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  1. Replies
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    Hope you are all safe there, Sarah, and the WAV...

    Hope you are all safe there, Sarah, and the WAV isn't floating off down the street !!

    Love Ellie.
  2. Thread: ALS for Dummies

    by Ellie
    Replies
    2
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    274

    "You own the disease" I couldn't agree more,...

    "You own the disease"

    I couldn't agree more, Shaun.

    Because keeping positive is SO important, taking ownership and control of our MND is empowering - and that includes being confident enough...
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    Hi Admin, Perhaps you could tell whoever sent...

    Hi Admin,

    Perhaps you could tell whoever sent you the survey that there is an error in its 'clickabililty'.

    Question 11:

    1120

    It asks the participant to click ALL applicable options but...
  4. Thread: Voice Banking?

    by Ellie
    Replies
    6
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    399

    You might find this Info Sheet helpful, Lesley: ...

    You might find this Info Sheet helpful, Lesley:

    https://static.mndassociation.org/app/uploads/2017/05/19135029/07D-Voice-banking.pdf

    Love Ellie.
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    Hi Ali, Sorry you find yourself in such a...

    Hi Ali,

    Sorry you find yourself in such a state of worry.


    Carpal Tunnel Syndrome can account for these physical changes.


    Yes, tongue fasciculations on their own can most definitely be...
  6. Thread: At peace now.

    by Ellie
    Replies
    8
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    665

    So sorry to hear your sad news MamaRics. ...

    So sorry to hear your sad news MamaRics.

    Wishing you peace and strength over the coming weeks.

    Love Ellie.
  7. Thread: Stomach problem?

    by Ellie
    Replies
    4
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    362

    A GP or nurse can palpate his abdomen and feel...

    A GP or nurse can palpate his abdomen and feel for impaction or, worst case scenario, he will be X-rayed.

    If it's constipation, a few Movicol (or similar) should do the trick and he may need to...
  8. Thread: Stomach problem?

    by Ellie
    Replies
    4
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    362

    Hi Chrissie. Any chance Douglas is constipated...

    Hi Chrissie.

    Any chance Douglas is constipated - nausea, stomach ache and swollen tummy are often signs of (bad) constipation. Has he an appetite?

    I do think it is one of the times to...
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    Hi Harry and welcome to the Band of Brother,...

    Hi Harry and welcome to the Band of Brother, Sisters, other identifiers and non-identifiers hanging out on the Forum.

    Sorry you've had the diagnosis.

    Love Ellie.
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    Clever lady, your wife. You'll just have to...

    Clever lady, your wife. You'll just have to start accidentally dropping a dish or two and you may get a free pass :D

    Actually Shaun, consider your dishwashing chore as hydotherapy for your hands...
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    Hi Sarah, Even though we know we've a terminal...

    Hi Sarah,

    Even though we know we've a terminal illness, it is still utterly shocking to hear healthcare professionals talk about a prognosis and it sure does focus the mind !!


    That is...
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    Hi Shaun, Even if your nearest specialist MND...

    Hi Shaun,

    Even if your nearest specialist MND Clinic is a bit of a trek, it's worth going to for regular appointments, at least until you get to know what's what regarding local services.
    ...
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    Sorry to hear your mum had ALS, Nigel. Have...

    Sorry to hear your mum had ALS, Nigel.

    Have you been to your GP yet, given you've been worried about your symptoms for 2 months now?

    Take care.

    Love Ellie.
  14. Replies
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    Well, who'd have thunk !!! Different teams to...

    Well, who'd have thunk !!! Different teams to what we saw last week.

    You can cheer for England now - hey, not fair, you get 2 chances :D:D
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    Oh I don't think you've much to fear in the rugby...

    Oh I don't think you've much to fear in the rugby today Sarah - I suspect Ireland will be trounced today !!!

    Glad last night was better, the pump is very handy indeed.

    Love Ellie.
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    Hi Sarah, Hope the pump behaved last night and...

    Hi Sarah,

    Hope the pump behaved last night and you slept well, or slept OKish at least?

    Love Ellie.
  17. Thread: She's Gone

    by Ellie
    Replies
    14
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    1,299

    Thank you for letting us know, Chrissie. My...

    Thank you for letting us know, Chrissie. My heartfelt condolences go to you all.

    I know I said it lots of times but I shall say it again - nobody could have done more for your beloved Gran than...
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    Hi Sarah, If the pump was set up OK and the...

    Hi Sarah,


    If the pump was set up OK and the Volume Rate definitely was the right number of hours - not that I am doubting your combined arithmetical ability :D - assuming it said End...
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    Oh, I see - technically yes, but one would hope...

    Oh, I see - technically yes, but one would hope that a company of Aviva's standing will do the honourable thing, especially as MND is now on the list....

    The 6 month decision timeframe is...
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    Hi Lindy, Sorry you've had to join us but a...

    Hi Lindy,

    Sorry you've had to join us but a warm welcome to you.

    If you look at Aviva's current list of illnesses covered on their Critical Illness Cover, Motor Neurone Disease is clearly...
  21. Thread: So tired

    by Ellie
    Replies
    45
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    4,926

    I know, my lovely, I know it’s a right royal pain...

    I know, my lovely, I know it’s a right royal pain in the bum (yes, pun intended) but it does need to be done - short-term pain for long-term gain and all that - and I‘ve had a fair amount of eye...
  22. Thread: Advice needed

    by Ellie
    Replies
    10
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    1,479

    Hi Mark and a warm welcome to the Forum. I am...

    Hi Mark and a warm welcome to the Forum.

    I am so sorry for your wife's recent diagnosis.

    Lynne's advice about getting walking aids, if your wife has none, is spot on - it is important not to...
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    My dog lies on my bed with me (thankfully not on...

    My dog lies on my bed with me (thankfully not on that morning !!) and I don't even mind her often-stinky breath :)

    Sometimes one of my family takes my hand and helps me stroke her - bliss.
    ...
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    Oh Lynne that is so frustrating for you :( I...

    Oh Lynne that is so frustrating for you :(

    I tend to type in Word, then copy & paste into the reply box on the Forum. That way if my eyes go wayward and I mess up, I can click 'Undo' and text...
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    Yeah I know that feeling of utter mortification...

    Yeah I know that feeling of utter mortification and self-loathing having laid in the contents of my bowels for 2 hours in bed one morning :(:( Hubby & children had left for work and school as usual...
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