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  1. Replies
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    pete mik. been taking the mucadyne via the...

    pete mik.

    been taking the mucadyne via the peg and it works . get a bit out of puff at times so i use the nippy for about fifteen minutes. I am so releived that it works.

    Take care both of...
  2. Replies
    16
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    11,261

    can you take Mucadyne through a peg

    i have suddenly got lots o
    f sticky secretions in my throat so much that sometimes it blocks my throat and i have to use the nippy in the day.

    my one question is how often do you take it and is...
  3. Replies
    18
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    5,970

    Happy New year to all i havent had my ...

    Happy New year to all

    i havent had my Christmas yet as i have 10 days in hospital with pneumonia

    any tips on how to get off the niippy during the day would be helpful.

    i think in the end...
  4. Replies
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    5,542

    Thanks Terry and Marieline, I am now...

    Thanks Terry and Marieline,

    I am now completely tube fed and will visit my dentist next week ans see shat he can do - Terry - thanks for the MNDA leaflet.

    Kind regards

    Geraldine
  5. THanks Tessa, I will see what I can glean from...

    THanks Tessa,

    I will see what I can glean from the surrey site

    Geraldine
  6. Replies
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    Cleaning my teeth and mouth

    This week I had a visit from my District Nurse. I told her that I was having problems cleaning my teeth inside and keeping my mouth fresh.

    She told me to visit my dentist - which I will do. ...
  7. OT says I need wheelchair ramps, wet room, lift - eligibility rules

    Well yesterday we finally got our first visit from an OT. She was great - we need wheelchair ramps, a wet room and a lift to get from upstairs to down (and back again). All seemed great.

    Today...
  8. Bonnielass, I was diagnosed in JUne last year...

    Bonnielass,

    I was diagnosed in JUne last year and in the last two months have fallen several times due a right foot drop.

    Also I losing dexterity in my fingers and my neck is going now.
    ...
  9. Replies
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    57,894

    MIranda Nutricia nurse has been out twice -...

    MIranda

    Nutricia nurse has been out twice - last friday was the last visit when she noticed I still had a lump.

    They are the most helpful as they see PEGs and RIG every day . the GP I saw had...
  10. Replies
    133
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    57,894

    Pete and Terry thanks for the thoughts and...

    Pete and Terry thanks for the thoughts and response.

    Pete - I an still eat mashed or liquidised food via my mouth but have all my fluids via the RIG now - No problem with the RIG - just my...
  11. Replies
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    57,894

    Hi, I had my RIG fitted on 28th April and no...

    Hi,
    I had my RIG fitted on 28th April and no problems until two weeks ago when i discovered a large lump above and to the left as you look down about the size of a golf ball. Worried that it might...
  12. Replies
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    Thanks Ellie, Went to the clinic on Thursday...

    Thanks Ellie,

    Went to the clinic on Thursday and re did the Lung Function tests and they were much better than the ones I did In Feb . So no't need NIV at the moment .

    I have rejigged my...
  13. Replies
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    14,774

    welcome Durwood, i was diagnosed in June last...

    welcome Durwood,

    i was diagnosed in June last year and also have bulbar onset MND . You will find lots of people on here with good advice and don't forget MND connect which you can ring and get...
  14. Replies
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    9,592

    Any ideas please. I am currently sleeping semi...

    Any ideas please. I am currently sleeping semi upright as I have breathing problems and headaches in the morning if I lie flat. But it is giving me a real problem with my neck that is really sore now...
  15. Thread: my john

    by Hazelnut
    Replies
    9
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    4,559

    Irene I hope John is fit and we'll ASAP . Our...

    Irene
    I hope John is fit and we'll ASAP .
    Our thoughts are with you and john

    Geraldinr
  16. Replies
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    19,457

    Welcome to the forum Ian and Melissa, There is...

    Welcome to the forum Ian and Melissa,

    There is so much knowledge and banter on here - Also MND connect as well.
    The best thing is we all try and look after each other.

    Take Care,

    Geraldine
  17. Replies
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    57,894

    David , I had my RIG fitted on 28th April and...

    David ,

    I had my RIG fitted on 28th April and came home on April 30th a week ago. My RIG was done because of breathing problems although I don't have a BiPap machine yet. I noticed that the...
  18. Thread: Peg procedure

    by Hazelnut
    Replies
    45
    Views
    43,267

    Hi, My advice would be , if you want a PEG get...

    Hi,

    My advice would be , if you want a PEG get it done as soon as possible. I was diagnosed in June last year and decided in March this year to have the PEG while I was still fit and well.

    In...
  19. Replies
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    Julie, The laughing is definitely part of the...

    Julie,

    The laughing is definitely part of the illness. I have MND and whenever things get difficult or someone hurts themselves I just laugh.

    As everyone else has said - get some help and...
  20. Thread: Pip

    by Hazelnut
    Replies
    88
    Views
    71,927

    Lyn , I submitted a PIP claim for myself on 5th...

    Lyn ,
    I submitted a PIP claim for myself on 5th August 2013. After I filled out the form my situation deteriorated. I rang them up several times over the months until it got to the stage that they...
  21. Replies
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    Thanks Martin & Pete, I will try and track...

    Thanks Martin & Pete,

    I will try and track some down tomorrow.


    Geraldine
  22. Replies
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    A bit of a rant maybe!!

    I have just found out that Kingston Council, near me, has been given 30 million to spend on cycle paths - what a waste!!

    My query to my MP on how much the Government has spent on MND research...
  23. Debbie Many thanks for your kind words. My...

    Debbie

    Many thanks for your kind words.

    My husband is a trained counsellor and I thought he was so involved, as my best friend as well but he has suggested that I talk through things with him -...
  24. Also being 64 and 2.5 stone overweight for my...

    Also being 64 and 2.5 stone overweight for my height - as directed by my dietitian - don't lose weight , might be the reason I get out of breath at times
  25. Pete, I thoroughly agree with you comments. ...

    Pete,

    I thoroughly agree with you comments.

    My breathing to me is fine - only going up lots of steps or walking up a long hill makes me out of breath.
    So i am not going to worry about it
    ...
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