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Type: Posts; User: Gillette

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    Jordan, some areas have a self-referral system...

    Jordan, some areas have a self-referral system for mental health issues. Maybe you are in such an area.
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    Best wishes, Jordan

    Best wishes, Jordan
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    Jordan, I’m glad you recognise your mistake....

    Jordan, I’m glad you recognise your mistake. Never try to self-diagnose. Please understand and respect the fact that that this is a safe, supportive place for people affected by MND. If you were to...
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    Hi Jordan Are you worried or stressed about...

    Hi Jordan

    Are you worried or stressed about anything, apart from your health worries? Although there is a slight chance that there is a physical cause for your symptoms, they sound as though they...
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    Thatís a lovely song to drift off to sleep to,...

    Thatís a lovely song to drift off to sleep to, Kayleigh.

    This song is another of my favourites. I first heard it on Radio Luxembourg and immediately loved it.
    ...
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    Itís good to know you are going to ask your GP...

    Itís good to know you are going to ask your GP for help. Thatís a hugely important first step. Well done. Please tell us how you get on.
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    Rod Stewartís is good but itís Van Morrison for...

    Rod Stewartís is good but itís Van Morrison for me.
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    Panniertank, I am so sorry your suffering is...

    Panniertank, I am so sorry your suffering is increasing. Having suffered both panic attacks and insomnia I understand some of what you are going through. My heart goes out to you.

    When you saw the...
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    Hi Kayleigh I remember that song on an album...

    Hi Kayleigh

    I remember that song on an album by Neil Young when I was young.
  10. Hi Sarah Iím sorry that your symptoms are...

    Hi Sarah

    Iím sorry that your symptoms are worsening, thatís miserable. If the symptoms are affecting your quality of life then it makes sense to seek help to ease them.
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    After all that dancing I thought I would slow...

    After all that dancing I thought I would slow things down a bit. So, for all you romantics, how about this:

    https://www.youtube.com/watch?v=5z6h1mU4JlQ
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    Hi Chas Have you tried sleeping in a more...

    Hi Chas

    Have you tried sleeping in a more upright position? By that I mean sitting propped up by pillows. That may help. Good luck!
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    Hi Barry I hope you didnít put yourself in...

    Hi Barry

    I hope you didnít put yourself in danger getting to and from the meeting. And itís good news indeed about being chosen as the charity of the year by the council leader.
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    Thanks, Debbie. Don’t worry about the red wine...

    Thanks, Debbie.

    Don’t worry about the red wine - it’s supposed to be good for warding off heart attacks - and you need the chips as you have to maintain your body weight. So, actually, it was very...
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    We were due to go shopping today but it didn't...

    We were due to go shopping today but it didn't happen.
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    Thank you for posting the link, Barry. It just...

    Thank you for posting the link, Barry. It just goes to show that MND can hit anyone, regardless of age or state of health.

    By the way, today's good thing has yet to find its way out from among the...
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    I'm in the mood for a bit of music this...

    I'm in the mood for a bit of music this afternoon:

    https://www.youtube.com/watch?v=wBciual7Ww4
  18. Thread: Help needed

    by Gillette
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    Hi anxious1, Please don't feel guilty or...

    Hi anxious1,

    Please don't feel guilty or worried about posting on the forum. Yes, we know about this bl**dy disease and many of us do have it, but I hope we are not blind or deaf to the suffering...
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    Hi Sheila I had sedation for the procedure so...

    Hi Sheila

    I had sedation for the procedure so there wasnít any pain or discomfort at all. When the tube was pulled down my throat I knew it was going down but there definitely wasnít any...
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    Hi Sarah and Sheila Good luck for next week. I...

    Hi Sarah and Sheila

    Good luck for next week. I found actually having the PEG fitted was much easier than I had anticipated. Having it in place takes the pressure off me for eating and makes it...
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    Hi Ellie It sounds wonderful. I could do with...

    Hi Ellie

    It sounds wonderful. I could do with one myself.

    Lynne, I've been really cold since I came home from hospital. Our heating is on high all day long.
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    Hi Andy Is sleep apnoea a symptom of MND? I...

    Hi Andy

    Is sleep apnoea a symptom of MND? I donít know. I know that weakness of the muscles for breathing is, which was why I mentioned it.
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    Hi Sheila, whereabouts in Somerset are you? I...

    Hi Sheila, whereabouts in Somerset are you? I lived in Wellington and then Chard before moving up to Greater Manchester.
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    Thank you for posting the link, Doug. It was...

    Thank you for posting the link, Doug. It was interesting to hear her explaining why itís important to use mice in research.
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    Hi Julie and welcome to the forum that no-one...

    Hi Julie and welcome to the forum that no-one wants to need.

    Yes, MND is a horribly isolating disease, partly because it is rare, but also because everyoneís MND journey is different. I certainly...
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