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Thread: New to Forum

  1. #1
    Forum Member
    Join Date
    May 2012
    Location
    Warlingham, Surrey
    Posts
    1

    Red face New to Forum

    Hi

    My name is Kathy and I am new to this forum, although not new to MNDA or ALS.

    My husband has the disease and it has progressed so quickly. First symptom (which was ignored) in August 2009 - a slight slurring of his speech.

    Testing commenced in February through to June 2010 where Bulbar Motor Neurone was first diagnosed.

    July 2010 confirmation from one of the MND clinics in London and in November last year it was confirmed that he had ALS.

    Kerry worked until May last year, but was pushed out from his job because of his communication issues. He now has no communication, no use of his arms and was fitted with a Rigg last August and has no swallow at all.

    He has BIPAP, Cough Assist, Sucking Machine and Nebuliser all at home and uses them as and when necessary.

    Sorry have rambled on a bit here, but thought it useful for all to know at what stage I am now at with Kerry.

    Regards

    Kathy

  2. #2
    Forum Member
    Join Date
    Dec 2010
    Location
    Luton
    Posts
    238
    Welcome to the forum.

    Kind Regards

    Steve

  3. #3
    Forum Member roy's Avatar
    Join Date
    Mar 2012
    Location
    nettlebed oxford
    Posts
    1,035
    Hi kathy and Kerry,
    Warmest welcome to you and your family.

    Best wishes

    Roy

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