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  1. Thread: Nippy 4

    by Terry
    Replies
    16
    Views
    3,248

    sorry to be so negative but i have had a...

    sorry to be so negative but i have had a extremely fatigued sinse November.

    my eyes, brain,memory area not working right. i struggle to eat, drink, eat breath without feeling...
  2. Thread: Nippy 4

    by Terry
    Replies
    16
    Views
    3,248

    Thanks Andy; They are sending me out a mask,...

    Thanks Andy;

    They are sending me out a mask, don't know what one. Your other one could be quite good being shorter,

    I am quite rough am very tired, finding it hard to ware the mask.

    Been...
  3. Thread: Newly diagnosed

    by Terry
    Replies
    11
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    2,925

    Hi Lizzie, Most of us are worried about the...

    Hi Lizzie,
    Most of us are worried about the virus because it affects our already compromised breathing. Doubt it will be possible but try to push for a NIPPY breathing machine because it would...
  4. Thread: Nippy 4

    by Terry
    Replies
    16
    Views
    3,248

    My over night at hospital was set at 12 3 so...

    My over night at hospital was set at 12 3 so maybe in order to seal 14 6 I tightened it to much. Have since cut my wiskers off but doubt I'll be wearing it tonight.

    The size is Large.

    Shame,...
  5. Thread: Nippy 4

    by Terry
    Replies
    16
    Views
    3,248

    Hi Graham and Ellie; Thanks for the link. ...

    Hi Graham and Ellie;

    Thanks for the link.

    I think that the Pressures seem ok' my nose is quite wide so it's the sides that are feeling bruised and not the top.

    this is the mask i have,...
  6. Thread: Nippy 4

    by Terry
    Replies
    16
    Views
    3,248

    Nippy 4

    I was lucky enough to bring home a Nippy 4 Tuesday after one night of trying it. I have used it for a couple of hours during the day time and used it for eight hours last night. It has caused me...
  7. Replies
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    18,041

    Hi Lynne; Hope your husband is being careful...

    Hi Lynne;

    Hope your husband is being careful now.

    My wife has.

    Love Terry
  8. Replies
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    915

    COVID-19. Mnd person dies

    Craig Ruston from Kettering in Northamptonshire died on Monday morning. Credit: Facebook/Me and my MND
    The youngest person to die from coronavirus in the UK is believed to be 45-year-old Craig...
  9. Replies
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    Views
    18,041

    Hi Graham, Sorry to hear that you have been so...

    Hi Graham,

    Sorry to hear that you have been so unwell. Like you I can coat things ten feet away when I sneeze or cough.

    Pleased I have the nippy.
  10. Replies
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    Thanks lesley, Graham, Chimp and Debbie; I am...

    Thanks lesley, Graham, Chimp and Debbie;

    I am at home now with a Nippy with humidifier, Totally shattered. tell you more later.

    Love Terry
  11. Replies
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    18,041

    I went to Papworth today for breathing tests and...

    I went to Papworth today for breathing tests and to try to get a breathing machine.

    They would not give me one but I am staying overnight or two to get one because it would be safer for me if I...
  12. Replies
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    18,041

    Hi Deb, I am pleased to hear that you you have...

    Hi Deb,

    I am pleased to hear that you you have grounded your husband.

    Love Terry
  13. Replies
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    1,668

    Oh dear, Ellie, I couldn't see them. Love...

    Oh dear, Ellie,

    I couldn't see them.

    Love Terry
  14. Replies
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    18,041

    I agree Ellie, Here we are sitting ducks, so...

    I agree Ellie,

    Here we are sitting ducks, so vulnerable.

    Don't think that there could be much of a worse thing for us with carers.

    Nobody is giving the right numbers because they are no...
  15. Replies
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    18,041

    Hi Cc; What worries us so much is the speed in...

    Hi Cc;

    What worries us so much is the speed in which it travels along with it attacking most of us poor respiratory function.

    It's probably little worry to normal people and you are probably...
  16. Replies
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    1,668

    Thanks Admin for removing the posts quickly and...

    Thanks Admin for removing the posts quickly and on a Saturday.

    Love Terry
  17. Replies
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    1,668

    H Andy; It would appear that all off their 18...

    H Andy;

    It would appear that all off their 18 posts have been made this morning although they joined yesterday.

    Love Terry
  18. Replies
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    1,668

    Instinctive unrelated posts

    Please remove the insensitive, unrelated posts, I have reported some of them How anyone has so low morals to post here on a Mnd site, such rubbish is beyond belief.

    Terry
  19. Replies
    99
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    18,041

    I'm worried to about carers not being honest...

    I'm worried to about carers not being honest because many are on zero hours contracts.

    You are extra at more of a risk than many of us at catching it.

    My breathing is not quite so good now so...
  20. Replies
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    10,011

    Hi Larry, Windows 7 had quite a good system...

    Hi Larry,

    Windows 7 had quite a good system for operating the computer by speech. It was not perfect but I knew of a Mnd chap who wrote loads using it. Handy to have someone proff read it and...
  21. Thread: Douglas

    by Terry
    Replies
    11
    Views
    2,410

    Sorry to hear this, Chrissie; You and Douglas...

    Sorry to hear this, Chrissie;

    You and Douglas have been through such a rough joinery. It is nice to hear that he passed peacefully.

    Thoughts are with you and your family etc.

    Hugs, Terry
  22. Thread: Branch meetings

    by Terry
    Replies
    8
    Views
    1,785

    Can understand your concerns, Lynne; Not the...

    Can understand your concerns, Lynne;

    Not the best of places, wife is still going to the gym , which I would say is a lot less risky.

    Fingers crossed, Terry
  23. Thread: Branch meetings

    by Terry
    Replies
    8
    Views
    1,785

    Hi Lynne, I know the worries but it is hard to...

    Hi Lynne,

    I know the worries but it is hard to stop the other half from having a life at the moment.

    I have been doing fist bumps for years now, even to doctors etc.

    My wife still does...
  24. Thread: Branch meetings

    by Terry
    Replies
    8
    Views
    1,785

    Hi Barry; Seems there is no worry about toilet...

    Hi Barry;

    Seems there is no worry about toilet rolls, the largest manufacture said they have millions in their warehouse.

    I am going to be more careful now, so not going in costa or maybe gym. ...
  25. Thread: Kayleigh

    by Terry
    Replies
    16
    Views
    4,190

    Thanks, Barry and Ellie; I guess we think the...

    Thanks, Barry and Ellie;

    I guess we think the worse because she posted so much. Just hope she can come out under that invisible coat, even to send a PM to one of us , saying she's still around.
    ...
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