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  1. Already got breathing issues and have head cold

    Hello all

    I have only been using the bipap for the last few days on a regular basis
    I have developed a cold over the past week and I cant breathe readily through my nose

    Has anyone else had...
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    Jan I have had a pain unfder my left ribs for two...

    Jan I have had a pain unfder my left ribs for two weeks now. I don't know if the accompanying breathlessness emanates from that or is it the start of the diaphragm muscle weakening.

    plus my...
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    Hello all I haver been using bipap, both in...

    Hello all

    I haver been using bipap, both in bed and in the chair

    Can't say I have used it much before. Every time the carers come to hoist me to the shower chair, I have a runny nose and...
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    Contact MNDA. We have a riser recliner chair on...

    Contact MNDA. We have a riser recliner chair on loan

    Re the suction machine, don't use it until it is demonstrated - you need to see how to use the catheters


    Love

    Joycie
  5. Thread: Moods & MND

    by willsandco
    Replies
    10
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    4,645

    My late husband had COPD and sub acute cutaneous...

    My late husband had COPD and sub acute cutaneous lupus and was invalided out years before he died. He hated the winters. By February I had always had enough of him moaning and groaning !

    So I...
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    Steve, I have been ok for so long, as you know! ....

    Steve, I have been ok for so long, as you know! . I have had a bad run since October really.. Seems every couple of days it throws something else up! May as well decide to use it at night! Last...
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    Hello Terry The only time I have levels checked...

    Hello Terry
    The only time I have levels checked is at Sheffield

    Can you check it at home?

    Joycie xx
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    To all our bipap users

    Hello all

    I haven't used bipap much cos I never had the need really.

    But this last week, whenever I wake up from a sleep, I feel breathless. It isn't a "gagging for air" feeling but I know I...
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    I had that, had a succession of paramedics around...

    I had that, had a succession of paramedics around to clear mucus. It is scary! I

    If I get panicked by spasms, I take 0.25 mgs lorezepam under my tongue to relax muscles. Within ten minutes it...
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    Hello My advice to you is to get the ball...

    Hello
    My advice to you is to get the ball rolling

    We started looking for help in August. In September we recruited our first agency for two visits a day, the another agency for the other two...
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    Well, at last you are sorted! I have compiled...

    Well, at last you are sorted!

    I have compiled a folder of personal funny stories and before my voice went completely, I recorded four reminiscences onto a dictaphone machine. Not soon enough for...
  12. Thread: Grieving

    by willsandco
    Replies
    334
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    119,109

    Nettie, I didn't know you had oriental tastes! ...

    Nettie, I didn't know you had oriental tastes! That is so funny! X
  13. Thread: Logging in

    by willsandco
    Replies
    14
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    11,061

    Hello all. Computers lady just left. Somehow or...

    Hello all. Computers lady just left. Somehow or other I had pressed the"private browsing" on and that was the reason!

    These last few days have been frustrating!

    Onwards and upwards!

    Much...
  14. Thread: Logging in

    by willsandco
    Replies
    14
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    11,061

    Jan, if I find the answer, I will let you you...

    Jan, if I find the answer, I will let you you know by pm X Joycie Katrina, I have an iPad Air x
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    Susa, you have got to consider what happens when...

    Susa, you have got to consider what happens when you can't swallow medication! I had hadf my peg fitted for 9 months before I got a chest infection and it affected my swallowing., All medication...
  16. Thread: Logging in

    by willsandco
    Replies
    14
    Views
    11,061

    Scared to mess wit it, katrina. My iPad is my...

    Scared to mess wit it, katrina. My iPad is my lifeline. I can't use laptop any longer -to heavy and cumbersome. Will let you all know what they say xx
  17. Thread: Logging in

    by willsandco
    Replies
    14
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    11,061

    Peter has called the computer experts! X

    Peter has called the computer experts! X
  18. Thread: Logging in

    by willsandco
    Replies
    14
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    11,061

    How do I do that? Bit iof a technophobe here!

    How do I do that? Bit iof a technophobe here!
  19. Thread: Logging in

    by willsandco
    Replies
    14
    Views
    11,061

    Logging in

    Hello all

    Each time I press for forum I have to log in

    What's that all about then?

    In truth I am having the same trouble now with Facebook and hotmail

    We are calling in the computer...
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    i listened to the advice of my neurologists and...

    i listened to the advice of my neurologists and the advice on the forum - and had a feeding tube fitted in January 2015 I didn't need it at all till October when I had a succession of medical...
  21. Thread: Oops!

    by willsandco
    Replies
    4
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    3,500

    Oops!

    Hello all

    I just can't stop giggling!

    Peter said he was going to ask our care agency if they could provide someone to get me dressed and help him take me out in the wheelchair when the weather...
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    Hello katrina, I don't use a straw for that...

    Hello katrina,

    I don't use a straw for that very reason. I do sip orange squash, thickened with thick and easy, and use a teaspoon. And I can drink fresubin

    You just have to be careful
    ...
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    Hello katrina. Just go and organise...

    Hello katrina.

    Just go and organise everything they advise. It takes ages to get it done. Our hoists were due on 9th December. One was fitted Christmas Eve and the other started today to be...
  24. Thread: Hot Bum

    by willsandco
    Replies
    11
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    4,781

    Hello Barry Our OT got us the green sheepskin...

    Hello Barry

    Our OT got us the green sheepskin rug we have, might be worth asking him/her

    Much love

    Joycie x
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    I am reading, Dave! Joycie X

    I am reading, Dave! Joycie X
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