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    Good afternoon Musa I'm sure somebody will be...

    Good afternoon Musa

    I'm sure somebody will be along in a moment with more knowledge than I have but I believe that edaravone has only a limited impact on the progression of motor neurone disease....
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    Hi Lindy, Interesting update – thank you ...

    Hi Lindy,

    Interesting update – thank you

    I'm in fact in the opposite position because my critical illness cover lapsed a while ago but I still have a life insurance.

    My neurologist said he...
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    Hi MumaRics, My condolences for your loss and...

    Hi MumaRics,

    My condolences for your loss and I'm sorry to hear didn't happen where you would have preferred it - I hope the latter did not add to your pain too much.

    Thank you for your thanks...
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    Good morning Andy Welcome from me too although...

    Good morning Andy

    Welcome from me too although of course you are in a place that you would rather not be.

    My approach is to use of much as much as me as much as I can for as long as I can and...
  5. Thread: She's Gone

    by nunhead_man
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    Good morning Chrissie Thank you for letting us...

    Good morning Chrissie

    Thank you for letting us know and thank you for your appreciation of us.

    May we appreciate you for your strength and fortitude?

    Please accept my heartfelt condolences...
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    Good afternoon Doug Thank you As I was...

    Good afternoon Doug

    Thank you

    As I was passing I had a look.

    You need to be careful with them as to the power they draw - the ones I saw would not for example be safe with an electric fan...
  7. Thread: RaphaLX

    by nunhead_man
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    Good morning Timm I looked in because Rapha is...

    Good morning Timm

    I looked in because Rapha is a cycling brand in the UK!

    This looks like another route to reduce glutamate and I guess this is to be welcomed but I can't see any clinical trial...
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    Good afternoon Chrissie As with everybody else...

    Good afternoon Chrissie

    As with everybody else thank you for keeping us updated and hope the nursing home is working out well.

    Hope your uncle despite being not much use to you is not been too...
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    Fight for MND

    This....

    Fight For Hope | Eric Stevens & Amanda Stevens | TEDxBigSky

    https://www.youtube.com/watch?v=0KYK6A0j49s
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    Good morning Thank you all I'm cheered up...

    Good morning

    Thank you all

    I'm cheered up because the "Dutch auction" that our agent ran has resulted in rather more money for the place we live in at the moment that I was expecting.

    I've...
  11. Thread: So tired

    by nunhead_man
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    Good morning Terry I'm sorry to hear you...

    Good morning Terry

    I'm sorry to hear you sounding so dispirited.

    My two pennies worth is that modern floorstanding hoists are quite easy to work if you have the space and somebody is trained to...
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    Good afternoon, Will be raising a glass this...

    Good afternoon,

    Will be raising a glass this evening to this house which is now under offer for sale and hoping to be sober enough to go down to Southampton on Friday to look at the place we think...
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    Good morning Nav Welcome to the forum and...

    Good morning Nav

    Welcome to the forum and thank you for such a detailed history.

    It seems you have had quite a lot of support from a base of substantial understanding of MND but if we can help...
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    Good morning Tangly, That communication from...

    Good morning Tangly,

    That communication from your Mum must have helped you quite a lot I guess?

    And I understand what you're saying about people saying what they think is kind but in fact...
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    Good morning Chrissie Thank you for updating...

    Good morning Chrissie

    Thank you for updating us and I'm sorry to hear that your grandmother is approaching the end.

    I can only salute your fortitude and the depth of your love and care and hope...
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    Good morning Hettie I hear what you say...

    Good morning Hettie



    I hear what you say but I'm interested in the side effects you attribute to riluzole - partly because I get no such side effects which makes me wonder if something else is...
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    Good morning Juliette Thank you for the...

    Good morning Juliette

    Thank you for the compliment and the update.

    I hope you have some success in getting your mother home.

    From my own information I wonder if you've had any contact with...
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    Good morning Lee and Ellie Thank you both for...

    Good morning Lee and Ellie

    Thank you both for that information - I'm with you Lee and will wait to see where this goes before jumping in.

    As you say I guess some people will try and get this...
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    Hi All OK - thanks Kayleigh Next...

    Hi All

    OK - thanks Kayleigh



    Next question do we have any ideas what these things do?
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    Good afternoon I said partly in jest elsewhere...

    Good afternoon

    I said partly in jest elsewhere that I wonder if this is a feature of the wish for Scottish independence!

    Gemma are you sure Sheffield is not involved?

    The MDN coordinator at...
  21. Thread: Terry

    by nunhead_man
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    Good afternoon Terry That is very good news -...

    Good afternoon Terry

    That is very good news - and I'm sure there will be lots you can do!
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    Good afternoon Juliet Is the person concerned...

    Good afternoon Juliet

    Is the person concerned able to communicate in anyway? I realise if they are deep into MND they may have lost their voice but must have been able to do so in some way to...
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    Hi Lynne Let's hope they can repeat the...

    Hi Lynne



    Let's hope they can repeat the success achieved by Viagra!

    In case you don't know this was a drug that was repurposed from proposed heart condition use to create heart stopping...
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    Good evening Doug Yes indeed ...

    Good evening Doug

    Yes indeed

    https://www.mndscotland.org.uk/latest/news/ground-breaking-mnd-drug-trial-launched/

    Assume some of Dodi's money is going to this?
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    Hi Ellie Okay so under the tongue rather than...

    Hi Ellie

    Okay so under the tongue rather than not down the stomach tube.

    Noted about the taste but I have slept quite well the last few nights so will just note where this information is in...
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