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    Sticky: Hi Terry, Nothing has provoked this - we have...

    Hi Terry,

    Nothing has provoked this - we have just been reviewing our Terms and Conditions and looking at how other similar forums are set up.

    We are constantly looking at ways to improve the...
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    Sticky: Forum Guidelines

    This forum is an online community for people living with or affected by MND to share experiences and support one another. It is also a safe place where people who are experiencing symptoms or...
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    Hi Ellie, Sorry to hear you were having...

    Hi Ellie,

    Sorry to hear you were having difficulties filling out the survey. We've been told by BAPEN that the error on that question has now been fixed, so please do give it another go.
    ...
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    Experiences of tube feeding survey

    The British Association for Parenteral and Enteral Nutrition (BAPEN) is committed to improving care for people receiving artificial nutrition support, which of course includes people living with MND....
  5. Sticky: Awareness raising on BBC Breakfast this week

    Hi all,

    I'm sure some of you probably saw the piece on BBC Breakfast earlier this week featuring sporting legends Doddie Weir, Rob Burrow and Stephen Darby sharing their experiences of living with...
  6. Experiences with inherited MND - Healthtalk

    Researchers at the University of Aberdeen are conducting an interview study about the experiences of families who have been affected by inherited forms of MND, to develop a new web resource on the...
  7. Experiences of applying for Universal Credit

    You may have recently seen a lot of activity from the Campaigns team who are trying to change the way people with terminal illnesses access benefits. There is a Special Rules fast-track in the...
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    Dental services survey

    Deborah Manger is Deputy Medical Director (DMD) and Specialist in Special Care Dentistry at Northamptonshire Healthcare NHS Foundation Trust. To help improve dental services for people with Motor...
  9. Thread: Rch4

    by Admin_MND
    Replies
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    112,092

    We provide the forum to encourage supportive,...

    We provide the forum to encourage supportive, informative and useful conversations for people living with and affected by MND. Occasionally subjects may lead to robust debate and opposing opinions....
  10. New study - Acceptance and Commitment Therapy

    The study
    The purpose of this study is to develop a new form of psychological therapy called Acceptance and Commitment Therapy for improving quality of life in people with MND. We would like to see...
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    Ask a researcher!

    We want to know what you want to know from the people who know!

    At our International Symposium in Perth, Australia in December around 1,000 of the brightest minds in MND research will discuss the...
  12. Thread: MND Register

    by Admin_MND
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    MND Register

    The MND Register of England, Wales and Northern Ireland is a research study funded by the MND Association, and led by Professor Ammar Al-Chalabi at King’s College London and Professor Kevin Talbot at...
  13. Survey from Physical Activity for people with Rare neurological Conditions (PARC)

    The PARC (Physical Activity for people with Rare neurological Conditions) project is exploring physical activity in people living with a rare condition. The project team would like to invite people...
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    Hello all, We have posted a response on the...

    Hello all,

    We have posted a response on the RHC4 thread, which you can find here.

    Many thanks,

    Forum admin,
  15. Thread: Rch4

    by Admin_MND
    Replies
    400
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    112,092

    We apologise for our delayed response to you all....

    We apologise for our delayed response to you all. We have wanted to take the time to properly review the ongoing issues and make sure we are allowing people the right to freedom of expression.

    We...
  16. Thread: Rch4

    by Admin_MND
    Replies
    400
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    112,092

    Good afternoon, We’d like to remind all...

    Good afternoon,

    We’d like to remind all members that this is an open forum supporting a wide range of topics and all users are welcome to comment and contribute. No thread is exclusive to a...
  17. Thread: inbox

    by Admin_MND
    Replies
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    2,711

    Hi Shrew, Once you delete some of your...

    Hi Shrew,

    Once you delete some of your messages then it should free up space for you to receive new messages. Has this worked for you?

    Your 'sent items' folder also count to the full inbox so...
  18. Good morning everyone, Thank you for your...

    Good morning everyone,

    Thank you for your feedback so far. We would like to reiterate that this is by no means a permanent solution and just something we are trialing.

    Many of you have...
  19. Hi Barry, Yes it will indeed apply to...

    Hi Barry,

    Yes it will indeed apply to Android, iSO and other mobile operating systems.

    Thank you.
  20. Changes to the smart phone version of the forum

    From today, we will be trialing a mobile version of the forum, so you will see a change to format if you access it from a smart phone.

    This is in response to the feedback we received, and because...
  21. Volunteers wanted BBC3 article - Post contains reference to funerals

    Please be aware this post prompts discussions about funerals.

    The Association has been contacted by freelance journalist, Erica Buist, who is looking for personal experiences to help with an...
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    Have your say

    As part of a bigger project we are looking at the services and support we offer to people with and affected by MND and we need to know what you think. Are we getting it right? Are we meeting your...
  23. Hi all The new website is now available at...

    Hi all

    The new website is now available at www.mndassociation.org!
  24. New MND Association website launching Tuesday 14 May

    Dear all,

    We’re making some big changes to our main website on Tuesday 14 May.

    The new website – which you’ll find at our familiar address www.mndassociation.org – has improved navigation...
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    Dear Diary…

    People affected by MND are being invited to leave a written legacy for future generations by recording details of a day in their life as part of a long-standing social history project.

    The Mass...
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