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  1. Replies
    29
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    5,094

    Hi Peanut, sorry to hear your diagnosis but...

    Hi Peanut, sorry to hear your diagnosis but welcome to this elite club of lovely people.
    I've been under the care of Dr Sidle at Queen Square for 8 years.
    They are an amazing team.
    You are in...
  2. Thread: Water Cooler

    by Double D
    Replies
    4
    Views
    1,246

    Thanks Terry

    Thanks Terry
  3. Hi Lorri, I'm sure everyone is welcome.

    Hi Lorri,
    I'm sure everyone is welcome.
  4. Hi Gemma, Welcome and I'm so pleased you have...

    Hi Gemma,
    Welcome and I'm so pleased you have contacted this forum.
    Although I've been living with MND for a few years I am relatively new to this.
    Everybody here seems to be very supportive.
    ...
  5. Thread: Water Cooler

    by Double D
    Replies
    4
    Views
    1,246

    Water Cooler

    Hi all,
    I'm finding it increasingly difficult to get myself a glass of water from the kitchen sink so I'm considering a water cooler/dispenser to stand in the corner of my dining room.
    Does anyone...
  6. Replies
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    1,201

    Hi Sarah, I have one. It's very comfortable and...

    Hi Sarah,
    I have one.
    It's very comfortable and supports well but I need someone else to fit and remove it because of my restricted arm/hand mobility
  7. Thread: Flail arm

    by Double D
    Replies
    31
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    9,592

    Hi Terry, I have used it but find it very tiring...

    Hi Terry,
    I have used it but find it very tiring on my neck holding the exact position for it to read my eyes.
  8. Thread: Flail arm

    by Double D
    Replies
    31
    Views
    9,592

    Ellie, Wow, 3660 posts. Do you own this site ;)

    Ellie,
    Wow, 3660 posts.
    Do you own this site
    ;)
  9. Thread: Flail arm

    by Double D
    Replies
    31
    Views
    9,592

    Hi Ellie, I'm still using a regular laptop and...

    Hi Ellie,
    I'm still using a regular laptop and iphone although i have eye gaze for when things get worse.
  10. Thread: Flail arm

    by Double D
    Replies
    31
    Views
    9,592

    Arms and hands now have limited movement. Speech...

    Arms and hands now have limited movement.
    Speech deteriorated during last 3 years.
    Neck weakened during last 2 years.
    Legs are still good.
  11. Thread: Flail arm

    by Double D
    Replies
    31
    Views
    9,592

    Hi Shaun, I had fasciculations in one arm and...

    Hi Shaun,
    I had fasciculations in one arm and finger cramps for a year and a half before MND diagnosed in Oct 2006.
    DD
  12. Thread: Flail arm

    by Double D
    Replies
    31
    Views
    9,592

    Hi Happy Chappy, How are you doing. I've had...

    Hi Happy Chappy,
    How are you doing.
    I've had flail arm for 13 years.
  13. Thread: Riluzole

    by Double D
    Replies
    19
    Views
    8,821

    I have a couple of spare boxes if anyone is in...

    I have a couple of spare boxes if anyone is in urgent need.
  14. Thread: DVLA Enquiry

    by Double D
    Replies
    13
    Views
    6,021

    I have no idea who it is or what they've said....

    I have no idea who it is or what they've said. DVLA won't say. My GP and neurologist have no concerns about my driving.
  15. Thread: DVLA Enquiry

    by Double D
    Replies
    13
    Views
    6,021

    DVLA Enquiry

    Hi everyone,
    I've received a letter from DVLA saying they have received notification from an anonymous third party who thinks I shouldn't be driving with MND.
    Honestly, some kind soul thinks MND...
  16. Replies
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    4,653

    Thanks Ellie.

    Thanks Ellie.
  17. Replies
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    4,653

    Thanks Wendy. I'll have a chat with my...

    Thanks Wendy.
    I'll have a chat with my neurologist.
  18. Replies
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    4,653

    DLA Change to PIP

    I have just received a letter from DWP saying that my DLA is ending and I need to apply for PIP.
    It indicates I will need to have an assessment.
    Is this correct ?
    I understood MND patients had an...
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