply. I just keep saying to myself "things will be better next week". Out daughter is coming on Friday evening and staying all weekend to help with finishing the...
  9. Replies
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    Thanks Terry, I have some Ensure that I give...

    Thanks Terry,

    I have some Ensure that I give him, but he asks for only half a drink each time and I find that at bedtime I am throwing it away! Not sure how to get any more calories into him....
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    Thank you, Andy, words of encouragement go a long...

    Thank you, Andy, words of encouragement go a long way.

    I have to admit that the amount of weight loss and no PEG in sight has me worried that it will affect his longevity. He eats and drinks very...
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    No PEG admission

    Hi,

    Hubby was supposed to go to the hospital for his PEG on Monday this week and when I phoned to check on the bed availability they said there was no bed available, so no PEG this week and we go...
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    Hi Mickmac, So glad you posted this. Hubby is...

    Hi Mickmac,

    So glad you posted this. Hubby is going into hospital for his PEG placement on Monday. Will be aware now of any changes that might occur.

    Wishing you all the best,
    Wailywoo x
  13. Thread: New

    by Wailywoo
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    Oops, sorry, I didnít realise. Just trying to be...

    Oops, sorry, I didnít realise. Just trying to be helpful.... too zealous, obviously.

    Oh well, it was a good try.... hubby is over 65.

    Wailywoo x
  14. Thread: New

    by Wailywoo
    Replies
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    2,673

    Hi EmmaJ So sorry to hear of the diagnosis. I...

    Hi EmmaJ

    So sorry to hear of the diagnosis. I am the wife. It is quite a shock and best to plan ahead as much as you are able, is one piece of advice I would give as we seem to always be in crisis...
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    Icy cold leg each evening

    Hi,

    I donít quite know what to do with hubby. His right lower leg and foot, the one that his MND all started with, goes icy cold in the evenings. It is warm in the morning after a nights sleep,...
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    Hi all, Thank you so much for your replies. We...

    Hi all,

    Thank you so much for your replies. We decided against valerian for now and have decided to go along the route of massaging foot spa with essential oils in the evening and pain killers...
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    Valerian to help with sleep

    Hi all again,

    I am a little worried about hubby using anything to help him sleep at night. He has suggested valerian, a natural remedy, and I wondered if anyone had any ideas? I donít feel happy...
  18. Hi everyone, Thank you all for your replies. I...

    Hi everyone,

    Thank you all for your replies. I have noted everything.

    I am feeling a little more positive at the moment, so thought I would post a positive message. Hopefully we will get some...
  19. Sooooo........ I am sorry I have not replied to...

    Sooooo........ I am sorry I have not replied to the last few messages! I have been doing more since hubby couldn’t go out, but I am pleased to say we have found a safe way for him to get out of the...
  20. Thread: Struggling

    by Wailywoo
    Replies
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    Hi Mamarics, I have just spent a little while...

    Hi Mamarics,

    I have just spent a little while reading the latest posts as I have been really busy for a couple of weeks and not been able to have a sit down and go through them.

    I just wanted...
  21. Thanks Dina, I can very well understand that...

    Thanks Dina,

    I can very well understand that feeling and feel it is similar to hubby’s way of looking at things.

    I was a little shocked yesterday when he said that he felt guilty for needing...
  22. Hi Kayleigh. Dina & Music man’s wife, Thank...

    Hi Kayleigh. Dina & Music man’s wife,

    Thank you very much for your messages, advice and kind words.

    Thank you for the link Kayleigh.

    I read it, but I am not sure what stage hubby is at...
  23. Hi Broostine93, Thank you very much for...

    Hi Broostine93,

    Thank you very much for leaving your message. I have a feeling things may begin changing. He has decided to go for the PEG now. He keeps asking about getting some rails outside the...
  24. Hi Barry, It’s strange how I read on here how...

    Hi Barry,

    It’s strange how I read on here how everyone seems to have been told what form of MND they have, where as hubby has not been told specifically. I am inclined to agree with your opinion....
  25. Hi Lynne, Thank you very much for taking the...

    Hi Lynne,

    Thank you very much for taking the time to reply to my post. I have had a lot of useful information given here and am very grateful to hear from everyone and glad you echo the advice...
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