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Hi Jo jo

My MND started with foot drop. I was given an Orliman Boxia orthotic:

https://www.orliman.com/en/product/calf-support-for-the-boxia-drop-foot-ankle-brace/

It’s still a very helpful...

Phew!

Thank you ladies.

I much prefer contented pussies.

Doug xx

Thank you everyone for your advice and good wishes.

Apparently, I need to do all the recording and then notify the MNDA at the end.

Doug

Today's good thing is learning that the MNDA will consider funding my attempt to bank my voice using Acapela.

Thank you MNDA!

Doug

I found a bottle of Grahams '77 I didn't know I had!

Doug

MNDA's action this morning on another thread!

Doug

Many thanks , as always, Lee for your thought provoking blog, and especially for the link to the Bledlack paper on plateaux in MND - very interesting.

Doug

Gosh, Kayleigh!

You do find some amazing videos.

Yes, that’s very like it. Mine was black. That one looks a bit posher. It seems to have a radio – unheard of in my day. The indicators in the...

Hi Kayleigh and everyone

Thank you for your kind responses about my new car. I don’t want to go on about it, but I am amazed at the technological advances in just three years in a similar make and...

For weeks now I’ve been facing the likelihood of having to give up driving because of increasing weakness in my left leg.

Today I took delivery of an automatic car!

So it looks like I’ll be...

Hi Lynne

They help, but you have to be careful.

The big improvement was from a steroid injection, though.

Doug

Well, strangely enough I am – or should be.

I was told to do them by my PT as part of the exercises to clear up a damaged rotator cuff in my left shoulder, which is still niggling away. But I...

Thanks Ben!

That's very helpful for forum members to know.

Doug

One of my favourite radio programmes is The Life Scientific on Radio4 with Jim al-Khalili. Yesterday’s guest was Elizabeth Fisher, Professor of Neurogenetics at University College London.
...

I'm a lay member of the steering committee of this project, which I think could potentially be very helpful.

Doug

Many thanks, John.

That's really helpful information.

Clearly I've got a lot of research to do!

Doug

‘Scuse me ladies!

Sorry to interrupt. Just squeeze tight for a second while I add my beloved Helen Mirren to the list.

OK, as you were. You can carry on…… dreaming now.

Hugs
Doug

Hi Dina, Andy, Kayleigh

Thank you ever so much for all the information and links. I will definitely follow it up.

I'm most grateful!

Doug

May I ask -

Does anyone have any experience or knowledge of modifications to cars involving transferring pedal actions to hand controls?

Many thanks!

Doug

Many thanks Kayleigh (seriously!)

I can see I must get a bobble hat.

Hugs

Doug

Don't worry ladies, you can all have a go!

Hugs

Doug

Darling Dina

You are SOooo naughty! And Kayleigh and Ellie are not much better.

You may be leaving hospital today (Hooray!) but I shall be heading for the cardiac ward if there is any more talk...

That's fabulous news Dina!

Thanks for letting us know. I had been getting worried.

Now calm down and stop jigging about like a Doll-in-the-Box. You'll pull out the plumbing!

All fingers...

Darling Kayleigh

I don’t know how you do it! Such imagination!

But thank you so much for chuckles.

My favourite confectionery since childhood – more recently ousted by top quality dark...

Kayleigh

I am shocked! ;)

Me, naughty, never! I am a respectable, upright - well, not so upright nowadays - member of society.

…..on the outside.

Doug