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  1. Thread: Lost my dad

    by goldilockz
    Replies
    8
    Views
    2,074

    Thank you all so much for your kind words....

    Thank you all so much for your kind words. Watching my dad deteriorate is the most difficult and humbling experience I have ever encountered. I remember my mum reading a post on the forum and...
  2. Replies
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    Views
    38,263

    Hi Tabby, My heart goes out to you. I lost my...

    Hi Tabby,

    My heart goes out to you. I lost my dad from MND in March, just over a month ago. It is hard. You are not alone xxx
  3. Thread: Lost my dad

    by goldilockz
    Replies
    8
    Views
    2,074

    Lost my dad

    Dear all,

    The last time I posted on these forums was 13th March, regarding whether my dad's needs could be met if he were to be sent home from hospital, which he desperately wanted, despite my mum...
  4. Hi Jude, I know that the cough assisted machine...

    Hi Jude,
    I know that the cough assisted machine my dad used while he was in hospital was an immense relief to him, and all of us. He used it at least twice a day with the assistance of a nurse or my...
  5. Hi Lee and welcome, I have just had a brief...

    Hi Lee and welcome,

    I have just had a brief look at your blog and am so impressed. My lovely dad was diagnosed with MND 3 years ago and is in the latter stages. I feel passionately that more...
  6. Thank you Ann. You're right, we're all very...

    Thank you Ann. You're right, we're all very conflicted just now. Today at the hospital, my dad kept saying 'get me out of here, get me out of here' and was extremely depressed. I agree that if dad...
  7. Thanks so much guys for your wonderful responses,...

    Thanks so much guys for your wonderful responses, so helpful and I'm sure they'll be useful in the near future. Today we were told that there were no immediate plans to discharge dad after all, that...
  8. Replies
    14
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    9,656

    RIP Mr Hawking. Thank you for your contribution...

    RIP Mr Hawking. Thank you for your contribution to science and humanity. Hopefully you have taken us a few steps closer towards a cure for MND.
  9. Thanks so much Wendy, and thank you for sharing...

    Thanks so much Wendy, and thank you for sharing some insight into the care you receive. We have a meeting with the social worker today so I will be pushing for more care and support for my mum....
  10. Wow Ann, I'm so pleased you found carers that...

    Wow Ann, I'm so pleased you found carers that were so good, and able to take the pressure off you somewhat. I will suggest the Palliative team to my mum in the first instance and let her know a...
  11. Hi Ellie, Thank you so much. No, he is not on...

    Hi Ellie,

    Thank you so much. No, he is not on antidepressants. He is very stoic and not willing to acknowledge his depression. In fact, on the rare occasion it has been suggested to him, he has...
  12. Thank you Barry. I think my concern is that we...

    Thank you Barry. I think my concern is that we would be offered a service like the carers who came up before my dad was in hospital who, my mum says, are a bunch of bumbling middle aged women who...
  13. Hi Terry, Lovely to hear from you again. I...

    Hi Terry,

    Lovely to hear from you again. I remember you being a tremendous support to me when I first joined the forums. Dad isn't aggressive as such, he just obviously has a great deal of anger...
  14. Thank you so much. Do you know what type of care...

    Thank you so much. Do you know what type of care this would provide if my dad were to come home, i.e. an all day carer? My concern is that, if he were to come home, no amount of care would be enough...
  15. Dad to be discharged from hospital in critical need of care...Please help

    Dear all,

    I haven't posted on these forums since my dad was first diagnosed with MND in 2014. His situation now is that he is reliant on a ventilator, cannot move any part of his body except a...
  16. Thread: Why?

    by goldilockz
    Replies
    4
    Views
    2,838

    Thank you for your replies. Lorret, I am so...

    Thank you for your replies.
    Lorret, I am so very sorry to read of your loss. My heart goes out to you and I really wish I could give you a hug. Although I have no evidence of an afterlife or...
  17. Thread: Why?

    by goldilockz
    Replies
    4
    Views
    2,838

    Why?

    Hello everyone,
    I have been absent from the forums for a couple of years. My dad was diagnosed with MND in December 2014 and these forums were invaluable during that time. I haven't logged on since,...
  18. Thread: Dating

    by goldilockz
    Replies
    12
    Views
    8,122

    That's true Candle, thank you. I will look into...

    That's true Candle, thank you. I will look into after-work activities that may benefit me and increase my social circle. Thank you for caring xx
  19. Thread: Dating

    by goldilockz
    Replies
    12
    Views
    8,122

    Thank you Springtime, I think you may be right. I...

    Thank you Springtime, I think you may be right. I realised this from reading my message back. I feel lonely in my current situation, knowing few people in my new town and feeling quite isolated, so I...
  20. Thread: Dating

    by goldilockz
    Replies
    12
    Views
    8,122

    Hi Joycie and CC, I have actually moved...

    Hi Joycie and CC,

    I have actually moved further away from my parents. I was offered and accepted a fantastic new job the same week my dad was diagnosed with MND. I had left my last job at the time...
  21. Thread: Dating

    by goldilockz
    Replies
    12
    Views
    8,122

    I don't think so Candle, I certainly haven't come...

    I don't think so Candle, I certainly haven't come across any although it might be worth digging a little deeper. I don't live with my dad (we live about 5-6 hours apart) so don't see him often but...
  22. Thread: Dating

    by goldilockz
    Replies
    12
    Views
    8,122

    Dating

    Apologies for the obscure message, I realise it's probably a little out of place here but wondered if anyone felt similarly. I will try to keep this brief...

    My dad was diagnosed with MND in...
  23. Replies
    1,552
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    483,508

    You're welcome Dave. I think it's very natural...

    You're welcome Dave. I think it's very natural for Sharyn to feel guilty, though obviously she has nothing to feel guilty about. I just think that being involved with MND can make someone question...
  24. Replies
    1,552
    Views
    483,508

    Dave, lovely to read your posts and follow your...

    Dave, lovely to read your posts and follow your ups and downs on this thread, you're so brave and inspirational. Must be so frustrating for you and what a wonderful husband you are, I can't praise...
  25. Thank you Nick, and welcome. Lovely to hear from...

    Thank you Nick, and welcome. Lovely to hear from you and be rest assured you'll get lots of support for your cause on these forums. The world needs more people like you xxx
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