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  1. I moved to CHC from SS funding - and ended up...

    I moved to CHC from SS funding - and ended up with a bill of 650+ per month to top up funding of my care package!
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    Help finding carer on holiday in UK

    I'm going to Bracklesham Bay nr Chichester end of May for a week.
    We're taking my live-in but need extra help in the morning with personal care & hoisting.
    Trying all the local agencies with no...
  3. Thread: plates of meat

    by TJ_ASG
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    9,676

    MNDA has provided me with a loan rise/recline...

    MNDA has provided me with a loan rise/recline chair.
  4. Thread: plates of meat

    by TJ_ASG
    Replies
    30
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    9,676

    I experience cold hands and feet. Down to...

    I experience cold hands and feet. Down to inactivity I suspect.
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    Thanks Pete. I know it will come to a showdown :(

    Thanks Pete. I know it will come to a showdown :(
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    How can I get them to understand...

    How can I get my husband and teenage son to understand the live-in carer is not their housekeeper!?

    The agency can't get anyone to come back because 'there is too much work'. Both the agency and...
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    Can I ask, where you got the Tobii from and was a...

    Can I ask, where you got the Tobii from and was a demo offered?
  8. more useful info ...

    more useful info

    http://www.algarvemobility.com/
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    Theory of Everything bucket collection.

    Is anyone doing anything in Cambridgeshire for this?
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    Done.

    Done.
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    How are you getting on? I am waiting for Access...

    How are you getting on? I am waiting for Access to Work to get bak to me re equipment/assessment
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    Has Jean an MNDA visitor? Also, I have found the...

    Has Jean an MNDA visitor? Also, I have found the MND team at Addenbrookes excellent at 'prodding bottom'!
  13. I think you'll find the rules are different from...

    I think you'll find the rules are different from authority to authority.
    This link might help:...
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    Numbness on face

    After a week or so of fascics to the left of my mouth / lower cheek, I now have numbness on the left of my lower lip & chin.

    Has anyone else experienced this?
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    We have hard flooring. The carers say it is much...

    We have hard flooring. The carers say it is much better than carpet for the hoist.
  16. I wish I had taken my dream trip before I lost...

    I wish I had taken my dream trip before I lost the use of my limbs.
  17. Not there until next month...

    Not there until next month...
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    That's a ridiculous wait for someone with MND - I...

    That's a ridiculous wait for someone with MND - I would ask your MND clinic to get on the case.
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    Well said.

    Well said.
  20. Well, we are back from our holiday and I am...

    Well, we are back from our holiday and I am pleased to report the apartment was even better than we had ever dared to hope.
    The rooms were spacious, all the equipment we needed was available:...
  21. I wish I had gone to Holby City A &E after one ...

    I wish I had gone to Holby City A &E after one my falls, I'd have been diagnosed within the hour!
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    I am pleased to report that following a phone...

    I am pleased to report that following a phone call to the MD by a family member I have received a full refund!
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    Certainly Terry End of July we were WAV shopping...

    Certainly Terry
    End of July we were WAV shopping and one of the vehicles we were considering was a Chrysler Voyager. Jubilee were advertising a pre-owned one for sale so we called them to arrange a...
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    Jubilee Automotive Group

    Has anyone had any dealings with this company?

    They took a 500 deposit from us to secure a viewing; when we heard nothing after 3 weeks, not even a date for a viewing, we asks for our money back,...
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    We are going for it, as long as we can sort out...

    We are going for it, as long as we can sort out carers, or it will not be a holiday for hubby.
    Catheter already sorted!
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