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  1. Replies
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    Hi Jade You are really having a tough time,...

    Hi Jade

    You are really having a tough time, sorry to hear about your dad, but I honestly say it's been a crap time to for me and my dad :( I am 34 and have a young family also my dad was...
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    Hi Queenie My dad sleeps a lot but it's...

    Hi Queenie

    My dad sleeps a lot but it's broken sleep throughout the day and throughout the night, and has high co2 levels but has decided not to use NIV due to unable to tolerate and it triggers...
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    Hi Darryl My dads panic attacks have calmed...

    Hi Darryl

    My dads panic attacks have calmed down a lot they was only happening all the time when he was alone in his flat, he was in hospital for 5 weeks and after a week they really calmed down...
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    Thanks candle Just going to take time to...

    Thanks candle

    Just going to take time to adjust to not looking after dad any longer been a stressful 18 months 3 moves for dad as the disease has progressed lots of worry and stress and lots of...
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    Hi Mark Was just thinking about you as I...

    Hi Mark

    Was just thinking about you as I hadn't heard from you in a while, so sorry to only read about you losing your dad to this horrendous disease, no more suffering and at peace big hugs to...
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    Thanks all Life with mnd is so draining and all...

    Thanks all
    Life with mnd is so draining and all along never wanted dad to go in nursing home as I thought I be able to cope I was so wrong, but I know I have done the right thing and knowing dad...
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    Hi freesia Dad is now in nursing home and...

    Hi freesia

    Dad is now in nursing home and went this week on Wednesday so he not fully settled yet and still getting used to it, been to see him a couple of times there and all seems well :) I...
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    Hi all finally found a nursing home for dad and...

    Hi all finally found a nursing home for dad and now just waiting on checks to be done on home as they are out of the area where dad lives he still currently in hospital, I viewed about 10 homes in...
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    Hi freesia Dad has been granted the funding...

    Hi freesia

    Dad has been granted the funding for continuing health care so the costs of dad's care isn't a issue I know deep down that it will be best for dad to go in nursing home as all his care...
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    Hi freesia Dad's social worker was the one...

    Hi freesia

    Dad's social worker was the one that brought up the idea of gong into a nursing home and he agreed as he now said he feels scared and alone and feels like he's dying, doctors and...
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    Hi Julie Sorry to hear your bad news life is...

    Hi Julie

    Sorry to hear your bad news life is bloody cruel as you know, as if you haven't enough to deal with, big hugs to you xxxxx

    All my love Jennie xxxx
  12. Replies
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    Help advice needed !!!!!

    Hi all,

    Ok I am in a position now where thinks have got worse and dad doesn't feel safe/secure in his own home when he is alone, he is panicking and scared, he is still mobile most days but...
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    Hi all Just an update on my dad things have...

    Hi all

    Just an update on my dad things have rapidly gone downhill last week and the stress of it all is really getting to me I hate being the only one that is dealing with dad's care solo, well...
  14. Hi squirrel Sorry to read about the loss of...

    Hi squirrel

    Sorry to read about the loss of your dad, he deteriorated really quickly, like many of the other people on the forum have said mnd does take a while to diagnose as they have to do all...
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    Hi and welcome mazza When my dad was...

    Hi and welcome mazza

    When my dad was diagnosed last March I joined the site few months after and found it helpful and a release if I honest as my friends and family really don't realise what...
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    Nettie It is the cruellest disease because no...

    Nettie

    It is the cruellest disease because no cure just suffering and very little help, the association is amazing and out association visitor is great. So many amazing people suffering with this...
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    Dad now finally got NIV at home been home just...

    Dad now finally got NIV at home been home just over a week but the panic attacks are becoming more and more his dosage of lorazpam have been increased from.1/2 tablet to 1 tablet 1 mg 3 times a day...
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    My dad has been having problems with his eyes for...

    My dad has been having problems with his eyes for about 10 months now started with red eye then over time got worse and started in other eye gp prescribed various eye drops but nothing helped so now...
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    Where abouts in Manchester Pink, my dad in...

    Where abouts in Manchester Pink, my dad in Manchester also in Salford area x Jennie
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    Springtime Sorry to hear about Jim all my...

    Springtime

    Sorry to hear about Jim all my love to you and your family, xxxxx

    All my love Jennie x
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    Hi Nettie Hope you are well I haven't been on...

    Hi Nettie

    Hope you are well I haven't been on site for about a month sorry to read about Trevor x he is in a better place no more suffering xxx all my love Jennie xxx
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    Hi Pink I really feel for you being in this...

    Hi Pink

    I really feel for you being in this situation as I am also looking after my dad, I have to shower dad daily, help him dress and undress, shave him brush his teeth the list is endless so I...
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    Hi all Thanks for your replies still feeling...

    Hi all

    Thanks for your replies still feeling guilty and beating myself up as dad still in hospital, just now trying to sort out training where dad lives for the staff to be able to put NIV on...
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    Feeling guilty

    Hi all

    Just feel like posting this post as it's how I feel at the minute, I am trying to sort out some extra care for over the bank holiday so I can spend some time with the kids as after the...
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    Anxiousness/ Panic Attacks

    Hi all

    Just in the last 2 weeks my dad has been having panic attacks and feeling anixious a lot, he also having breathing difficulties also which he currently in hospital to see if he can tolerate...
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