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Type: Posts; User: Trevorhb

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  1. Replies
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    21,455

    The forum is still the best sorce for friendship...

    The forum is still the best sorce for friendship and information.
  2. Thread: Trevor update

    by Trevorhb
    Replies
    34
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    10,260

    Trevor update

    Getting very weak, sleeping downstairs now. Continuous Health Care has been agreed and we have a carer in the morning and one sitting with me overnight. Have stopped most medication, what is the...
  3. Thread: Breathing

    by Trevorhb
    Replies
    106
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    44,777

    Concerned about my breathing, my G P has had...

    Concerned about my breathing, my G P has had delivered a oxygen generator and suggested I try and breathe 2% for no more than 2 hours per day.
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    I remember that one, very clever.

    I remember that one, very clever.
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    2,744

    Helping with medical training.

    i am always pleased to help train junior doctors. I have just had our GP visit me at home along with three medical students from Cambridge. They were interested to meet someone with MND and...
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    Sadly there is no cure, they just offer you...

    Sadly there is no cure, they just offer you support and treatment for the symptoms. As this is often just a chat, suggest you go to the nearest centre.
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    Welcome to the forum, remember you are not alone...

    Welcome to the forum, remember you are not alone thinking like that.
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    I have a pre paid funeral plan and paid well...

    I have a pre paid funeral plan and paid well under 4k. It includes church service, cremation, 2 cars, notice in 2 papers and all fees. Dave, yours sounds expensive for what you got.
  9. Welcome to the forum Diane. Try and learn as much...

    Welcome to the forum Diane. Try and learn as much as you can about MND by reading posts on this forum and getting publications from the MNDA and try and stay one step ahead if you can.
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    Now a hospital bed

    Our OT has just been and looking at my condition has ordered a hospital bed and a air mattress, should be here in a week. Everything is moving so quickly now.
  11. Sounds hopeful.

    Sounds hopeful.
  12. Replies
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    It is truly a dreadful disease Peta, all I can...

    It is truly a dreadful disease Peta, all I can say we share your problems and please keep posting.
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    2,923

    Welcome Pauline, we look forward to your...

    Welcome Pauline, we look forward to your contributions and hope we can answer any questions you have.
  14. Fasciculations used to occur anywhere, arms,...

    Fasciculations used to occur anywhere, arms, legs, chest, you name it. Recently I have noticed they have stopped, does this mean the nerves are now all dead?
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    We seemed to agree that we all suffer from cold...

    We seemed to agree that we all suffer from cold feet, but in the night mine are the opposite, really hot, has anyone else noticed that?
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    Well done, we hope to go out this afternoon and...

    Well done, we hope to go out this afternoon and will be taking the new wheelchair.
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    Yes very funny Joyce but if you fall and break...

    Yes very funny Joyce but if you fall and break your hip that will not be funny and cause you and Peter much work and heart ache.
  18. Thread: Grieving

    by Trevorhb
    Replies
    334
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    117,902

    Wonderful words.

    Wonderful words.
  19. Thread: voice going.

    by Trevorhb
    Replies
    26
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    9,519

    Is your swallowing also effected Mik, the two...

    Is your swallowing also effected Mik, the two normally go together.
  20. Thread: Grieving

    by Trevorhb
    Replies
    334
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    117,902

    Will be thinking about you tomorrow Dave, hope it...

    Will be thinking about you tomorrow Dave, hope it goes well.
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    Would this one be any good Spring?...

    Would this one be any good Spring? http://www.saniflo.co.uk/homeowners/sfa-product-line/sanicompact-product-description/
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    They normally will not consider you for a powered...

    They normally will not consider you for a powered chair if you still have any mobility. A basic push one will be supplied to start with.
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    Hi Sylvia, I can identify with everŷthing which...

    Hi Sylvia, I can identify with everŷthing which you see in your husband with what I see in myself. I am so weak now the slightest effort makes me breathless and sweaty. If it is of any comfort you...
  24. Thread: Natural Help

    by Trevorhb
    Replies
    88
    Views
    47,164

    Sensible advice.

    Sensible advice.
  25. Replies
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    I received a 3 year licence without even having a...

    I received a 3 year licence without even having a test, I am sure you should get more than 1 year.
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