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Type: Posts; User: SallyB

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    Hi twitcher1 I was misdiagnosed with Tranverse...

    Hi twitcher1
    I was misdiagnosed with Tranverse myelitis then progressive Ms. I have had symptoms since May09 but was n't given Als Mnd until feb 2011.
    Sally
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    Hi Jacqui I had a peg fItted 6 weeks ago as I...

    Hi Jacqui

    I had a peg fItted 6 weeks ago as I d read if I was going to have one better to do it sooner than later. The procedure only took 20mins. I stayed in hospital overnight. I was quite sore...
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    Hi Vanessa I also have urgency and frequency...

    Hi Vanessa
    I also have urgency and frequency especially on a morning. As it isn't normally a symptom of Mnd my consultant sent me to an urologist. The outcome was that according to the urologist 1...
  4. Thread: Speech Software

    by SallyB
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    4,087

    Hi I have an iPad and you can get an App called...

    Hi
    I have an iPad and you can get an App called "Verbally" for free. It has basic phrases and words, and tries to predict as you text. There is a choice of 2 speakers,one male, one female. I don't...
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    Hi I had a stairlift installed and now realising...

    Hi
    I had a stairlift installed and now realising that as my trunk muscles get weaker it will no longer be safe. We've just finshed looking into a through floor lift. As Luce says getting a grant is...
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    Stairlifts and harness

    Hi
    Does anyone use a harness on a stair lift? I have been advised to have a through lift installed which will create up heaval (moving radiators, widening doors, moving family bedrooms etc). Having...
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    Hi John I also got an exemption form from my...

    Hi John

    I also got an exemption form from my Gp who has to sign it. Although Mnd isn't listed as exempt i got it
    on the grounds

    "A continuing physical disability which means you cannot go...
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    Hi Rob We always said cruising wouldn't be for...

    Hi Rob
    We always said cruising wouldn't be for us but as I would have difficulty flying now we thought cruising would be a good option. When you went did you have a disabled cabin, if so what...
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    Hi Has anyone been on a cruise? People have...

    Hi
    Has anyone been on a cruise? People have recommended them and say the disabled facilities are excellent. Wondered if anyone had actually been and what the cabin facilities, boarding etc are...
  10. Thread: Tough few weeks

    by SallyB
    Replies
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    7,122

    Hi Chris Sorry you've had a tough couple of...

    Hi Chris
    Sorry you've had a tough couple of weeks. Like you all of a sudden my body has deteriorated. My legs gave way causing me to fall into my frame and getting entangled in it, totally stuck. I...
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    Hi I've always wondered if my original neck...

    Hi
    I've always wondered if my original neck problem triggered off the onset of Mnd? Interesting to hear other people have experienced similar neck/spine problems initially.

    I can also identify...
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    Hi Graham My first MRI scan was in2007 which...

    Hi Graham
    My first MRI scan was in2007 which showed a bulging disc between the spinal nerves C7&C8 after having neck pain radiating down the right arm. After 18 months the symptoms had gone as the...
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    Hi All I yet again had weakness and slurred...

    Hi All
    I yet again had weakness and slurred speech when I re introduced Rilutek. Everyones comments have been really interesting but I agree we are all unique and experience different problems. I've...
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    Hi Vane I will be very interested to hear what...

    Hi Vane
    I will be very interested to hear what the consultant says?
    Thanks Sally
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    Thanks for that. I've decided to leave off the...

    Thanks for that. I've decided to leave off the medication for a week then re-start on a lower dose and take it from there. I also have seen two consultants, one who reading between the lines doesn't...
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