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  1. Replies
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    8,141

    Hi Barry, There is no advice for people who...

    Hi Barry,

    There is no advice for people who have had it. My carers and I have all the highlighted symptoms and a young carer still has pneumonia I think. i have not been tested and this...
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    8,141

    Hi Lynne, Hope you are ok and your husband is...

    Hi Lynne,

    Hope you are ok and your husband is behaving. My pneumonia has dried up and gone for now having had the double-barrelled antibiotics.

    My social worker took the time to try and...
  3. Replies
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    1,828

    Definitely YES, we are SHIELDED. Definitely...

    Definitely YES, we are SHIELDED.

    Definitely YES, your carers MUST attend people with MND and SHIELD themselves and their children.
  4. Replies
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    8,141

    My carers been calling 111 but not interested...

    My carers been calling 111 but not interested unless you are dying. Finally got to see the GP today.

    Nearly 4 weeks into covid and the pneumonia is still persisting albeit being much improved from...
  5. Replies
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    8,141

    Government now wants to shield me and you. Six...

    Government now wants to shield me and you. Six weeks too late for me but how the heck do you SHIELD people that need close intimate care?? WTF are these highly paid top brains of the country...
  6. Thread: Nippy 4

    by Graham
    Replies
    16
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    1,707

    hi terry, further to ellie's good advice, the...

    hi terry,

    further to ellie's good advice, the mask may need subtly bending to relieve the pressure points. guessing that cotton wool may relieve pressure.

    love
  7. Thread: Nippy 4

    by Graham
    Replies
    16
    Views
    1,707

    hi terry, you should find help here ...

    hi terry,

    you should find help here

    http://www.nippyventilator.com/support/

    love
  8. Replies
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    8,141

    There must be a huge percentage of our population...

    There must be a huge percentage of our population with or has had coronavirus. The BBC/NHS are pulling our leg by suggesting only 3,000 have had it. The true figure must be at least 300,000. People...
  9. Replies
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    8,141

    hi lynne, I hope you are keeping well and...

    hi lynne,

    I hope you are keeping well and thanks for your kind words. it is common sense to test for people that have natural immunity, but as most ministers are focusing on appearing on love...
  10. Replies
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    8,141

    Hi barry, the type of mnd you have is crucial....

    Hi barry,

    the type of mnd you have is crucial. I have upper neurone disease or brain-rot, which means the lower motor neurones can still do their stuff. my sneezes are legendary and my laptop...
  11. Replies
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    8,141

    great news you are back home terry. IT WOULD...

    great news you are back home terry.

    IT WOULD SEEM THAT I HAVE HAD IT.

    over 3 weeks ago I had flu-like symptoms but went on to get pneumonia. I have had flu jab this season, as always, and...
  12. Replies
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    8,141

    certainly challenging times for us all. hope you...

    certainly challenging times for us all. hope you are ok terry. as long as you watch that no-one comes near you in hospital and you don't touch your face, you should be ok, but hospital is the worst...
  13. Replies
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    8,141

    you sound like trump, cc. only trump has now seen...

    you sound like trump, cc. only trump has now seen the light, as he too is in the 'at risk' category and sees the threat.
  14. Thread: Access to work

    by Graham
    Replies
    6
    Views
    742

    like u say, AtW are a joke. you must use your...

    like u say, AtW are a joke.

    you must use your MP to get any sense out of 'em.

    I have had massive battles with 'em thru my MP but won.
  15. Replies
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    8,141

    It is unrealistic to expect to not get...

    It is unrealistic to expect to not get coronavirus for those of us bedbound and reliant on others to visit and care.

    the choice is; -
    1. get coronavirus and take your chances.
    2. die of...
  16. Replies
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    826

    hi juliette, contact ur MP as urgent. steve...

    hi juliette,

    contact ur MP as urgent. steve bell, care director mnda may help.

    hospitals r no place 4 mnd patients. u r mum's best hope.

    my chc was equally rude n brutal. they gave me till...
  17. Thread: Kayleigh

    by Graham
    Replies
    16
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    3,066

    very worrying. can mnda make contact?

    very worrying. can mnda make contact?
  18. Thread: Diagnosis

    by Graham
    Replies
    3
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    837

    hi, a gene test would be conclusive. In the...

    hi,

    a gene test would be conclusive. In the old days when I was dxed, I was told I had ppms for 2 years. following my gene test, conclusively genetic, however i'm the first known in my family.
  19. Thread: TV programme

    by Graham
    Replies
    4
    Views
    926

    strong lad Stephen but it is intensely...

    strong lad Stephen but it is intensely frustrating that his social care is chaotic. where is mnda care?
  20. Thread: So tired

    by Graham
    Replies
    45
    Views
    6,163

    hi barry, it taks 4evr ritng smpl stuf 4 me...

    hi barry,

    it taks 4evr ritng smpl stuf 4 me nw. 4 al t tek in t wrld, stil cnt hlp pwmnd. tht is y I am devng my own care app.

    hi terry,

    hope things are improving, you need to sort out good...
  21. Thread: So tired

    by Graham
    Replies
    45
    Views
    6,163

    gud 2 no u r mngng of a srts. 12 crers is no gud....

    gud 2 no u r mngng of a srts. 12 crers is no gud. u end up hvng 2 train al t tme. c hw it gos 4 nw but DP may b a bttr optn.

    mi crrer frm salford hs introed mi 2 dis nw lngo lrk. I typ lot fstr n...
  22. Thread: So tired

    by Graham
    Replies
    45
    Views
    6,163

    hi terry, sorry u r struggling mate. when u...

    hi terry,

    sorry u r struggling mate.

    when u go thru the changes it is VERY frightening. I remember.

    I know ur wife doesn't want carers in the house but u need them now.

    suggest...
  23. Thread: Terry

    by Graham
    Replies
    101
    Views
    12,732

    By the 'eck Kitty, if one of my carers dared...

    By the 'eck Kitty, if one of my carers dared question my taste in music, they would have got a PINCH.

    Embrace the pain like dis Terry...

    https://www.youtube.com/watch?v=QjcGfGuDoqs

    Not a...
  24. Thread: Terry

    by Graham
    Replies
    101
    Views
    12,732

    It does knock the stuffin' out of us but a bit of...

    It does knock the stuffin' out of us but a bit of tlc will sort it. Chess and beer 4 now.

    Love Graham
  25. Replies
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    There is much abuse in the NHS. People are...

    There is much abuse in the NHS.

    People are good at turning a blind eye to what really is going on. I am afraid to say this includes MNDA.

    Both your MP and BBC will have emergency lines.
    ...
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