Search:

Type: Posts; User: Barry52

Page 1 of 20 1 2 3 4

Search: Search took 0.07 seconds.

  1. Replies
    22
    Views
    996

    Similarly that Sheffield, another centre of...

    Similarly that Sheffield, another centre of excellence is excluded. I understand that people like me with slow progression are difficult to measure in drug trials but I hope that if they find a...
  2. Replies
    22
    Views
    996

    Here is the link for registration. I hope that...

    Here is the link for registration. I hope that the uptake is high as they need several hundred participants to measure results.

    https://www.mnd-smart.org/about/participant-information

    Barry
  3. Thread: London Eye

    by Barry52
    Replies
    1
    Views
    165

    Hi Paul, ...

    Hi Paul,

    https://www.euansguide.com/reviews/results/?categories=1129&location=Lambeth%2c+London%2c+London%2c+United+Kingdom&pagenum=2&sortby=NumberOfReviews&scroll=results

    Check out the above...
  4. Thread: Terry

    by Barry52
    Replies
    66
    Views
    6,980

    Love it Terry and you haven’t lost your sense of...

    Love it Terry and you haven’t lost your sense of humour despite your situation.

    Love,
    Barry
  5. Replies
    3
    Views
    594

    Hello and welcome Lynne. There is nothing I...

    Hello and welcome Lynne.

    There is nothing I can say that will ease the burden you find yourself in other than we are here to listen and offer advice or moral support.

    I hope that the support...
  6. Thread: Terry

    by Barry52
    Replies
    66
    Views
    6,980

    I also thought “granddad” was some ancient chap...

    I also thought “granddad” was some ancient chap related to Terry and then I met Richard when he brought TC to a meeting in Cambridge a few years ago. To have a friend like Richard is a blessing and I...
  7. Thread: Terry

    by Barry52
    Replies
    66
    Views
    6,980

    I’ve been thinking of you Terry and how bored you...

    I’ve been thinking of you Terry and how bored you must be. I thought it might be a good idea to make a playlist of the music you posted on the wonderful thread started by Big Gee aka Graham. This is...
  8. Thread: Bob Adams

    by Barry52
    Replies
    6
    Views
    1,027

    Hi Lynne, I hope you are having a good day. In...

    Hi Lynne,

    I hope you are having a good day. In answer to your question to Bob I attach a link which shows the benefits of various supplements, including curcumin. The list is published by...
  9. Replies
    8
    Views
    837

    Hi Sarah, I used a few different types of...

    Hi Sarah,

    I used a few different types of beach wheelchairs last year on holiday. Providing you have core strength you should be okay. The ones with the big inflatable wheels are good if the sand...
  10. Thread: Terry

    by Barry52
    Replies
    66
    Views
    6,980

    Oh my dear Terry. Not only was your Christmas...

    Oh my dear Terry.

    Not only was your Christmas spoiled but New Year hasn’t got off to a good start for you. I suspect your dear wife is run ragged back and forth to visit you. I hope they are...
  11. Thread: Bob Adams

    by Barry52
    Replies
    6
    Views
    1,027

    Welcome Biker Bob, From what you say you...

    Welcome Biker Bob,

    From what you say you appear to have a positive approach which will help you with the challenge this disease brings. Exercise is important but as Ellie says, be aware of your...
  12. Thread: Dina RIP

    by Barry52
    Replies
    17
    Views
    2,299

    I am saddened to hear that we have lost another...

    I am saddened to hear that we have lost another warrior in Dina. The lady was a shining light through her positive posts and even with all the adversity she had to face during her stay in hospital,...
  13. Thread: New

    by Barry52
    Replies
    48
    Views
    8,916

    Hi Jo Jo, It is quite common with MND to...

    Hi Jo Jo,

    It is quite common with MND to experience speech problems. I find that because one of the symptoms is over production of saliva and mucus that clearing my throat is a constant issue....
  14. Thread: Terry

    by Barry52
    Replies
    66
    Views
    6,980

    Hi Terry, Sorry to hear that you are still in...

    Hi Terry,

    Sorry to hear that you are still in hospital and I hope they can manage your pain and get you home soon. Here’s wishing you a better 2020 and I will drink a toast to you tomorrow...
  15. Replies
    6
    Views
    1,026

    Hello Vicky, Please accept my condolences for...

    Hello Vicky,

    Please accept my condolences for the loss of your dad. I understand the guilt you feel for not being present when he passed away because this happened to me with my dad. I do believe...
  16. Thread: Lynn & Dave

    by Barry52
    Replies
    6
    Views
    1,073

    Welcome Dave and Lynn. I’m sorry to hear that...

    Welcome Dave and Lynn.

    I’m sorry to hear that your wife has been diagnosed with MND. You can be sure of support and advice here so please keep in touch.

    Best wishes,
    Barry
  17. Thread: Terry

    by Barry52
    Replies
    66
    Views
    6,980

    Thank you CC for the message. Terry you are a...

    Thank you CC for the message.

    Terry you are a fighter and I hope you can shake it off before Christmas. I hope you can get some relief from the pain and you are soon back at home with your wife....
  18. Replies
    128
    Views
    25,915

    Hi PT, I am similar to you in that I don’t use...

    Hi PT,

    I am similar to you in that I don’t use a walker upstairs because I have two steps to negotiate. I believe the fear is caused by a lack of confidence as I ascend okay with two rails but...
  19. Thread: Christmas 2019

    by Barry52
    Replies
    14
    Views
    1,886

    Wishing everyone a peaceful and joyous Christmas....

    Wishing everyone a peaceful and joyous Christmas. Whilst I am slow and unsteady I will still rise (or fall if I have a tipple or two) to the challenge I have undertaken for 30 years, by cooking our...
  20. Thread: Russ60

    by Barry52
    Replies
    12
    Views
    2,209

    Hello Russ and welcome. It will take you time...

    Hello Russ and welcome.

    It will take you time to adjust to life with this disease but you will adjust. As others have said it is unlikely that your stomach problem is related to MND. We often need...
  21. Replies
    4
    Views
    938

    Hi Doug, Sorry to hear that you have had a...

    Hi Doug,

    Sorry to hear that you have had a fall and are now in pain. I hope you feel more comfortable for the big day next week and when I raise a glass or two I will be wishing my forum friends a...
  22. Thread: So so tired

    by Barry52
    Replies
    55
    Views
    10,279

    Hi Terry, I’m sorry to hear that you have not...

    Hi Terry,

    I’m sorry to hear that you have not improved and still appear to be shaking off the virus. This time of year is so difficult for us trying to avoid viruses when we have a weakened immune...
  23. Replies
    15
    Views
    2,894

    Steve I’m sorry to hear about the loss of your...

    Steve I’m sorry to hear about the loss of your wife and I hope you took some comfort from being with her at the end. Please accept my condolences and I hope you and your family can look back on...
  24. Thread: New

    by Barry52
    Replies
    48
    Views
    8,916

    Hi JoJo, I agree with Lynne and we often leave...

    Hi JoJo,

    I agree with Lynne and we often leave it too late to move onto the next piece of equipment to make us safer. If the OT won’t offer a 4 wheel walker you can buy a good one for around 100...
  25. Thread: Hello from me

    by Barry52
    Replies
    6
    Views
    1,465

    Hello and welcome Lesley. Sorry to hear that...

    Hello and welcome Lesley.

    Sorry to hear that your mum has been diagnosed with MND and I understand how you are all in shock since many of us have been through it. Eventually we all see a pathway...
Results 1 to 25 of 500
Page 1 of 20 1 2 3 4