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  1. Replies
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    235

    Thanks for starting this thread Tess. I'm going...

    Thanks for starting this thread Tess. I'm going to try some of these suggestions.

    I've been really sad and just watched Downton Abbey in it's entirity including the film. In my defence I used to...
  2. Thread: Flat battery!

    by Deb
    Replies
    0
    Views
    57

    Flat battery!

    Hi Everyone, hope we're all coping with the restrictions.

    Just a quick heads up about car batteries. We have a WAV through motability. Like everyone we have been shielding so have not used it...
  3. Thread: Please help.

    by Deb
    Replies
    16
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    606

    Hi Margaret, I am so sorry you are worried...

    Hi Margaret,

    I am so sorry you are worried about you son. As a mother, with sons in their twenties my heart goes out to you and I can understand your worries on a number of levels. It's not...
  4. Thread: Sad news

    by Deb
    Replies
    5
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    333

    Oh Sue, I am so sorry for the loss of your...

    Oh Sue, I am so sorry for the loss of your beloved Steve,

    My thoughts are with you,
    Love Debbie x
  5. Replies
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    Thanks for keeping us informed Haylis but so...

    Thanks for keeping us informed Haylis but so sorry you've been in discomfort.

    I've everything I can crossed for you too. Good luck and I hope it goes well.

    Love Debbie x
  6. Thread: Introduction

    by Deb
    Replies
    13
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    1,097

    Hi John, I just wanted to say a warm welcome...

    Hi John,

    I just wanted to say a warm welcome to the forum from me. It's a great place for friendship and support from people who really understand. It sounds like you're really proactive in...
  7. Thread: Telling Family

    by Deb
    Replies
    15
    Views
    1,227

    Hi Tess, I am so sorry you are in this...

    Hi Tess,

    I am so sorry you are in this impossible situation but well done for respecting your partner's wishes. It must be so hard for you as you're not getting the support you need, as a carer...
  8. Thread: New reality

    by Deb
    Replies
    3
    Views
    438

    How frustrating and upsetting for you Matthew, ...

    How frustrating and upsetting for you Matthew,

    It's the things we used to do without thinking that really get to us when we cant do them. A thoughtless or insensitive word from someone can really...
  9. Replies
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    Hello Wayne and welcome to the forum from me. ...

    Hello Wayne and welcome to the forum from me.

    I am so sorry for your diagnosis.. You must feel very shocked. The early days are so overwhelming and I found it hard to absorb all the advice from...
  10. Thread: Patient turner

    by Deb
    Replies
    8
    Views
    1,018

    Hi Bexx, So sorry you've got a bad back and...

    Hi Bexx,

    So sorry you've got a bad back and transfers are so tricky. It must be really hard for you both. I often think how hard it would be if it was the other way round for us because my husband...
  11. Replies
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    Soo glad you've got your WAV and you've been out...

    Soo glad you've got your WAV and you've been out and about. That's great !

    My feet are always falling off the footrests both in our WAV and when I go down or up a drop down.It happens in my shower...
  12. Replies
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    Hello Eileen Ann and a warm welcome to the forum,...

    Hello Eileen Ann and a warm welcome to the forum,

    I am so sorry for your diagnosis, it must have been such a shock for you. When I was diagnosed I asked the consultant how quickly I would...
  13. Replies
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    2,694

    Oh Denise, Please dont apologise for how you are...

    Oh Denise, Please dont apologise for how you are feeling. You are dealing with the loss of the future you planned together as well as watching the man you love struggling. It's not surprising you...
  14. Replies
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    Thanks for the update Haylis, It's great that...

    Thanks for the update Haylis,

    It's great that you're finally sorted and comfortable with your catheter and that the UTI , with attitude is better.

    Enjoy being out and about in your WAV. Hope...
  15. Thread: inbox

    by Deb
    Replies
    14
    Views
    5,177

    Thanks for the top tip, Ellie. That's so...

    Thanks for the top tip, Ellie.

    That's so useful as I am definitely a culprit and I didn't realise you could do this.

    Hugs to you,
    Love Debbie x
  16. Replies
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    Oops sorry Doug, Thank you for pointing this out....

    Oops sorry Doug, Thank you for pointing this out. I've emptied it now and got your message.
    Love Debbie x
  17. Replies
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    Hi Elvisfan, It sounds like you are really...

    Hi Elvisfan,

    It sounds like you are really enjoying your home so I am really sorry you are having to consider adaptions. It's really hard to make alterations we dont really want so well done for...
  18. Thread: Life continues

    by Deb
    Replies
    10
    Views
    1,768

    Hi Matthew, Happy New Home from me too !...

    Hi Matthew,

    Happy New Home from me too ! Buying new stuff is all part of the fun so enjoy !

    Hope you get your internet sorted soon so you can settle in properly. I know how frustrating it is...
  19. Replies
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    Hi Denise and welcome! It must be...

    Hi Denise and welcome!

    It must be heartbreaking to watch someone you love progress and struggle to do tasks that most people dont even think about. It's good that you've had a cry and let some of...
  20. Replies
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    1,381

    Hello Steve, I just wanted to say a warm...

    Hello Steve,

    I just wanted to say a warm welcome to the forum from me. It must be so hard to be unable to access the support you need because of the pandemic and you must really be missing your...
  21. Replies
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    Hi Chebs, Lovely to hear from you and thank...

    Hi Chebs,

    Lovely to hear from you and thank you for your update. I really hope you're getting the treatment and help that you need. It's good you've got a diagnosis now on what has been a long...
  22. Replies
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    Finally managed the video ( Take 100 +) It...

    Finally managed the video ( Take 100 +) It didn't help my giggles that the director, who should know better, wanted to put it to music and told me to put on my struggling face ! Poker face was...
  23. Thread: Housing Query

    by Deb
    Replies
    9
    Views
    1,614

    Hi Tess, Well done for looking ahead and being...

    Hi Tess,

    Well done for looking ahead and being proactive about your future needs. I really hope MND Scotland are able to help and it's such a good idea to get the ball rolling. I'm no expert but...
  24. Thread: New to Posting

    by Deb
    Replies
    9
    Views
    1,472

    Hi Lucy and a warm welcome to the forum from me....

    Hi Lucy and a warm welcome to the forum from me. So sorry you've had to join but I'm glad you found us. It's hard making that first post !

    It must be totally heartbreaking to watch someone you...
  25. Replies
    5
    Views
    1,075

    You've got to laugh!

    Hi everyone, hope we're all doing as well as possible during this endless lockdown.

    I have been struggling getting on and off my riser recliner as it rises to put me on my feet and as I am no...
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