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Type: Posts; User: Ellie

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  1. Thread: Jordan farrell

    by Ellie
    Replies
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    462

    Jordan, yes anxiety can cause real physical...

    Jordan, yes anxiety can cause real physical symptoms.

    I think you are right to see a Neurologist for peace of mind.

    Whilst waiting for that appointment, for your own sake, do try and manage...
  2. Thread: Jordan farrell

    by Ellie
    Replies
    20
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    462

    Jordan, please be honest and open with your GP...

    Jordan, please be honest and open with your GP re your anxieties and your symptoms, and how your life is being affected, both physically & mentally.

    If that GP doesn't take you seriously, change...
  3. Thread: Frieda

    by Ellie
    Replies
    33
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    1,673

    Thanks for the update Frieda - onwards &...

    Thanks for the update Frieda - onwards & upwards (hopefully!)
  4. Thread: Jordan farrell

    by Ellie
    Replies
    20
    Views
    462

    Hi Jordan, Sorry you're having those symptoms....

    Hi Jordan,

    Sorry you're having those symptoms.

    They don't sound like MND symptoms at all - what did your GP say?

    Love Ellie.
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    Yeah Andy, and I use eye gaze to type, hence the...

    Yeah Andy, and I use eye gaze to type, hence the acronyms....
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    307

    Jerry, I'm not surprised you're finding life in...

    Jerry, I'm not surprised you're finding life in London so difficult, given who and what you left behind in Thailand....

    Hope you find suitable accommodation ASAP.

    Sending you a big hug.
    ...
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    Was it the Charleston or the Jive that reminded...

    Was it the Charleston or the Jive that reminded you of your youth, Barry ?? I'm teasing ;)

    Great Jailhouse Rock last night - were you as nimble as Kelvin back in the day?

    Love Ellie.
  8. Replies
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    Hi Andy, If you want to know how your...

    Hi Andy,

    If you want to know how your breathing is doing, the “alphabet soup” (nice one :)) of data is how you track it.

    As our diaphragm and intercostal muscles weaken, it affects how much...
  9. Sarah, absolutely nothing wrong with having an...

    Sarah, absolutely nothing wrong with having an occasional duvet day 😀

    I am a great believer in using any aid which conserves my energy - although I fully understand why many people struggle...
  10. Thread: Frieda

    by Ellie
    Replies
    33
    Views
    1,673

    Hope it goes well for you this time Frieda - ...

    Hope it goes well for you this time Frieda - good luck!
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    Jerry, Have you tried the specialist home swap...

    Jerry,

    Have you tried the specialist home swap websites too? For example HomeSwapper & Glassbob, to name just two.

    Hope you're doing as well as possible?

    Love Ellie.
  12. Hi Sarah, (MND Connect are off until Monday,...

    Hi Sarah,

    (MND Connect are off until Monday, so I'll give you my thoughts)

    I'm sorry you're feeling despondent, I don't blame you, you're at a very difficult stage of the disease :(

    I also...
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    Oh Miranda, that must have been very stressful...

    Oh Miranda, that must have been very stressful for you all. Glad to hear hubby is safely home in his own bed, hope his recovery goes well.

    Kudos to your boys.

    The first of many grocery...
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    Barbara, that's horrific treatment of your dad!...

    Barbara, that's horrific treatment of your dad!

    There are various different drive control options on a powerchair and the MNDA have special wheelchair specs with 3 manufacturers, all giving head...
  15. Oh Barbara, I am so sorry you're going through...

    Oh Barbara, I am so sorry you're going through all this - it must be very stressful for you all :(

    I guess your dad has lost control of so many area of his daily life and he is exerting control...
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    Twiching is VERY, VERY COMMON among the the...

    Twiching is VERY, VERY COMMON among the the general popoulation - it means nothing and is certainly not MND in the absence of clinical weakness and very abnormal EMG test results.

    Please realise...
  17. Replies
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    Yes, kudos to you Barry for braving the roads. ...

    Yes, kudos to you Barry for braving the roads.

    Also, well done to the Chairman of Nottingham Council for choosing to support the MNDA as the charity for the year - 7k is a lot of money!

    Hope...
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    Hi TAPG, I am sorry you're so anxious. ...

    Hi TAPG,

    I am sorry you're so anxious. Anxiety is very debilitating and can take over your life - it is an illness in itself which needs treating.

    Your Neurologist was not able to reassure...
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    Hi Chas, Sorry to hear of your woes. There...

    Hi Chas,

    Sorry to hear of your woes.

    There are many ways to get a comfortable night's sleep, eliminating pain and breathing anxiety. Now for the questions :rolleyes:

    What's your bed set-up...
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    Great news re new cushion Debbie - hopefully...

    Great news re new cushion Debbie - hopefully your bottom and coccyx will love the relief!!

    Red wine & chips sounds indulgent :)

    Glad you'd a good day.

    Love Ellie.
  21. Thread: Frieda

    by Ellie
    Replies
    33
    Views
    1,673

    Frieda, Do contact your OT / Physiotherapist...

    Frieda,

    Do contact your OT / Physiotherapist ASAP to assess you for an orthotic brace or support, which could improve your stability, making walking easier - for example, an ankle brace will...
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    Andy, Do St Thomas's resp team give you full...

    Andy,

    Do St Thomas's resp team give you full Pulmonary Function Tests (PFTs) too or, at least, does someone regularly monitor your PFTs and keep an eye on your FVC/SVC, MIP, MEP etc? (I think I...
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    My Good Thing today is that I had a sublime ...

    My Good Thing today is that I had a sublime massage this afternoon :D

    Feelin chilled, warm and can smell the essential oil still on me.

    Hope everyone is managing to keep warm and safe.
    ...
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    Hi Sheila, I hope you get on well on Monday. ...

    Hi Sheila,

    I hope you get on well on Monday. I know you will be anxious at the appointment, but you know a bit of information about feeding tubes and you now know lots of your new friends who...
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    Hi Sarah, Hope next week goes to plan. Love...

    Hi Sarah,

    Hope next week goes to plan.

    Love Ellie.
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