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Type: Posts; User: Gillette

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  1. Replies
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    Hi Sheila, Iím afraid I donít understand what...

    Hi Sheila,

    Iím afraid I donít understand what you mean by Ďjerkí.

    The Nippy is used when your chest muscles have lost some of their strength and your lungs are no longer able to expel enough...
  2. Replies
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    61,653

    Well, my carers spend a lot of time shaking my...

    Well, my carers spend a lot of time shaking my hips to get me in the right position and it has been said that my hips move better than Shakira’s! (Well, someone could have said it. ;) )
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    61,653

    My carers and I have been having a laugh this...

    My carers and I have been having a laugh this afternoon while they were trying get me straight in bed. Weíve decided that this is our theme tune:

    https://www.youtube.com/watch?v=DUT5rEU6pqM
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    And Andy, my toys have not just been thrown out...

    And Andy, my toys have not just been thrown out of my pram but directly at *you* as you have scored a direct hit on my Achilles heel. I am unbelievably touchy about people getting my name wrong. (Iím...
  5. Thread: What Now?

    by Gillette
    Replies
    58
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    2,770

    Chrissie, I am so glad that your therapist is...

    Chrissie, I am so glad that your therapist is taking some constructive steps to help you and your Gran.

    Absolutely no need to apologise for venting. We are all here because of MND - we seek help,...
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    Hi Chrissie Yes, mine is powered: itís the...

    Hi Chrissie

    Yes, mine is powered: itís the Salsa Mini 2. Iím beginning to find it difficult to drive it so am going to ring the Posture and Mobility Service (the Wheelchair Team) who provided it,...
  7. Thread: What Now?

    by Gillette
    Replies
    58
    Views
    2,770

    Broostine, you may have cracked but I am talking...

    Broostine, you may have cracked but I am talking about a complete breakdown, which is where you are headed. If your Gran wonít give you a break you really must just take one: decide youíre not going...
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    264

    Hi Chrissie Oh no, what an awful...

    Hi Chrissie

    Oh no, what an awful disappointment! I canít imagine why it should have taken so long to get a wheelchair.

    Have you thought of ringing MND Connect to ask for advice?

    Itís not at...
  9. Thread: What Now?

    by Gillette
    Replies
    58
    Views
    2,770

    Hi Chrissie I apologise for jumping in on...

    Hi Chrissie

    I apologise for jumping in on this thread but, having read through it, I am very concerned about your wellbeing. I really do understand that you want the best for your Gran *but* you...
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    Hi Andy Itís good to hear you are being...

    Hi Andy

    Itís good to hear you are being sensible. With MND being stoic is not a good option - it tends to come back and bite you on the bottom!
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    Andy, when you were fitted with your mask did...

    Andy, when you were fitted with your mask did they try a wide selection with you? They should be able to offer you many different masks to try.
  12. Replies
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    Hi Andy I use a Nippy 3 overnight. The mask I...

    Hi Andy

    I use a Nippy 3 overnight. The mask I use sits beneath the nostrils and doesnít actually touch the front or sides of the nose. Itís the ResMed AirFit N30i

    The packaging says you can see...
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    61,653

    It reminded me of this song: ...

    It reminded me of this song:

    https://www.youtube.com/watch?v=DnBM4TV6JCU
  14. Replies
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    11,306

    I had a fabulous time yesterday: the...

    I had a fabulous time yesterday: the entertainment was good, the food and drink delicious, and wonderful company. I saw so many lovely friends and the whole thing has given me a tremendous boost. The...
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    11,306

    I think itís brilliant that you have found a...

    I think itís brilliant that you have found a positive in your EL, Hayls. Well done.
  16. Replies
    201
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    11,306

    Todayís good thing is that I am due to go out...

    Todayís good thing is that I am due to go out with family to a celebration being held at the end of the Celebrating Syria Festival. Lots of good friends will be there. Iím really looking forward to...
  17. Replies
    201
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    11,306

    Oh, I thought youíd want to spice up your life,...

    Oh, I thought youíd want to spice up your life, Kayleigh

    https://www.youtube.com/watch?v=F37Uu7w7qrE
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    11,306

    Iím confused, Barry. Why do you want to make...

    Iím confused, Barry.

    Why do you want to make your wardrobe smell of out-of-date spices?
  19. Replies
    201
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    11,306

    Todayís good thing: I can still eat crisps! Had a...

    Todayís good thing: I can still eat crisps! Had a bit of an emergency yesterday when I choked on a crisp, but Iím ok today and back to eating crisps. Everyone else thinks I shouldnít eat them but I...
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    201
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    11,306

    Hi Debbie What a wonderful thing for them to...

    Hi Debbie

    What a wonderful thing for them to do. No wonder itís kept a smile on your face! And you should definitely celebrate it.
  21. Thread: What Now?

    by Gillette
    Replies
    58
    Views
    2,770

    Oh, Broostine, Iím so sorry you are feeling...

    Oh, Broostine,

    Iím so sorry you are feeling desperate. You are in a dreadfully difficult position but Iím sure your Gran doesnít mean to make you feel so desperate. MND alone is enough of a curse,...
  22. Thread: Frieda

    by Gillette
    Replies
    19
    Views
    730

    Hi Frieda and welcome to the forum no-one wants...

    Hi Frieda and welcome to the forum no-one wants to need.

    Sorry youíve been diagnosed with this horrid disease. I hope youíre getting good support from family and friends, but also from your...
  23. Replies
    369
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    96,151

    Hmph. Well, I didnít like to say, but I was more...

    Hmph. Well, I didnít like to say, but I was more than a little miffed that I wasnít on the Eggheads team. Oh well, Iíll just have to carry on as the femme fatale (or, more accurately, Ďfatalí) Iíve...
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    302
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    61,653

    We used to put our tree up the weekend before...

    We used to put our tree up the weekend before Christmas. Every year I would get frustrated (and annoyed) because I couldnít put get the lights evenly spaced. In the end, my sons banned me from...
  25. Replies
    369
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    96,151

    Well, when I was in there I did see a group of...

    Well, when I was in there I did see a group of pretty young women surrounding a chap looking like the cat who got the cream. And there was a sweet-looking chap looking enviously across from a nearby...
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