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Type: Posts; User: Barry52

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  1. Replies
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    Hi TC, Your blood-glucose levels may be low so...

    Hi TC,

    Your blood-glucose levels may be low so I suggest you get it checked out. As for the massage affects I have not experienced this and I use a massage tool on my thighs. I hope you get it...
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    Hello Helen, I’m sorry to hear that your mum...

    Hello Helen,

    I’m sorry to hear that your mum is struggling and she does sound like a case for continuing health care. CHC is provided by the NHS and is granted after assessment of the patient. It...
  3. Thread: Silverstone

    by Barry52
    Replies
    39
    Views
    1,923

    Thanks everyone for checking in on me. Yes...

    Thanks everyone for checking in on me.

    Yes the dreaded C has been troublesome and they gave me laxatives but I am reluctant to take them in case it has the opposite effect. I have increased my...
  4. Thread: Broken wrist

    by Barry52
    Replies
    9
    Views
    484

    Hi Sue, I am sorry to hear that you have...

    Hi Sue,

    I am sorry to hear that you have broken your wrist and I hope you recover soon. Please give Steve my best wishes and I hope to see you both soon at our meetings. Please let me know if...
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    Well done Andy and congratulations. I’m sorry we...

    Well done Andy and congratulations. I’m sorry we didn’t meet up at the conference since I had to cancel due to me falling. I was hoping that MNDA might have posted a link to the speeches, especially...
  6. Thread: Good news

    by Barry52
    Replies
    23
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    1,021

    Hi Lynne, I hope you enjoy the car when it...

    Hi Lynne,

    I hope you enjoy the car when it arrives and good for you to keep driving as long as possible. I got my new Motability car 3 weeks ago and I am delighted with it. It was going to cost a...
  7. Replies
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    Hi Glos, You have a diagnosis from a very...

    Hi Glos,

    You have a diagnosis from a very experienced neurologist and whilst any form of MND is difficult to cope with you have time on your side. That doesn’t mean living with the condition will...
  8. Thread: Silverstone

    by Barry52
    Replies
    39
    Views
    1,923

    Thank you all for the kind words of support and...

    Thank you all for the kind words of support and encouragement. I am starting to get cabin fever and if the weather holds then I will sit in the garden. Running out of happy juice (morphine) but I...
  9. Thread: Silverstone

    by Barry52
    Replies
    39
    Views
    1,923

    Confession time. I fell last Wednesday and...

    Confession time.

    I fell last Wednesday and fractured 2 vertebrae. I’m now on the happy juice.

    Love,
    Barry
  10. Thread: Silverstone

    by Barry52
    Replies
    39
    Views
    1,923

    Thanks for my daily dose of humour Kayleigh. Yes...

    Thanks for my daily dose of humour Kayleigh. Yes a great weekend of sport and I enjoyed the cricket (different game Terry from the 4 day competitions) the best F1 race this year and the tennis.
    ...
  11. Replies
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    Andy, I look forward to meeting you on...

    Andy,

    I look forward to meeting you on Saturday. I assume you will be there?

    The MNDA are no longer live streaming the conference due to cost and lack of use. I support this decision as the...
  12. Hi Wailywoo, It is quite common for people...

    Hi Wailywoo,

    It is quite common for people with MND to be in denial and that makes it difficult for their carer. As Ellie has pointed out the statement from the OT is clearly based on poor...
  13. Thanks for this. Can you please clarify if...

    Thanks for this.

    Can you please clarify if this applies to android and iOS.

    Barry
  14. Hi Wailywoo, You are welcome to let off steam...

    Hi Wailywoo,

    You are welcome to let off steam here as we all understand what you and your husband especially are going through.

    Some people have a severe reaction to riluzole but most tolerate...
  15. Thread: Eye Control

    by Barry52
    Replies
    0
    Views
    235

    Eye Control

    Hello all,

    I want to share with you this update from eyecontrol who presented the equipment to our Nottingham MND group last month. Like all technology the system will drop in price as it gains...
  16. Thread: Sandpiper

    by Barry52
    Replies
    11
    Views
    1,068

    Hello and welcome Sandpiper. Sorry to hear of...

    Hello and welcome Sandpiper.

    Sorry to hear of your diagnosis but you will find friendship and advice from our “family”. Like you I enjoyed gardening but now I sit outside with the Sunday papers...
  17. Replies
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    Hi Debbie, I’m sorry to hear that your health...

    Hi Debbie,

    I’m sorry to hear that your health has worsened following your fall but I hope the medics can ease your pain. Who would have thought that you need an adapted wheelchair to support a leg...
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    Hi Dina, I am saddened that you have...

    Hi Dina,

    I am saddened that you have progressed to this but you still have a wonderful mind that you express so well in words. I hope you find a way of continuing to post on this forum.

    Despite...
  19. Thread: Heartbroken

    by Barry52
    Replies
    27
    Views
    2,326

    I am so sorry to hear that you have lost your...

    I am so sorry to hear that you have lost your beloved Mick. Please don’t blame yourself Shrew as we never know when our time is up and you certainly did everything possible to make his life...
  20. Replies
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    Welcome Ben to the “family”. No one wants to be...

    Welcome Ben to the “family”. No one wants to be here but we gain strength from each other and as you point out the shared knowledge is invaluable.

    You offer a detailed story of your journey so far...
  21. Thread: Hi, Im Juan

    by Barry52
    Replies
    17
    Views
    1,714

    Hello and welcome Juan. I wish you well with...

    Hello and welcome Juan.

    I wish you well with your project and I hope you can understand the banter between Kayleigh and Terry. It made me laugh and we need more humour in our lives.

    Barry
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    Hi Dina, Well done for researching this....

    Hi Dina,

    Well done for researching this. Another example of how drug suppliers exploit people desperate for a cure.

    Barry x
  23. Thread: New member

    by Barry52
    Replies
    16
    Views
    1,593

    Hi Madhur and welcome to our forum family. You...

    Hi Madhur and welcome to our forum family. You add to the list of two or three people from India who occasionally post on here. I wish you well on your journey with MND and if you need advice then...
  24. Replies
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    Hi Ellie, For the first time in years I have...

    Hi Ellie,

    For the first time in years I have not got anything booked in advance and I am saddened. We have our son’s wedding in August when he returns from Tokyo. We will return to Egypt in...
  25. Thread: Soccer

    by Barry52
    Replies
    2
    Views
    244

    Hi CC, Enjoyed watching your team beat France...

    Hi CC,

    Enjoyed watching your team beat France tonight and looking forward to seeing the match between England and USA on Tuesday.

    Love Barry xx
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