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  1. Replies
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    Hi Ash, Your symptoms are mostly symptoms of...

    Hi Ash,

    Your symptoms are mostly symptoms of Mnd but the time scales do not match any that I can remember. Your problems could be so many other things. They should be able to tell more from the...
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    Hi Scotty; It's a shame that your scooter...

    Hi Scotty;

    It's a shame that your scooter beaches whilst you're trying to get out of the door.

    Do you have any ramp or step up from the inside?

    How long is your ramp outside and can it be...
  3. Thread: Ventilation

    by Terry
    Replies
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    15,816

    You never bore us Dina; Love Terry

    You never bore us Dina;

    Love Terry
  4. Thread: New Member

    by Terry
    Replies
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    Hi Rick and welcome to the forum; Sorry to...

    Hi Rick and welcome to the forum;

    Sorry to hear of your diagnoses, the length or time to get diagnosed and your other problems to.

    It's good to hear you are helping develop things to improve...
  5. Replies
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    One for Cc, You're enjoy tomorrow night, ...

    One for Cc,

    You're enjoy tomorrow night,

    https://youtu.be/02QUmKVsyFY

    https://youtu.be/ijMYA9joQSM

    Love Terry
  6. Replies
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    Pleased for you both, Sue & Steve; Hope you...

    Pleased for you both, Sue & Steve;

    Hope you can rest, be a bit hard first time or two.

    Love Terry
  7. Thread: Hi

    by Terry
    Replies
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    Hi Moto; How are you now and what symptoms etc...

    Hi Moto;

    How are you now and what symptoms etc do you have?

    We normally have a MIR of the brain and a Lumber puncture to rule out other possibilities.

    Love Terry
  8. Thread: Hi

    by Terry
    Replies
    13
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    949

    Hi Moto and welcome to the forum; Foot tapping...

    Hi Moto and welcome to the forum;

    Foot tapping seams a very unusual way for Mnd to start and wonder how it has developed since 7 years ago.

    You mentioned that your Doctor suspects UMND but if...
  9. Replies
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    I don't believe it, Dina; Pleased pleased...

    I don't believe it, Dina;

    Pleased pleased pleased, for you.

    Hugs Terry
  10. Replies
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    Long time since I've heard that Barry, Nice...

    Long time since I've heard that Barry,

    Nice one.

    Love Terry
  11. Replies
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    It can't do any harm, Dina; But I reckon they...

    It can't do any harm, Dina;

    But I reckon they are doing it for their benefit as well as yours.

    Love Terry
  12. Replies
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    Cc; It has to be this version, sang by a great...

    Cc;

    It has to be this version, sang by a great British singer:-

    https://www.youtube.com/watch?v=asOXK9IJPWI

    Love Terry
  13. Replies
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    Hi Dina; I do like that type of music played...

    Hi Dina;

    I do like that type of music played on a real organ live. I went into the EX notre dame years ago when they were playing some heavy music. The whole building shaked. Very moving.
    ...
  14. Thread: New

    by Terry
    Replies
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    Hi Jojo and welcome to the forum; Sorry to...

    Hi Jojo and welcome to the forum;

    Sorry to hear of your partner's very recent diagnoses and you both must be devastated. It will probably take a month or two to get your heads straight.

    Not...
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    Hi Catherine; Maybe get in-touch with your...

    Hi Catherine;

    Maybe get in-touch with your local Mnda group and see about any meetings. 3 Months is a long time to get a referral, especially if he has any problems.

    Love Terry
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    Hi Catherine and welcome to the forum, Sorry...

    Hi Catherine and welcome to the forum,

    Sorry to hear about your husband's recent diagnosis.

    I think that the best way of having a chance of living longer is to keep well narished and moving...
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    Hi Dina; I try to do the same at meeting and...

    Hi Dina;

    I try to do the same at meeting and hospital appointments. So often waiting rooms are quite places, sometimes not if I'm in attendance.

    Love Terry
  18. Replies
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    My grandad drove me out Friday for the day. They...

    My grandad drove me out Friday for the day. They threatened heavy rain so we went into town. We have, in the past visited a art gallery there near a museum. They normally have paintings that...
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    Hi John, I've had all sorts of issues with...

    Hi John,

    I've had all sorts of issues with pants and trousers. Back to front, two legs into one hole. Best thing of all, is a woman who pulls them up twisted and then just yanks them straight,...
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    Hi Dina, A long time since I've heard that, I...

    Hi Dina,

    A long time since I've heard that, I like some classical guitar tunes.

    Love Terry
  21. Replies
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    Congratulations Hayls I started to cry just...

    Congratulations Hayls

    I started to cry just reading your post so my EL has lasted for around nine years. Try not to worry about it, if you get through your wedding, you can do anything.

    Hope...
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    Hi Douglas, Pleased to hear that you are back...

    Hi Douglas,

    Pleased to hear that you are back home although poor Dina will surely miss you both.

    Love Terry
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    Hope it gets sorted without the effigies and pins...

    Hope it gets sorted without the effigies and pins Douglas and Christine;

    Thanks Dina for your support to others.

    Love Terry
  24. Replies
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    Hi Wailywoo; There are places around the...

    Hi Wailywoo;

    There are places around the country that do take some things, try this one and they might pass you on to someone closer or deal with it themselves:- ...
  25. I can imagine that will wind up a few people and...

    I can imagine that will wind up a few people and the staff won't understand.

    Probably best to get a phone number and warn them before hand, also if you are stuck at a pump, you can ring someone. ...
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