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  1. Thread: Rch4

    by Puddy
    Replies
    364
    Views
    88,703

    This thread comes under the heading of Research...

    This thread comes under the heading of Research and Trials. Of course sufferers and their loved ones are going to look at this thread. I did, when my husband was diagnosed with MND, after only 4...
  2. Replies
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    Hi Kayleigh - it's absolutely baking here!...

    Hi Kayleigh - it's absolutely baking here! Nigel's not having any problems taking his tablets. The apitherapy (bee venom) itched like mad and he's scratched them. Now he has a 'trail' which I'm a bit...
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    Nige has Riluzol SUN 50mg. It may be a Spanish...

    Nige has Riluzol SUN 50mg. It may be a Spanish 'make'. Thanks both.
  4. Thread: Rch4

    by Puddy
    Replies
    364
    Views
    88,703

    Just a thought, and you may have already tried...

    Just a thought, and you may have already tried this, but could we bombard our MP's with this?
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    Hi Terry, why is that important, please?

    Hi Terry, why is that important, please?
  6. Replies
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    Thanks Panniertank. I'm so sorry you are alone...

    Thanks Panniertank. I'm so sorry you are alone with this. Yes, at least we have each other and must be grateful for that. xx
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    Thanks Lynne. You take care, too. Xx

    Thanks Lynne. You take care, too. Xx
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    Thanks Deb. The health care is excellent here....

    Thanks Deb. The health care is excellent here. Take care of yourself xx
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    Thanks Lynne. Living in Spain we don't have an...

    Thanks Lynne. Living in Spain we don't have an OT. We've been given loads of forms to fill in by a social worker. Apparently we take it to an office, where it will be graded as to its severity. This...
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    I feel so helpless

    My husband, Nigel, was crying this morning. So far, it’s only his right leg that’s really affected, making walking almost impossible. He can’t get out of a chair, turn over in bed, or get out of bed,...
  11. Thread: Apitherapy

    by Puddy
    Replies
    2
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    355

    Apitherapy

    My husband is having acupuncture sessions at the moment. There isn't much of a noticeable improvement, but maybe it's stabilising the symptoms.

    Anyway, the clinician mentioned that I might like to...
  12. Thread: Signature

    by Puddy
    Replies
    5
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    1,109

    Thanks Ellie - the photo of us is of Viking Day...

    Thanks Ellie - the photo of us is of Viking Day at the local tavern. They cater for every nationality. The night pic is outside our little casa.
  13. Thread: Hi from Spain

    by Puddy
    Replies
    9
    Views
    1,587

    Thank you Debbie. So sorry your plans have gone...

    Thank you Debbie. So sorry your plans have gone awry. xxx
  14. Thread: Signature

    by Puddy
    Replies
    5
    Views
    1,109

    Thanks - have added signature. Let's see if it...

    Thanks - have added signature. Let's see if it works.
  15. We have ceiling fans in every room. Couldnít...

    We have ceiling fans in every room. Couldnít survive without them here.
  16. Thread: Signature

    by Puddy
    Replies
    5
    Views
    1,109

    Signature

    Hi. I canít find how to add a signature please.
  17. Thread: Rch4

    by Puddy
    Replies
    364
    Views
    88,703

    That is so sad. So much goes towards cancer...

    That is so sad. So much goes towards cancer research and their advertising yet MND is just as devastating.
  18. Thread: Rch4

    by Puddy
    Replies
    364
    Views
    88,703

    I've been on the charity website and they have...

    I've been on the charity website and they have removed their contact info because of scams/abuse etc. Does anyone know how I can request this drug for my husband please? Thank you.
  19. Thread: Hi from Spain

    by Puddy
    Replies
    9
    Views
    1,587

    Thanks everybody. The health care here is great....

    Thanks everybody. The health care here is great. We live near Torrevieja and the hospital here is one of the best in the world. We opted for a ground floor flat because of inevitably getting older,...
  20. Thread: Hi from Spain

    by Puddy
    Replies
    9
    Views
    1,587

    Hi from Spain

    My husband, Nigel , was diagnosed with ALS a few weeks ago. We retired to Spain just over two years ago and were enjoying our new lives. Looking forward to picking your brains and maybe I can be of...
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